Every two years, AXYS sponsors a conference that brings together those with an extra X or Y chromosome variation, their parents or other family members, researchers, medical professionals and others. The conference features individual presentations, panel discussions, and plentiful opportunity for informal discussion and support on a wide range of matters relevant to our members and friends. Much of the material is of a timeless nature that can be highly informative and helpful to those new to the field.


2017 AXYS Family Conference, Aurora, Colorado


2015 AXYS Family Conference Presentations

2015 State of the Science: Updates in X&Y Chromosome Variation Research

The Endocrinology of Klinefelter Syndrome Throughout Childhood

For Better or For Worse: Environmental Factors and Individuals with an Extra X Chromosome

Work Incentives for People with Disability Benefits

Sex Chromosome Variation: Genes, Environment, Brain and Behavior

Learning Problems: Viewed Through a Life Course Lens with an AXYS Slant

47,XXY: Hormonal Manipulation and Preservation of Fertility

Executive Functioning: How to Help Children with Challenging Behavior

Introduction to the Americans with Disabilities Act

Government Benefits for Adults with X and Y Chromosome Variations

Sex And Gender: What the Data Tells Us About Klinefelter Syndrome

Endocrine Management of Klinefelter Syndrome in Adulthood

Infants and Children with Klinefelter Syndrome: Hormones and Development

The Cognitive and Behavioral Phenotype Of 47,XXY And 47,XXX: A Neuropsychological Approach

Neurodevelopment from Birth to Young Adulthood in X&Y Chromsome Variations

Living With Loss and Grief


Powerpoint Presentations From the 2013 Conference

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PRESENTER

SESSION TOPIC
Sharron Close, PhD Family Management Style and Diagnosis Disclosure in Klinefelter Syndrome: Preliminary Findings
Sharron Close, PhD Columbia University & Yale University – Research Update (Panel)
Sharron Close, PhD When Others Don’t Get It
Jackie Frazier, MA, SLP-CCC Speech-Language Intervention: Goals and Expectations, Early intervention through High School
Sydney Martin, MS OTR Occupational Therapy Treatment Across the age span
Phyllis Quatman; Gary Glissman Legal and Law Enforcement Issues
Rebecca Wilson, PsyD, Erin Gorman Bozorgpour, PhD, Jamie Blume, PsyD Behavioral Considerations for XY Chromosome Differences
Christa Hutaff-Lee, PhD Supporting the Development of Planning and Org Skills
R. Maria R. Ochoa, LCSW Strategic Planning & Resources for Crisis Prevention and Intervention
Pravin Rao, MD  XXY and Fertility – and introduction to Johns Hopkins Klinefelter Syndrome Center
Ram Raj Singh, MD X/Y chromosome variations & Immune System Health
Ram Raj Singh, MD UCLA Research Update (Panel)
Phillip S Zeitler, M.D. PhD A Brief overview of endocrine issues in Klinefelter syndrome
Phillip S Zeitler, M.D. PhD Endocrine Issues Related to X and Y Chromosome Variations
Jeannie Visootsak, MD, FAAP Streams of Development and Behavior in XXY
Jeannie Visootsak, MD, FAAP Health and Development in XYY Syndrome