AXYS VideosThis chart contains all of the videos that are found on the AXYS YouTube Channel. This chart makes it easy to search for what you want to watch. To use the search this table box: type in the speaker, topic or condition for which you want to see videos.

Video

Speaker(s)

Relevant Variation


An Interview with Josh Griffin: His Experience with 47,XXY
Josh GriffinXXY

Metabolic Issues in XXY
B. Michelle Schweiger, DO, MPHXXY

Medical Problems and Medical Follow-Up in XXYY Syndrome
Nicole Tartaglia, MDXXYY

Adults’ Perspective on 47,XXY
David Wright, Zell Lundberg, and David DavisXXY

Brain Development in Klinefelter Syndrome
Allan Reiss, MDXXY

Cognition in Klinefelter Syndrome
Kyle Boone, PhD, ABPP-ABCNXXY

The Impact of Triple X Syndrome on Psychological Functioning
Drs. Marit BiermanTrisomy X

Getting Through the Day: The Impact of Klinefelter Syndrome on Psychological Functioning
Drs. Marit BiermanXXY

Clinical Characteristics and Modern Model of Management
Peter J. Stahl, MDXXY

Health and Development in Trisomy X Syndrome
Nicole Tartaglia, MDTrisomy X

Testosterone Treatment of Adult Men with 47,XXY
Adrian Dobs, MD, MHSXXY

Growth and Development in XXYY Boys
Rodolfo Rey, MDXXYY

Trisomy X Panel and Q&A
Rebecca Wilson, PsyDTrisomy X

Testosterone Replacement Therapy in Adult Males
Jay Newmark, MDXXY

Infertility Treatment for Men with 47,XXY
Peter Schlegel, MDXXY

Medical Problems and Medical Follow-up in XYY Syndrome
Nicole Tartaglia, MDXYY

Quality of Life and Testosterone in Klinefelter Syndrome
Sharon Close, CPNP-PC and Ilene Fennoy, MDXXY

Health and Development in XYY
Jeannie Visootsak, MDXYY

Speech and Language Deficits in Klinefelter Syndrome
Nancy Lazerson, MA, CCC-SLPXXY

Mental Health: Issues and Challenges in XYY
Erin Torres, MSN, CRNPXYY

How to Keep Your Cool Around Disruptive Behaviors
Tracy Prout, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

The Endocrinology of Klinefelter Syndrome Throughout Childhood
David W. Cooke, MDXXY

2012 Survey Results: Living with 47,XXX
Virginia Cover, MSWTrisomy X

Trisomy X Syndrome: An Overview
Nicole Tartaglia, MD and Susan Howell, MS, MBA, CGCTrisomy X

Promoting Good Health in Adults with XXY
Adrian Dobs, MD, MHSXXY

IEP and 504 Plans for Students with X and Y Variations
Peter Wright, EsqXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

2012 Survey Results: Living with 47,XXY
Virginia Cover, MSWXXY

Development and Behavior in Children with X&Y Chromosome Variations
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

47,XXY: An Overview of What We Know
Philip Zeitler, MDXXY

ADHD in X and Y Chromosome Variations
Nicole Tartaglia, MD and Natalie AyariXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

AXYS Association for X and Y Chromosome Variations - Introductory Video
AXYSXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Progress We Made and Challenges Ahead
Darius A. Paduch, MD, PhDXXY

Testosterone Replacement Therapy in Adolescents and Adults
Darius A. Paduch, MD, PhDXXY

Auditory Processing and My Child with an X/Y Chromosome Variation
Jay Lucker, EDD, CCC-A/SLP, FAAAXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Disclosing the Diagnosis
Susan Howell, MS, MBA, CGCXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Your Child with 47,XXY: What to Expect During Puberty
Ilene Fennoy, MDXXY

The Cognitive and Behavioral Phenotype Of 47,XXY And 47,XXX
Sophie van Rijn, PhDXXY, Trisomy X

X&Y Chromosome Variations from Birth to Age 5
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Understanding Communication Disorders
Matt McKeon, MS, CCC-SLPXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Klinefelter Syndrome - Developments in Research Regarding Infertility
Peter Schlegel, MDXXY

