Education

/Education
Education2018-09-01T14:06:01+00:00

Most children and adolescents whose development is affected by having an X or Y variation are eligible for special education services. A federal law, the Individuals with Disabilities Education Act (IDEA) includes a variety of safeguards and options including Part C which provides for services to children birth to 3 years of age, and Part B which mandates a free public education for children with special needs who qualify from the ages of 3 to 21.

IDEA requires a multidisciplinary evaluation to determine if the child qualifies for special education services. This means that professionals from a variety of fields (medicine, psychology, occupational therapy, etc.) and the parents of the child collaborate to assess the child’s strengths and needs and determine appropriate educational services.

Every child eligible for special education has either an Individualized Family Service Plan (IFSP, for children birth to age 3), or an Individualized Education Program (IEP, for children age 3-21). Both programs specify the details of a child’s educational plan.

Intervention varies and is based upon the child’s individual needs. Areas that may be addressed include: speech and language, cognition, behavior, sensory-motor and academics. Settings range from home-based programs for infants to a variety of school-based classrooms for older children and adolescents.

Resources

This section provides a series of links to other resources that may be useful to some persons dealing with X and/or Y aneuploidy conditions (see definition below). AXYS is aware that there is wide variability in the signs and symptoms associated with these conditions and not everyone will require the same resources. However, we’re hopeful that a number of these resources may be useful to a significant percentage of this population.

• ADHD Symptoms in Children and Adolescents with Sex Chromosome Aneuploidy: XXY, XXX, XYY, and XXYY

• Everything You Never Knew About the ADHD Brain

• Secrets of the ADHD Brain: Why We Think, Act, and Feel the Way We Do

• The Brain-Behavior Connection In Children with ADHD

• IDEA—the Individuals with Disabilities Education Act | Center for Parent Information and Resources

• Understanding Tests and Measurements for the Parent and Advocate

• National Center for Learning Disabilities

• Depression and Bipolar Support Alliance (DBSA)

• Think College – College Options for People with Intellectual Disability

• PACER Center

• Wrightslaw: Special Education Law, 2nd Edition
By Peter W.D. Wright & Pamela Darr Wright

• Special Education Law, 3rd Edition
By Nikki L. Murdick & Barbara C. Gartin, et al.

• Steps to Independence: Teaching Everyday Skills to Children with Special Needs
By Bruce L. Baker & Alan J. Brightman

• 1001 Great Ideas for Teaching and Raising Children with Autism or Asperger’s, Revised and Expanded 2nd Edition
By Ellen Notbohm & Veronica Zysk, et al.

• Autism: Asserting Your Child’s Rights to a Special Education
By David A. Sherman

• Functional Behavior Assessment for People With Autism: Making Sense of Seemingly Senseless Behavior
By Beth A. Glasberg

• Inclusive Programming for High School Students with Autism or Asperger’s Syndrome: Making Inclusion Work for Everyone! [Paperback]
By Sheila Wagner

• The Power to Spring Up: Postsecondary Education Opportunities for Students with Significant Disabilities
By Diana M. Katovitch

• Realizing the College Dream with Autism or Asperger Syndrome: A Parent’s Guide to Student Success
By Ann Palmer

• Self-Help Skills for People with Autism: A Systematic Teaching Approach
By Stephen R. Anderson, Amy L. Jablonski, et al.

• Visual Supports for People with Autism: A Guide for Parents and Professionals
By Marlene J. Cohen & Donna L. Sloan

• Individualized Education Program (IEP): Summary, Process, and Practical Tips

• OT, SLP, AT & The IEP… Making Sense of the Alphabet Soup

• IEP and 504 Accommodations

• New Guide Offers Road Map To IEP Process

• Understanding an IEP for Your Child

ED.gov – A Guide to the Individualized Education Program

Speaking of Speech: IEP Goal Bank

KidsHealth – IEPs

Kids Together, Inc. – IEPs

Bridges4Kids – IEP Goals and Objectives Bank

Wrightslaw (if page does not open in browser, remove “https” from the URL in the address bar)

• Wrightslaw: The Special Education Survival Guide: From Emotions to Advocacy, 2nd Edition
By Peter W. D. Wright & Pamela Darr Wright

Wrightslaw: All About IEPs
By Peter W. D. Wright and Pamela Darr Wright and Sandra Webb O’Connor

Wrightslaw: IDEA 2004
By Peter W.D. Wright and Pamela Darr Wright

The Complete IEP Guide: How to Advocate for Your Special Ed Child
By Lawrence M. Siegel

The Everyday Guide to Special Education Law
By Randy Chapman

IEP and Inclusion Tips for Parents and Teachers
By Anne I. Eason and Kathleen Whitbread

Nolo’s IEP Guide: Learning Disabilities
By Lawrence M. Siegel

Writing Measurable IEP Goals and Objectives
By Barbara D. Bateman and Cynthia Herr

• Negotiating the Special Education Maze: A Guide for Parents and Teachers (4th Ed.)
By Winifred Anderson, Stephen R. Chitwood, et al.

