How to Start an AXYS Support Group
Don’t see a support group near your home?
Support groups are started by committed volunteers. If you are interested in organizing a support group, please send an email to email@example.com.
Reasons to consider forming a local support group:
- To create a network of people concerned about X and Y variations
- To bring together the collective wisdom of people who have experienced similar challenges
- To create a group that can make a difference in your community
- To offer the patient’s perspective to legislators, the local medical community and educators
Some of the ways that AXYS will assist your local group include
- Referrals to your group via AXYS’s toll-free number and genetic.org
- Publicity for meetings on the AXYS website, via blast e-mails, in our quarterly newsletter and on AXYS Facebook pages
- Use of AXYS webinar software to hold virtual meetings or feature a remote speaker
Support groups can meet in homes, public meetings spaces at libraries or churches and synagogues, or in community rooms at hospitals. Many support groups have found that a meetings with a speaker and group discussion, and social events such as picnics or meetings at restaurants work best to build a strong network. Current support group leaders are happy to mentor new leaders.
We look forward to hearing from you and having you join the AXYS effort to improve the well-being of individuals and families impacted by having an X or Y variation.