Share Your Story

So much of what makes our community wonderful and special is the individuality and uniqueness of each individual’s experience. Our hope is that these stories will help answer important questions that persons who recently received a diagnosis ask concerning these conditions, and set straight a number of the most common misconceptions.

47XXY (Prenatal diagnosis to age 7)
Submitted by Robert Shelton, Executive Chairman

47XXY (Prenatal diagnosis to age 17)
Submitted by Ginnie Cover, Director of Education

47XXY (Prenatal diagnosis to age 7)
Submitted by Sherryl Belinsky,  ListServe Administrator

47XXY (Diagnosis at 11 to age 17)
Submitted by Paulette Rothacher, Program Coordinator

Trisomy X (Diagnosis at 10 to age 18)
Submitted by Jill Balfour, Program Coordinator

47XYY (Diagnosis at 6 mos. to age 5)
Submitted by Leslie Petruck, Program Coordinator

Beyond reading these stories, we encourage persons seeking additional information to speak with a Program Coordinator or Program Assistant, and/or to subscribe to one or more of KS&A’s online discussion groups in order to network with other individuals and families facing similar challenges.

If you would like to contribute your story - and we hope that you will - please send us a Word (.doc) or simple text (.txt) document that is no longer than four type written pages in length including photograph(s) to the (JavaScript must be enabled to view this email address).  Your story could include tales of victory, struggle, cutest quirks and/or advice to others. If you wish to attain a certain amount of anonymity, you are welcome to avoid using your (or your child’s) full name and town in the materials.  Also, we ask that you not mention the names of specific doctors.

Please accompany your story submission with an executed copy of KS&A’s Standard Consent and Release form whether or not you are including pictures.