Preliminary schedule – may be subject to change
Friday, July 25
4:30-7pm – Check-in
5-7pm – Dessert Welcome Reception
Saturday, July 26
7-8:30am – Breakfast Buffet
8:30am-4:30pm – Childcare
8:30am-2pm – Chromodiversity Camp
| Room | 8:30-9:15am Session 1 | 9:30-11:45am Session 2 Welcome and Keynote | 12-1pm Lunch | 1-1:50pm Session 3 | 2-2:50pm Session 4 | 3-3:50pm Session 5 | 4-5pm Session 6 |
|---|---|---|---|---|---|---|---|
| Emory Amphitheater (Live Streamed & Recorded) ** | The Extraordinary Babies Study- Progress and Research Findings Nicole Tartaglia Kayla Nocon | 1) Welcome 2) Site Summaries - ACRC Members 3) GALAXY Registry - Past Insights, Current Progress, Future Directions Shanlee Davis Alexa Carl (No breakout sessions during Keynote Address) | Condition-specific Meet and Chat Sessions | Updates from the NIMH Intramural Research Program Study on X/Y Chromosome Variations Armin Raznahan | X and Y Chromosome Variations and Fertility Options Hooman Sadri | Condition-specific "Ask the Doctors” XXY Parents |
|
| Oak Amphitheater | Strategies for Promoting Executive Functioning for adolescents & adults M.Joliffe S. Martin R. Wilson | Condition-specific Meet and Chat Session XXY Parents | Evaluation and Treatment of ADHD/Anxiety in Adolescents/Adults with SCA Kate Deer Joanna Dreyer | Developmental Trajectories of Children with X and Y chromosome variations Nicole Tartaglia Rebecca Wilson | Condition-specific “Ask the Doctors” XXY Adults |
||
| Azalea | XXY Adults Meet and Greet | Condition-specific Meet and Chat Session Trisomy X | Transition to Adulthood- Services for Teens and Adults to Achieve Employment and Independence Dorothy Boothe Ginnie Cover | Mental Health in Young Adults with X and Y Chromosome Variations -Transition to Adulthood David Hong | Condition-specific “Ask the Doctors” Trisomy X |
||
| Mt. Laurel | Trisomy X adults Meet and Greet | Condition-specific Meet and Chat Session XYY | Considerations for testosterone therapy for children and teens with sex chromosome aneuploidy Alan Rogol | Complex Relationships of Siblings when there are Special Needs Susan Brasher | Condition-specific “Ask the Doctors” XYY |
||
| Hickory | XYY Adults Meet and Greet | Condition-specific Meet and Chat Session XXY Adults | Unassigned | Unassigned | Condition-specific “Ask the Doctors” XXYY/XXXY |
||
| Dogwood | XXYY & XXXY Adults Meet and Greet | Condition-specific Meet and Chat Session XXYY/XXXY | Unassigned | Unassigned | Unassigned |
**All Emory Amphitheater presentations are also live streamed to virtual participants and available to all for viewing after the conference.
Unassigned rooms are available for research recruitment or for informal meetings by request to Program Director Lindsey Lind.
Sunday, July 27
7:30-9am – Breakfast Buffet
8:30-3pm – Childcare
| Room | 9-10am Session 7 | 10-11am Session 8 | 11am-12pm Session 9 | 12-1:30pm Lunch and Poster Session | 1:45-3pm Session 10 |
|---|---|---|---|---|---|
| Emory Amphitheater (Live Streamed & Recorded) ** | Unpacking Social and Emotional Challenges for Teens/Young Adults with X/Y Variations Caitlin Middleton Kate Deer Rebecca Wilson | Eval and Treatment Of ADHD & Anxiety In Children Nicole Tartaglia Kayla Nocon | Understanding X and Y Variations: Genetic Diagnosis, Terminology & Next Steps Planning Susan Howell | Support Groups by Genetic Signature |
|
| Oak Amphitheater | Disclosing the Diagnosis- Panel Discussion Mod. by Susan Howell | Testosterone Treatment Options in Klinefelter Syndrome Hooman Sadri | What Adults with X/Y Variations Want Parents and Others to Know Panel Discussion Mod. by Sharron Close | Support Groups by Genetic Signature |
|
| Hickory | Tips for Staying Healthy for Teens and Adults with X and Y Chromosome Variations Maria Vogiatzi | X/Y Chromosome Variations and Autism: Insights from Large Scale Population Research Matthew Oetjens | Promoting physical activity in Children with XXY Courtney Finlayson | Support Groups by Genetic Signature |
|
| Mt. Laurel | Unassigned | Unassigned | Unassigned | Support Groups by Genetic Signature |
|
| Azalea | Unassigned | Unassigned | Unassigned | Support Groups by Genetic Signature |
|
| Dogwood | Unassigned | Unassigned | Unassigned | Support Groups by Genetic Signature |
** All Emory Amphitheater presentations are also live streamed to virtual participants and available to all for viewing after the conference.
Unassigned rooms are available for research recruitment or for informal meetings by request to Program Director Lindsey Lind