Links to Other Resources

This section provides a series of links to other resources that may be useful to some persons dealing with X and/or Y aneuploidy conditions.  We say “some persons” because we are keenly aware of the fact that there is wide variability in the signs and symptoms associated with these conditions, and not everyone will require the same resources.  However, we’re hopeful that a number of these resources may be useful to a significant percentage of this population. 

If you know of resources that have been useful to you, we hope you’ll take time to (JavaScript must be enabled to view this email address) so that we’re able in turn to share them with other KS&A members.  Here’s some of the best we’ve heard about so far:

About the IEP Process

• Understanding Tests and Measurements for the Parent and Advocate
Comments a member, this is a great article to help prepare for IEP meetings and get the most out of the test scores you have…  and to ultimately getting our school-aged children the help they require.  The article, written by Pete and Pam Wright of Wright’s Law, is detailed and lengthy, but if you are having difficulty getting cooperation from your school system, it may be worth the time to read.  The article is located on the LD Online website, a leading website on learning disabilities, learning disorders and differences that provides guidance on attention deficit disorder, ADD / ADHD, dyslexia, dysgraphia, dyscalculia, dysnomia, reading difficulties, speech and related disorders. (Read this article now)

Special Needs Advocates and Attorneys

• Special Needs Advocate & Attorney Directory
A state-by-state listing of special needs advocates and attorneys of the United States compiled by Education-A-Must Inc. a nonprofit corporation providing advocate services for the child or youth with physical, emotional, behavioral, learning disabilities and other types of special needs. (Try out this resource now)
• Yellow Pages for Kids with Disabilities
From Wright’s Law, this state-by-state guide will help you to find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates and attorneys for children with disabilities.  The list also includes special education schools, learning centers, treatment programs, parent groups, respite care, community centers, grassroots organizations and government programs for children with disabilities. (Try out this resource now)

Specific Learning Disability

• National Research Center on Learning Disabilities
The “How To section” of the NRCLD site provides information from experts in Responsiveness to Intervention (RTI) and its components (such as progress monitoring or screening), as well as Specific Learning Disability (SLD) determination, and parents’ roles. This information is compiled to provide recommendations and examples in the various areas of SLD. (Visit the NRCLD website)

Depression

• Depression and Bipolar Support Alliance (DBSA)
DBSA is a leading organization focusing on depression, whose comprehensive website includes a list of useful services to persons with depression or bipolar disorder.  DBSA answers more than 5,000 calls per month on its toll-free information and referral line and has a grassroots network of more than 1,000 patient-run support groups across the country.  (Visit the DBSA website)