Media Contacts:

Robert Miller, Interim Executive Director:
Myra Byrd, Chair, Board of Directors:

Current PR:

New Chromosome Clinic Offers Hope: Nemours launches a new program for kids with X and Y chromosome disorders

Past PR:

Free Family Genetic Information Kits
News Story: Medical Advances Help Those with Klinefelter Syndrome
TWC News – 7/9/14

Gubernatorial Proclamations:

States: CO, DE, IL, MD, MS, NH, NJ, OK, PA, TX, VT, WV


  • Brochures
  • Interactive FAQ
  • Condition-Specific Resources :
    • ~ 47,XXY (Klinefelter Syndrome
    • ~ 47,XXX (Trisomy X)
    • ~ 47,XYY (Jacobs Syndrome)
    • ~ 48,XXYY (note that the XXYY Project is a subsidiary project of AXYS. This alliance is new, and AXYS branding is incomplete.)
  • Support for prenatal diagnosis
  • Resource and Research Library
  • Conference Information

Local and Statewide Media Contacts