Helpline: 1‑267‑338‑4262 | helpline@genetic.org
AXYS - The Association for X&Y Chromosome Variations
Helpline: 1‑267‑338‑4262 | info@genetic.org

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CANCELLED: NEXXYS/New England Support Group Meeting

EVENT CANCELLED – NEW DATE AND TIME TO BE ANNOUNCED

One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics:

• Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover

• Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel

• The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

2024-04-28T14:12:10-04:00Categories: |

Trisomy X Parent Support Group Meeting: Navigating School Challenges

Start time in other regions: 11am Central | 10am Mountain | 9am Pacific

Dear Parents & Caregivers,

Thank you for voting in our recent Facebook poll! The winning topic for our Trisomy X Parent Support Call is “Navigating School Challenges.” However, “The Broad Range of Trisomy X Symptoms” was a close second, just 2 votes away! So we will make sure to cover this in one of our next calls as well.

Please use this link to sign up for our Zoom call on Feb. 25th at 12pm as we dive into “Navigating School Challenges”.

https://us06web.zoom.us/meeting/register/tZEufuyprj0sHdCEry9DCK5xkfbgftWUazOd

We look forward to seeing you there!

2024-02-20T11:13:34-05:00Categories: |

New York Metro/Mid-Atlantic Support Group Meeting

REGISTER HERE

One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics:

• Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover

• Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel

• The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

2024-02-28T13:39:32-05:00Categories: |

Florida Support Group Meeting

REGISTER HERE

One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics:

• Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover

• Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel

• The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

2024-02-16T14:58:49-05:00Categories: |

Upstate New York Support Group Meeting

REGISTER HERE

One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics:

• Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover

• Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel

• The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

2024-02-16T14:59:28-05:00Categories: |

Southeastern Support Group Meeting

REGISTER HERE

One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics:

• Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover

• Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel

• The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

2024-02-16T14:49:45-05:00Categories: |

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

“Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT.”

“Come in when you can and leave when you want, we don’t expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we’ll find a compromise.”

“We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what’s going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community.”

“Separate subgroups are really helpful and we’ll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we’ll be talking in the group about how to find these other groups.

Remember that if you don’t feel like you need support right now, it’s still worth showing up because you may meet someone who needs the answers that only you have.”

“Look forward to seeing you,
AXYS Rocky Mountain Chapter”
– Rob & Jamie Lee

2024-02-16T11:13:49-05:00Categories: |

AXYS Chat Pop-in

2nd Saturday of the Month | 4-6pm Eastern Time

Start time in other regions: 3pm Central | 2pm Mountain | 1pm Pacific

AXYS Chat Pop-ins are meeting spaces for anyone 18 and up with any X and/or Y variation! We would like to stress that these meetings are intended ONLY for those with an X/Y variation.

Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges.

Think of it as a room with an open-door policy; come to whatever meetings you want; come and go as you please within the 2-hour time period.

Your privacy is very important to us. AXYS will not record any of these meetings and we ask that you please respect the privacy of other attendees. We also ask that you abide by the AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/

This meeting is not intended to be therapy and should not be used as a substitute for the services of a mental health professional.

2024-02-01T11:19:08-05:00Categories: |

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

“Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT.”

“Come in when you can and leave when you want, we don’t expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we’ll find a compromise.”

“We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what’s going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community.”

“Separate subgroups are really helpful and we’ll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we’ll be talking in the group about how to find these other groups.

Remember that if you don’t feel like you need support right now, it’s still worth showing up because you may meet someone who needs the answers that only you have.”

“Look forward to seeing you,
AXYS Rocky Mountain Chapter”
– Rob & Jamie Lee

2024-02-01T11:12:45-05:00Categories: |

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

“Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT.”

“Come in when you can and leave when you want, we don’t expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we’ll find a compromise.”

“We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what’s going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community.”

“Separate subgroups are really helpful and we’ll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we’ll be talking in the group about how to find these other groups.

Remember that if you don’t feel like you need support right now, it’s still worth showing up because you may meet someone who needs the answers that only you have.”

“Look forward to seeing you,
AXYS Rocky Mountain Chapter”
– Rob & Jamie Lee

2024-01-01T15:08:31-05:00Categories: |
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