We have gathered these resources to help you share the diagnosis involving extra X or Y chromosomes with your child. Please watch this webinar presented by Susan Howell MS, CGC, MBA – Disclosing the Diagnosis in X and Y Variations:

Our thanks to the eXtraordinarY Kids Clinic in Denver, one of the multidisciplinary clinics AXYS Clinic and Research Consortium (ACRC) for sharing these flyers – produced to help you share the diagnosis with your child.

Talking with your child about his diagnosis of Klinefelter syndrome

Talking with your child about her diagnosis of Triple X syndrome

Talking with your child about his diagnosis of XYY syndrome

You may wish to order and have on hand when you disclose the diagnosis one of these books on having extra X or Y chromosomes.

AXYS has created videos of ACRC members reading children’s books on X&Y variations. Watch the videos and order the books:  https://genetic.org/books/

How to tell your child about their XXY, XYY, or trisomy X diagnosis.