Most children and adolescents whose development is affected by having an X or Y variation are eligible for special education services. A federal law, the Individuals with Disabilities Education Act (IDEA) includes a variety of safeguards and options including Part C which provides for services to children birth to 3 years of age, and Part B which mandates a free public education for children with special needs who qualify from the ages of 3 to 21.
IDEA requires a multidisciplinary evaluation to determine if the child qualifies for special education services. This means that professionals from a variety of fields (medicine, psychology, occupational therapy, etc.) and the parents of the child collaborate to assess the child’s strengths and needs and determine appropriate educational services.
Every child eligible for special education has either an Individualized Family Service Plan (IFSP, for children birth to age 3), or an Individualized Education Program (IEP, for children age 3-21). Both programs specify the details of a child’s educational plan.
Intervention varies and is based upon the child’s individual needs. Areas that may be addressed include: speech and language, cognition, behavior, sensory-motor and academics. Settings range from home-based programs for infants to a variety of school-based classrooms for older children and adolescents.
This section provides a series of links to other resources that may be useful to some persons dealing with X and/or Y aneuploidy conditions (see definition below). AXYS is aware that there is wide variability in the signs and symptoms associated with these conditions and not everyone will require the same resources. However, we’re hopeful that a number of these resources may be useful to a significant percentage of this population.
• Wrightslaw: Special Education Law, 2nd Edition
By Peter W.D. Wright & Pamela Darr Wright
• Special Education Law, 3rd Edition
By Nikki L. Murdick & Barbara C. Gartin, et al.
• Steps to Independence: Teaching Everyday Skills to Children with Special Needs
By Bruce L. Baker & Alan J. Brightman
• 1001 Great Ideas for Teaching and Raising Children with Autism or Asperger’s, Revised and Expanded 2nd Edition
By Ellen Notbohm & Veronica Zysk, et al.
• Autism: Asserting Your Child’s Rights to a Special Education
By David A. Sherman
• Self-Help Skills for People with Autism: A Systematic Teaching Approach
By Stephen R. Anderson, Amy L. Jablonski, et al.
• Visual Supports for People with Autism: A Guide for Parents and Professionals
By Marlene J. Cohen & Donna L. Sloan
• Wrightslaw (if page does not open in browser, remove “https” from the URL in the address bar)
• Wrightslaw: The Special Education Survival Guide: From Emotions to Advocacy, 2nd Edition
By Peter W. D. Wright & Pamela Darr Wright
• Wrightslaw: All About IEPs
By Peter W. D. Wright and Pamela Darr Wright and Sandra Webb O’Connor
• Wrightslaw: IDEA 2004
By Peter W.D. Wright and Pamela Darr Wright
• The Complete IEP Guide: How to Advocate for Your Special Ed Child
By Lawrence M. Siegel
• The Everyday Guide to Special Education Law
By Randy Chapman
• IEP and Inclusion Tips for Parents and Teachers
By Anne I. Eason and Kathleen Whitbread
• Nolo’s IEP Guide: Learning Disabilities
By Lawrence M. Siegel
• Writing Measurable IEP Goals and Objectives
By Barbara D. Bateman and Cynthia Herr
• Negotiating the Special Education Maze: A Guide for Parents and Teachers (4th Ed.)
By Winifred Anderson, Stephen R. Chitwood, et al.
• The Goal Mine: Nuggets of Learning Goals and Objectives for Exceptional Children
By Donald Cahill and Maureen Cahill
• The Early Intervention Dictionary, 3rd Edition: An Interdisciplinary Guide to Terminology
By Jeanine G. Coleman
• Right from the Start: Behavioral Intervention for Young Children with Autism (2nd Ed)
By Sandra L. Harris & Mary Jane Weiss
• Autism in Your Classroom
By Deborah Fein & Michelle A. Dunn
• A Picture’s Worth: PECS and Other Visual Communication Strategies in Autism
By Andy Bondy & Lori Frost
• Physical Education for Students with Disabilities: Wrightslaw (if page does not open in browser, remove “https” from the URL in the address bar)
• Adapted Physical Education Guidelines
Note: While these guidelines are specific to California schools, we think readers may find them helpful no matter where you live.