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New Research Project: How Families Experience an X & Y Chromosome Variation Diagnosis

Coming Soon:

New Research Project entitled:

Family Experiences and Attitudes on Support When Receiving the Diagnosis of an X & Y Chromosome Variation.

Megan Allyse, PhD from The Mayo Clinic in collaboration with Sharron Close, PhD from Emory University will be recruiting volunteers from the X & Y Chromosome Variation Community to participate in this new study beginning in September, 2018.  The study involves answering questions in an online survey that will take approximately 20-25 minutes of your time.

Watch for the announcement in early September. We look forward to your participation!

2018-08-28T21:06:59+00:00Categories: All Variations|

Everything You Never Knew About the ADHD Brain

Article Title: Everything You Never Knew About the ADHD Brain

Author: Alison Kravit, PsyD, AAC

Date of Publication: July 2018

“Imagine hundreds of cars approaching an intersection that has no traffic light or stop sign. This is what happens to the ADHD brain every day where the prefrontal cortex (the intersection) is unable to properly regulate your various thoughts and feelings (the various cars approaching the intersection). Learn more about the ‘Intersection Model’ for ADHD.”

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2018-09-04T12:44:12+00:00Categories: All Variations|

Secrets of the ADHD Brain: Why We Think, Act, and Feel the Way We Do

Article Title: Secrets of the ADHD Brain: Why We Think, Act, and Feel the Way We Do

Author: William Dodson, MD

Date of Publication: 2016

“ADHD is a confusing, contradictory, inconsistent, and frustrating condition. It is overwhelming to people who live with it every day…The Diagnostic and Statistical Manual of Mental Disorders has 18 criteria, and other symptom lists cite as many as 100 traits.”

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2018-09-04T13:25:01+00:00Categories: All Variations|

The Brain-Behavior Connection In Children with ADHD

Article Title: The Brain-Behavior Connection In Children with ADHD

Author: Joel Nigg, PhD

Date of Publication: 2016

Presentation slides providing information on the neuroscience of attention and emotion as it relates to ADHD. The slides also offer a look at self-regulation of emotions and behavior in individuals with ADHD and how much variability there is in this condition from one child to the next.

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2018-09-05T10:52:25+00:00Categories: All Variations|

Emory’s Sharron Close Started Clinic for Patients with X & Y Chromosome Variations

AXYS Editor’s Note: AXYS was excited to see this article in the Atlanta Business Chronicle. Dr. Close serves as the chair of the AXYS Professional Advisory Committee and her Atlanta clinic was one of the original clinics in the AXYS Clinic & Research Consortium (ACRC). Her dedication and insight into X and Y variations was already well-known in the community and the guidance that she provides the AXYS organization is invaluable.

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2018-06-18T21:06:33+00:00Categories: All Variations|