New Guide Offers Road Map To IEP Process
Article Title: New Guide Offers Road Map To IEP Process
Author: Michelle Diament
Date of Publication: August 23, 2011
Article Title: New Guide Offers Road Map To IEP Process
Author: Michelle Diament
Date of Publication: August 23, 2011
From their website description:
We are 100% Social & Life Skills
Article Title: AAP: Guideline Calls for Pre-K ADHD Evaluation
Author: Charles Bankhead
Date of Publication: October 16, 2011
Primary care physicians should begin evaluating children for attention deficit hyperactivity disorder (ADHD) at age 4 and continue through age 18, according to a new clinical guideline from the American Academy of Pediatrics.
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Title: Tantrum Tamer: New Ways Parents Can Stop Bad Behavior
Author: Shirley S. Wang
Date of Publication: November 8, 2011
Article Title: Understanding and Modifying the Behavior of Boys with XXYY: A Guide for Parents and Professionals
Author: Karen Riley, PhD
Date of Publication: 2007
This paper was originally commissioned by the XXYY Project. At the urging of Dr. Riley, the XXYY Project has generously shared their valuable “Behavior Paper” with AXYS.
While this paper focuses on the behavioral profile of XXYY, it will prove very valuable for any child who is experiencing behavior issues. This paper provides step-by-step instructions for coping with behavioral issues that many children with X and Y chromosome variations may experience to one degree or another.
We urge you to review this document and generally substitute your child’s condition for XXYY. In most cases, the fit is very good.
Once again, we offer our sincere thanks to the XXYY Project for sharing this important work with the AXYS community.
Title: How many genomes do you have?
Author: John Rennie
Date of Publication: November 29, 2011
Article Title: Role of the X Chromosome in Social Behavioural Dysfunction and Autism-like Behaviour
Authors: Sophie van Rijn, Hanna Swaab, Marit Bierman, Rita Zijlstra
Date of Publication: January 2010
“Social cognitive competence appears to be a good predictor of social behaviour and adaptation. Individual variance in social cognitive competence is, for a substantial part, attributable to genetic factors. Deficits in social behaviour are seen in populations such as those with autism-spectrum disorders, and although social (dys)functioning may be similar at the level of behavioural phenotypes, it may substantially differ with regard to the underlying cognitive and genetic pathways. In this review study it is argued that there is a need to study the neurocognitive and behavioural phenotypes in more homogeneous genetic groups. This enables us to identify aetiological pathways to psychopathology. In both Turner syndrome (45, XO) and Klinefelter syndrome (47, XXY), basic social-cue processing deficits are observed, which may contribute to difficulties in social intuition and hence in coping with social situations. The study of these two syndromes opens up opportunities to study the influence of the X chromosome on brain behaviour developmental trajectories of social functioning and psychopathology in heterogeneous populations.”
The authors have presented at AXYS Families’ Conferences and participated in AXYS Scientific Conferences.
Article Title: Social Function in Multiple X and Y Chromosome Disorders: XXY, XYY, XXYY, XXXY
Authors: Jeannie Visootsak, John M. Graham, Jr.
Date of Publication: September 2, 2009
Abstract:
Klinefelter syndrome (47,XXY) was initially described in the context of its endocrinologic and physical features; however, subsequent studies have revealed specific impairments in verbal skills and social functioning. Males with sex chromosomal aneuploidies are known to have variability in their developmental profile with the majority presenting with expressive language deficits. As a consequence of language delays, they have an increased likelihood of language-based learning disabilities and social-emotional problems that may persist through adulthood. Studies on males with 47,XXY have revealed unique behavioral and social profiles with possible vulnerability to autistic traits. The prevalence of males with more than one extra sex chromosome (e.g., 48,XXYY and 48,XXXY) and an additional Y (e.g., 47,XYY) is less common, but it is important to understand their social functioning as it provides insight into treatment implications.
Article Title: Executive Function…What is this anyway?
Author: Chris A. Zeigler Dendy, M.S.
Date of Publication: 2011
This article is not specific to X and Y conditions but it does present useful information about executive skills and how challenges in this area can impact kids in school.
Excerpt:
“Clearly school is often very difficult for students with attention deficits. However, when executive function deficits are also present, the accompanying problems are often overwhelming to the student and family. Unfortunately, some parents and teachers have had little awareness or sympathy for the challenges presented by these combined deficits. Hopefully, teachers and parents now realize that attention deficit disorder is often a very complex condition….when deficits in executive function and related learning problems are present, students can try their very best and still not succeed in school.”
Children who have X and Y chromosome variations have more frequent dental problems. Those who have 47,XXY, in particular, often have a dental condition called taurodontism, which makes them more prone to tooth decay and other problems.
There is a possible relationship between bottled water, which typically does not contain added fluoride, and an epidemic of tooth decay in young children. Municipal tap water, on the other hand, is typically fluoridated and offers protection against tooth decay.
If your child drinks bottled water, and if you have no objections to fluoridated water, you may wish to consider shifting to tap water in a refillable water bottle. If you are concerned about the quality of your tap water, Consumer Reports recently published a comprehensive report offering a number of excellent choices for inexpensive, highly effective water filters – priced from $15, a cost that will be quickly offset by savings on bottled water, and you’ll be helping the environment in the process.
If you are concerned about bisphenol-A in some older plastic water bottles, there are numerous sources for inexpensive, BPA-free refillable water bottles. Here’s a link on Amazon for illustrations: amzn.to/HW7vBL
More Information:
CDC Information (revised)
Update courtesy of TimberCrest Dental Center
NY Times Article
Study: Oral Health Improving for Most Americans, But Tooth Decay Among Preschool Children on the Rise