Dr. David Hong Reads Gregory and his Extra X
David Hong, MDXXY

Epidemiology of Sex Chromosome Abnormalities
Claus Gravholt, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Risk for Early Ovarian Failure in Girls with Trisomy X Syndrome
Nicole Tartaglia, MD, MSCS, Shanlee Davis, MD, PhD, and Susan Howell, CGC, MS, MBATrisomy X

47,XXY Fertility
Pravin Rao, MDXXY

The NIH Study on X and Y Chromosome Variations
Armin Raznahan, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Disclosing the Diagnosis in X and Y Variations
Susan Howell MS, CGC, MBAXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Social and Emotional Functioning in Children with Klinefelter Syndrome
Lara Foland-Ross, PhD and Allan Reiss, MDXXY

Testosterone Therapy in Adolescents and Young Adults with 47,XXY
Phillip S. Zeittler, MD, PhDXXY

Infants and Children with Klinefelter Syndrome: Hormones and Development
Ilene Fennoy, MDXXY

Research Aims: TRIXY National Center of Expertise
Sophie van Rijn, PhDXXY, XYY, Trisomy X

Making Medication Decisions
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

The Biology of Sexual Orientation and Gender Identity
Eric Vilain, MD, PhD and Cisco Sanchez, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

2017 Aurora, CO Conference Keynote Address
Nicole Tartaglia, MD and Sharron Close, PhD, MS, CPNP-PCXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Gene Function, Brain Development and Behavior
Armin Raznahan, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Brains, Genes, & Puberty: Testosterone Replacement in XXY
Allan Reiss, MD & Vanessa AlschulerXXY

The NIMH Study on X & Y Chromosome Variations
Armin Raznahan, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Understanding the ABCs of Behavior in Children
Elizabeth Coan, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Erin Torres Reads Elizabeth and her Extra X
Erin Torres, MSN, CRNPTrisomy X

47,XXY: Hormonal Manipulation and Preservation of Fertility
Darius A. Paduch, MD, PhDXXY

Growth and Development in XYY Boys
Rodolfo Rey, MDXYY

Transition to Adulthood
Cory Nourie, MSS, MLSPXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Metabolic Syndrome in X and Y Variations
B. Michelle Schweiger, DO, MPHXXY

Fertility in X & Y Chromosomes Variations 2018
Hooman Sadri-Ardekani, MD, PhD and Stanley Kogan, MDXXY

Sex And Gender: What the Data Tells Us About Klinefelter Syndrome
Al Rogol, MD and Sharron Close, PhD, MS, CPNP-PCXXY

Online Safety for Individuals with X & Y Variations
Larry Dubin, JDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

eXtraordinarY Kids Research in Colorado
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Engaging the X & Y Chromosome Variation Community in Research
Nicole Tartaglia, MD and Shanlee Davis, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Reprise: Adults with XXY
David WrightXXY

The Neuropsychological Evaluation and What It Can Tell Parents
David Marcus, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Secondary copy number variants in people with a sex chromosome trisomy
Hayley Mountford, PhDXXY, XYY, Trisomy X

Environmental Factors and Individuals with an Extra X Chromosome
Sophie van Rijn, PhDXXY, Trisomy X

Dr. Nicole Tartaglia Reads Kyle and His Extra X and Extra Y
Nicole Tartaglia, MDXXYY

Health and Fitness in X & Y Variations
Shanlee Davis, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Government Benefits for Adults with Extra X & Y Chromosomes (2017)
Virginia Cover, MSWXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Introduction + Presentation: Fertility in Klinefelter syndrome
Peter Schlegel, MDXXY

Closing Remarks and Summary of Presentations (2007)
Darius A. Paduch, MD, PhDXXY

Independent Living: Life After High School
Sharon HellerXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Streams of Development and Behavior in XXY
Jeannie Visootsak, MDXXY

College for those with learning differences in the X & Y variation community
Rachel Masson and Ferne BorkXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Parental Advocacy for Children with Sex Chromosome Aneuploidies
Jordan P. RichardsonXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Successful Strategies for Home and Community Participation
Audrey Zapletal, MS, OTRLXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Dr. Lilian Cohen Reads Jack and his Extra Y
Lilian Cohen, MD, MPHXYY

Transition to Adulthood
Cory Nourie, MSS, MLSPXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Psychiatric and Neurodevelopmental Comorbidities in XXY
Erin Torres, MSN, CRNP and Srishti Rau, PhDXXY

