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Helpline: 1‑267‑338‑4262 | info@genetic.org

All Variations

On Noninvasive Prenatal Screening

“ACMG Releases Updated Position Statement on Noninvasive Prenatal Screening (NIPS) for Detection of Fetal Aneuploidy”—The American College of Medical Genetics and Genomics (ACMG), released a new position statement on July 28, 2016 that expands upon its 2013 recommendations on the use of NIPS in prenatal care. “ACMG continues to stress that NIPS is a screening rather than a diagnostic test and positive results should be followed by a diagnostic test such as chorionic villus sampling or amniocentesis,” wrote the paper’s lead author. Click Here.

2017-07-14T21:59:25-04:00Categories: All Variations|

Sibling Support

Recommended Reading: Tips From Parents and Adults for the benefit of others

Note:  These are unofficial recommendations from parents who have found these books, articles, websites and other resources helpful in some way.  When possible, we will provide an Amazon.com link for ease of purchase, a link to the description of the book, and a link to a description of the author.  Unless otherwise stated, AXYS is not involved in the sale, and we recommend that you shop around before making your purchase.

2017-08-14T16:11:30-04:00Categories: All Variations|

General Support for Parents

Recommended Reading: Tips From Parents and Adults for the benefit of others

Note:  These are unofficial recommendations from parents who have found these books, articles, websites and other resources helpful in some way.  When possible, we will provide an Amazon.com link for ease of purchase, a link to the description of the book, and a link to a description of the author.  Unless otherwise stated, AXYS is not involved in the sale, and we recommend that you shop around before making your purchase.

2016-11-11T02:41:41-05:00Categories: All Variations|

EEOC Announces Final Bipartisan Regulations for the ADA Amendments Act

These changes to US laws and regulations may be helpful to those of you who are seeking disability benefits or protections:

EEOC Announces Final Bipartisan Regulations for the ADA Amendments Act

The U.S. Equal Employment Opportunity Commission’s (EEOC) final regulations to implement the ADA Amendments Act (ADAAA) are now available on the Federal Register website. Like the law they implement, the regulations are designed to simplify the determination of who has a “disability” and make it easier for people to establish that they are protected by the Americans with Disabilities Act (ADA).

2016-11-11T02:42:04-05:00Categories: All Variations|

Clothing for Kids Who Have Sensory Issues

Some children have severe sensory issues.  There are many resources for special clothing for these children.  These two sources were recommended by a mom.

Her comment:  “Here are a couple of links to some places that sell shirts with NO TAGS, and FLAT SEAMS and socks WITH NO SEAMS!”

http://www.softclothing.net/
http://www.sensorystorecanada.com/  (Note:  This resource may be temporarily unavailable–“closed for renovations” 8/4/11)

Important Note:  AXYS does not endorse or vet resources of this type.  We do not receive any compensation for posting these links, nor do we get any portion of their sales.  They are shared simply as an FYI.  Please shop carefully.

2016-11-11T02:42:37-05:00Categories: All Variations|
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