The Goal Mine: Nuggets of Learning Goals and Objectives for Exceptional Children
By Donald Cahill and Maureen Cahill

About Homeschool

Homeschool.com

Home School Legal Defense Association
(The HSLDA is a legal support organization that specializes in home school issues and offers some free resources. However, please be aware that they may suggest that you become a paid member to receive full service and information. Users should be aware of their model and proceed accordingly.)

The Home School Mom

Homeschool Central (Additional resources for special needs)

Time4Learning

• SEA Homeschoolers (Secular, Eclectic, Academic): They hold conferences, workshops, webinars, and have a very helpful website covering most aspects of homeschooling including transitioning out of high school to whatever comes next.

Most states have Facebook groups for homeschoolers; for example Delaware has groups for all homeschoolers (Homeschool Delaware) and for specifically secular homeschoolers (Delaware Secular Homeschoolers) to offer support, organize live, in person classes, arrange meet ups and park days and field trips, organize laboratory classes, discuss scholarships, local laws, swap materials at lower cost, and more.

• The Well-Trained Mind: From the author of “Rethinking School” and featuring some really innovative approaches for different types of learners, this site includes sections for children with learning differences (See the section on “Differences, Disorders, and Disabilities”) and giftedness as well as the average kid. The author, Susan Wise Bauer, literally wrote THE major book on homeschooling (“The Well Trained Mind”) and it is popular with both religious and secular families for providing ideas about thinking about education as well as practical, everyday strategies for making a homeschool plan.  The author is a professor at the College of William and Mary, homeschools her own kids, and was homeschooled herself.  Related to this site The Well-Trained Mind Academy, which offers live online classes in most middle and high school subjects for a pricey, but generally worthwhile fee.  In those classes, students receive graded papers, instructor feedback, and classroom interaction online.  The author has written some specific curricula that seems to suit kids with issues such as dysgraphia and writing difficulty, too— I’m a big fan of her elementary program, “Writing With Ease.”

• Online G3 is a site for online homeschool courses for gifted kids (because yes, kids with X and Y variations can also be educationally gifted despite their learning differences— this is called being 2E, or “twice-exceptional”).  This site is unique in that it provides good course descriptions for its live, interactive classes taught by experienced teachers, then allows parents to make the decision about whether a particular class is right for their child— no expensive test or proof is required.  It is recommended that parents be realistic, as the classes will appeal more to gifted kids who tend to “drive the bus” than to reluctant learners, but for the right kid, they are fun, encouraging, interactive, varied, and challenging.

• Bravewriter offers online classes and curriculum for purchase for teaching by the parent for helping anxious writers or encouraging the aspiring author.  Online classes encourage kids to comment (kindly) on one another’s work, even if a particular student is only typing out one or two-sentence responses at first, and the instructors ask questions to help draw out more detailed answers, conversationally, in a message-board format.

• CK-12 is a FREE website with high-quality textbooks available online, with many upper-level books including lab manuals and teacher manuals as well (also free). Because the books are online, they include embedded media. Parents can sign up for a teacher account and create a program to assign to their kids and monitor progress, or do it more informally.

There are other resources available, and one of the parents of an XXY child has offered to help other parents looking for more information. You can reach Jen Driscoll at XXYMidAtlantic@gmail.com  with questions.

The Benefits of Physical Education for Children with Special Needs

• Physical Education for Students with Disabilities: Wrightslaw (if page does not open in browser, remove “https” from the URL in the address bar)

• 7 Ways to Include a Student with Special Needs in Physical Education

• Adapted Physical Education Guidelines
Note: While these guidelines are specific to California schools, we think readers may find them helpful no matter where you live.

Apple in Education

Assistive Technology for Education – iOS /Android/Chrome Apps & Browser Extensions

Moms With Apps

Aneuploidy

(an·eu·ploi·dy) (an-yu-“ploi-dE)

In everyone’s body, each cell contains tiny twisted strings of molecules called chromosomes that contain genes, which in turn tell cells how they will grow and what they must do.  Typically, humans have 23 pairs of chromosomes (46 chromosomes in the aggregate), and each parent commonly contributes one chromosome to each pair.  These chromosomes are numbered and arranged when they are analyzed by labs in a test known as a karyotype.  The 23rd pair, for example, are known as the sex chromosome pair.  Except in certain instances of X and/or Y chromosome aneuploidy, a mother and father each contribute a single sex chromosome to the child. Thus, girls commonly have two X chromosomes (one from mother and one from father), while boys commonly have one X (from mother) and one Y (from father) chromosome.

Occasionally, a cell division anomaly known as “non-disjunction” may result in some (in the case of mosaicism) or all cells having 44, 45, 47, 48 or 49 chromosomes.  These chromosomal states in which one or more whole chromosomes are either missing or are present in more than the typical number are referred to as an “aneuploidy” or plural, as “aneuploidies.”

Special thanks to the National Fragile X Foundation for the use of some content.
Disclaimer: AXYS provides the above information to assist families and professionals in providing the best, possible educational experience for children with an X or Y variation. Inclusion in this list of resources does not imply endorsement by AXYS of any product or service and parents are encouraged to fully research products and services before making any commitments or purchases.