Understanding Executive Functions
ennifer Janusz, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Navigating the Mental Health System: A Guide to Treatment Options
David Hong, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Anxiety about COVID: Developing Resilience During a Pandemic
David Hong, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Behavior Problems, Temper Tantrums, Meltdowns and Outbursts
Karen Riley, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

What Parents Need to Know About Their Child's Development
Amy Talboy, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Understanding Language Development and Interventions
Jacqueline Frazier, MA, CCC-SLPXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Social Skill Challenges, Toddlers to Teens
Rebecca Wilson, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Auditory Processing in Children With X and Y Chromosome Variations
Jay Lucker, EDD, CCC-A/SLP, FAAAXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

How to Talk to Your Child About His/Her Diagnosis
Nicole Tartaglia, MD and Rebecca Wilson, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Is There Androgen Deficiency in Childhood in Boys with 47,XXY?
Judith Ross, MDXXY

Welcome to the 2019 AXYS Family Conference
Carol MeerschaertXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Sex Chromosome Variation: Genes, Environment, Brain and Behavior
Allan Reiss, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

X&Y Chromosome Variations & Immune System Health
Ram Raj Singh, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Neurodevelopmental and Medical Risks: X&Y Chromosome Variations
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Executive Functioning: How to Help Children with Challenging Behavior
Lisa Jacobson, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

X&Y Chromosome Variation - New Views from Brain Imaging
Jay Giedd, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

The eXtraordinarY Kids Clinic
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

A Roadmap for Advancing Knowledge and Clinical Practices (BGAP Study)
Allan Reiss, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

AXYS Performance Event
Michael PalumboXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Androgen Therapy for Male Adolescents
Alan Rogol, MD, PhDXXY

Heart Health in People with Klinefelter Syndrome
Frances High, MD, PhDXXY

Executive functioning in adolescents with XXY: Results from the BGAP Study
Vanessa AlschulerXXY

Seizure Management in X and Y Chromosome Variations
Elizabeth Berry-Kravis, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

New Directions in Translational Research (2007)
Darius A. Paduch, MD, PhDXXY

Medications for Behavioral and Emotional Challenges in Children and Adolescents
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Educational Q&A - School's out! Now what?
Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA, Dorothy Boothe, PhD and Erin Frith, MEdXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

How Research Can Benefit Families and Patients
Rebecca Wilson, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Intro + Presentation: Testosterone treatment in Klinefelter syndrome
Claus H. Gravholt, MD, PhDXXY

Reprise: Adults with XXY
Zell LundbergXXY

Intro + Presentation: Early Intervention for Young Children with X&Y Variations
Talia Thompson, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Government Benefits for Adults with X and Y Chromosome Variations (2015)
Virginia Cover, MSWXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Meet the AXYS Board of Directors
VariousXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

AXYS Executive Director Carol Meerschaert talks about our 2021 Virtual Family Conference
Carol MeerschaertXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Planning and Preparedness: Coping with Adversity and Crisis
Rhesia-Maria OchoaXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Clinical Trials in X and Y Variations: Doing Research that Matters
Shanlee Davis, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

What is Testosterone? What is TRT?
Shanlee Davis, MD, PhDXXY

Growing Sperm in Nude Mice - From A Futuristic Dream to Reality
Alex Travis, VMD, PhDXXY

Speech-Language Intervention: Goals and Expectations
Jackie Frazier, MA, CCC-SLPXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Living With Loss and Grief
Lori EarlXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

The Journey Through the Educational Process
Karen Riley, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Neurodevelopment from Birth to Young Adulthood in X&Y Chromsome Variations (2015)
Nicole Tartaglia, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Intro + Presentation: Conversation Skills for Adults
Jasper Estabillo, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Working the Room: Advocacy You Can Use
Sharron Close, PhD, MS, CPNP-PC and Dorothy Boothe, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Research Updates in X&Y Chromosome Variations (2013)
Nicole Tartaglia, MD, Sharron Close, PhD, MS, CPNP-PC, Ram Raj Singh, MD, and Jay Giedd, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Emotional Regulation
Leela Morrow, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Sensory Processing Challenges and Participation in Home and School Activities
Audrey L. Zapletal, MS, OTR/LXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Legal and Law Enforcement Issues For Adolescents and Adults
Phyllis Quatman and Gary GlissmanXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

