Email address for XXYY Syndrome support: xxyyprojectsupport@genetic.org.
AXYS Helpline: 1-267-338-4262
Welcome to the home of the XXYY Project and information about 48-XXYY Syndrome
Our vision is a world where men and boys with XXYY Syndrome lead purposeful, productive lives. Read more about our mission.
In support of our mission, the XXYY Project raises funds to further research on 48,XXYY Syndrome. Recently, we assisted researchers at Emory University, an AXYS Clinic and Research Consortium (ACRC) member, by wholly funding the following study: “The Relationship of Physical Function and Psychosocial Health on Quality of Life in Individuals with 48,XXYY.” Members have participated and the paper will be made available when published. Thanks to all who participated and made this a successful investment.
Please donate to the Ryan Scovell Memorial Research Fund to ensure we are prepared to help fund future research requests.
On behalf of the XXYY Project, Emory University, and the entire ACRC research community, thank you for your past support!