Support Groups

AXYS has a number of affiliated support groups. Support groups are facilitated by volunteers who schedule the programs and often arrange for speakers on topics of interest to individuals and families affected by X and Y variations. These groups offer the opportunity to share experiences with others and to learn about resources that they have [...]

November 14th, 2016|


In 2015, the AXYS Board of Directors voted to approve funds to help develop the AXYS Clinic and Research Consortium (ACRC). This exciting development committed us to help organize, fund and build out a clinic consortium that will operate as independent clinics committed to collaborating with one another, sharing informational resources, and exploring opportunities [...]

August 17th, 2016|

Research and Clinical Trials

Toward Better Diagnosis and Treatments Research is the lifeblood of all medical conditions that stand to be improved as we learn more about them. No serious advance can be made against diseases without carefully constructed scientific research. Research helps raise awareness, inspire hope, and lead to early diagnosis and effective treatments. Many studies on X [...]

August 17th, 2016|


The AXYS Axyon Patient Registry is a groundbreaking development for the AXYS community. This long-term project will provide invaluable information that current and future researchers and clinicians will be able to draw upon to improve the lives of all those diagnosed with an X or Y chromosomal variation. By joining the registry, you can  provide a wide variety [...]

August 17th, 2016|

Prior Conferences

Every two years, AXYS sponsors a conference that brings together those with an extra X or Y chromosome variation, their parents or other family members, researchers, medical professionals and others. The conference features individual presentations, panel discussions, and plentiful opportunity for informal discussion and support on a wide range of matters relevant to our members and friends. [...]

August 17th, 2016|


August 16th, 2016|