A Student’s Right: Tuition Reimbursement for Private School
Tom Davis, EsqXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Latest findings & future plans from the NIMH study of X/Y chromosome variations (2021)
Armin Raznahan, MD, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

How Did This Happen? Genetics 101
Susan Howell, MS, MBA, CGCXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Endocrine Issues Related to X&Y Chromosome Variations
Philip Zeitler, MDXXY

Depression: Diagnosis & Treatment in Persons w/ X/Y Variation
Allan Reiss, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Tools for Teaching Social Boundaries to Tweens, Teens, and Young Adults
Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBAXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Intro + Presentation: Physical Function, Psychosocial Health, QOL in XXYY Individuals
Amy A. Blumling, PhD, CPNP-PCXXYY

2015 State of the Science: Updates in X&Y Chromosome Variation Research
Panel DiscussionXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Synchrony of Literacy Development Among Individuals with an Extra X Chromosome
Mina Avery, MEdXXY, Trisomy X, XXYY, XXXY, Other Variations

Fertility and Ovary Function in Trisomy X
Shanlee Davis, MD, PhDTrisomy X

Work Incentives for People with Disability Benefits
David MitchellXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Practical Solutions for eXtraordinarY Circumstances (Part 1 of 2)
Rebecca Wilson, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Prenatal testing for X&Y Variations (Extended Presentation)
Rama Kastury, DOXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

How to Talk to Your Child about His or Her Diagnosis
Nicole Tartaglia, MD, Susan Howell, MS, MBA, CGC, Aaron Bornstein and Hillary EllisXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Roadmap to Research
Sharron Close, PhD, MS, CPNP-PC, FAANXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Supporting the Development of Planning and Organizational Skills
Christa Hutaff-Lee, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Introduction to the Americans with Disabilities Act
David Knight, EsqXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Learning Problems: Viewed Through a Life Course Lens
Sheryl Rimrodt-Frierson, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Patterns of Mental Health Risk in X/Y Variations
Srishti Rau, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

2013 AXYS Family Conference Interviews
VariousXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Occupational Therapy Treatment
Sydney Martin, MS, OTRXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

When Others Don't Get It: Looking into the Future for X&Y Chromosome Variations
Sharron Close, PhD, MS, CPNP-PC, FAANXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Whole Genome Sequencing and Genetic Counseling for X&Y Variations at NIH
Michael Setzer, ScM, CGCXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Behavioral Considerations for X&Y Chromosome Differences
Rebecca Wilson, PsyD, E.G. Bozorgpour, PhD, and Jamie Blume, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Special Education and Disablility Advocacy: Sooner, Not Later
Stephanie James, JDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Introduction to the new Clinical Registry, GALAXY
Shanlee Davis, MD, PhD and Susan Howell, MS, MBA, CGCXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Strategic Planning and Resources for Crisis Prevention and Intervention
R. Maria Ochoa, LCSWXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Can We Direct Spermatogonia Toward Normal Development?
Paula Cohen, PhDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Resources and What You Need to Know (Government Programs and Services)
R. Maria Ochoa, LCSWXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Intro + Presentation: Coping with Anxiety Disorder
David Hong, MDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Practical Solutions for eXtraordinarY Circumstances (Part 2 of 2)
Rebecca Wilson, PsyDXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Literacy Development Among Individuals with X&Y Chromosome Variations
Donald Bear, PhD and Mina Avery, MEdXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Intro + Presentation: Transition from pediatric to adult-oriented medical care
Andrew Dwyer, PhD, FNP-BC, FNAP, FAANXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Promoting Language and Learning: Children with X&Y Chromosomal Variations
Natalia A. Krum, BCBAXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

A Synchrony of Literacy Development Among Individuals with an Extra X Chromosome (Part 2)
Mina Avery, MEdXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Prenatal testing for X&Y Variations Q&A
Rama Kastury, DOXXY, XYY, XXYY, Trisomy X, XXXY, Other Variations

Conference and webinar presenters share their professional and personal opinions and experiences. These opinions and experiences are the presenters’ own and do not necessarily represent the AXYS organization.