Support Groups

AXYS has a number of affiliated support groups. Support groups are facilitated by volunteers who schedule the programs and often arrange for [...]


In 2015, the AXYS Board of Directors voted to approve funds to help develop the AXYS Clinic and Research Consortium (ACRC). [...]

Research and Clinical Trials

Toward Better Diagnosis and Treatments Research is the lifeblood of all medical conditions that stand to be improved as we learn more [...]


The AXYS Axyon Patient Registry is a groundbreaking development for the AXYS community. This long-term project will provide invaluable information that current [...]

Prior Conferences

Every two years, AXYS sponsors a conference that brings together those with an extra X or Y chromosome variation, their parents or other [...]