General Information

/General Information

On Noninvasive Prenatal Screening

"ACMG Releases Updated Position Statement on Noninvasive Prenatal Screening (NIPS) for Detection of Fetal Aneuploidy”—The American College of Medical Genetics and Genomics (ACMG), released a new position statement on July 28, 2016 that expands upon its 2013 recommendations on the use of NIPS in prenatal care. "ACMG continues to stress that NIPS is a screening [...]

October 31st, 2016|

Sibling Support

Recommended Reading: Tips From Parents and Adults for the benefit of others Rules by Cynthia Lord, a book for "sisters" More about the book About the Author Being the Other One:  Growing Up with a Brother or Sister Who Has Special Needs by Kate Strohm, a book for parents and siblings More about the book [...]

October 31st, 2016|

General Support for Parents

Recommended Reading: Tips From Parents and Adults for the benefit of others A Different Kind of Perfect:  Writings by Parents on Raising a Child with Special Needs by Cindy Dowling More about the Book About the Author Note:  These are unofficial recommendations from parents who have found these books, articles, websites and other resources helpful [...]

October 28th, 2016|

EEOC Announces Final Bipartisan Regulations for the ADA Amendments Act

These changes to US laws and regulations may be helpful to those of you who are seeking disability benefits or protections: EEOC Announces Final Bipartisan Regulations for the ADA Amendments Act The U.S. Equal Employment Opportunity Commission’s (EEOC) final regulations to implement the ADA Amendments Act (ADAAA) are now available on the Federal Register website. [...]

October 28th, 2016|

Clothing for Kids Who Have Sensory Issues

Some children have severe sensory issues.  There are many resources for special clothing for these children.  These two sources were recommended by a mom. Her comment:  "Here are a couple of links to some places that sell shirts with NO TAGS, and FLAT SEAMS and socks WITH NO SEAMS!" http://www.softclothing.net/ http://www.sensorystorecanada.com/  (Note:  This resource may [...]

October 28th, 2016|

IEP and School Resource Sites

Great resource sites for IEP and other school-related suggestions: www.supac.org (this is an amazing resource) http://www.ocmboces.org/teacherpage.cfm?teacher=1227 http://www.ncset.org/publications/viewdesc.asp?id=1431 http://www.pacer.org/tatra/resources/personal.asp This link takes you to the resource library with manuals and books that can be downloaded. Here’s just one example of the information they have (great primer for IEP work): http://beachcenter.org/Books/FullPublications/PDF/RoadMapToSuccess.pdf

October 28th, 2016|

Resource: Independent Publishers of Accessible Books That Make a Difference

Recognized as the leading publisher on autism and Asperger syndrome, they publish in a range of areas including social work, education and arts therapies. Jessica Kingsley Publishers books are for parents, professionals, academics and general readers.

October 28th, 2016|

Letter to the Editor: In response to Wall Street Journal and NY Times

In response to: "New Tests for Newborns, And Dilemmas for Parents" by Amy Dockser Marcus Wall Street Journal, July 26, 2011 "Test Can Tell Fetal Sex at 7 Weeks, Study Says" by Pam Belluck NY Times, August 9, 2011 AXYS submitted this letter to the editor. AXYS serves individuals who have one of the most [...]

October 28th, 2016|

Dear Abby, Dear Abby..

AXYS was founded on the response to a letter to Ann Landers sent by our founder, Melissa Aylstock.  David Drexler, a long-time volunteer with AXYS and member of our communications committee, has written a beautiful, compelling letter to Dear Abby.  Please write to Dear Abby and share your letter with us. David's letter: Dear Abby, [...]

October 28th, 2016|

New Guide Offers Road Map To IEP Process

Reported in Disability Scoop Click here to view guide produced by Autism Speaks Family Services

October 28th, 2016|