Patient-Centered Approaches to Research Pathways
Presentation slides from the 2017 AXYS Family Conference presentation:
Patient-Centered Approaches to Research Pathways (PDF)
Presented by Sharron Close, PhD, MS, CPNP-PC, FAAN
Gene Function, Brain Development, and Behavior in X & Y Chromosome Variations
Presentation slides from the 2017 AXYS Family Conference presentation:
Gene Function, Brain Development, and Behavior in X & Y Chromosome Variations (PDF)
Presented by Armin Raznahan MD PhD
Working the Room: Advocacy You Can Use
Presentation slides from the 2017 AXYS Family Conference presentation:
Working the Room: Advocacy You Can Use (PDF)
Presented by Sharron Close, PhD, MS, CPNP-PC, FAAN & Dorothy Boothe, PhD
Brain And Behavioral Development In Klinefelter Syndrome
Presentation slides from the 2017 AXYS Family Conference presentation:
Brain And Behavioral Development In Klinefelter Syndrome (PDF)
Presented by Alan Reiss, MD
Issues and Challenges in XYY Syndrome
Presentation slides from the 2017 AXYS Family Conference presentation:
Issues and Challenges in XYY Syndrome (PDF)
Presented by Erin Torres, Nurse Practitioner
Trisomy X Panel and Q&A
Presentation slides from the 2017 AXYS Family Conference presentation:
Triple X Syndrome (PDF)
Presented by Rebecca Wilson, PsyD and others
Understanding Executive Functions
Presentation slides from the 2017 AXYS Family Conference presentation:
Understanding Executive Functions (PDF)
Presented by Jennifer A. Janusz, Psy.D., ABPP-Cn
IEP and 504 Accommodations
Presentation slides from the 2017 AXYS Family Conference presentation:
IEP and 504 Accommodations (PDF)
Presented by Karen Riley, PhD
Thinking About Starting Testosterone for XXY/XXYY/XXXY
Presentation slides from the 2017 AXYS Family Conference presentation:
Thinking About Starting Testosterone for XXY/XXYY/XXXYย (PDF)
Presented by Shanlee Davis, MD, MSCS
Guide to Trisomy X
Article Title: Guide to Trisomy X
Author: Kathleen Erskine
Date of Publication: 2011
Kathleen Erskine, a graduate student in the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College conducted a study to identify the important aspects of 47, XXX/ 3X/ Triple X/ Trisomy X to discuss with girls when they first learn about their Trisomy X diagnosis. The end result of this study is this educational booklet for parents to give their daughter when they first tell her about Trisomy X.