Helpline: 1‑267‑338‑4262 | helpline@genetic.org
AXYS - The Association for X&Y Chromosome Variations

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Helpline: 1‑267‑338‑4262 | info@genetic.org

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Chromodiversity Camp Registration

Chromodiversity Camp Registration

While parents attend the AXYS Conference, Chromodiversity is offering a free, fun, and supportive Teen ChromoEvent on Saturday, July 26 from 8:30 AM to 2:00 PM at the Emory Conference Center Hotel in Atlanta. Open to kids and teens aged 11 to 17 with X or Y variations, and their siblings.

The day includes:

  • Bowling and billiards at Wisteria Lanes
  • Strengths discovery quiz
  • Outdoor walk (weather permitting)
  • Lunch time
  • Lived-experience mentorship with Brock (who has an extra X chromosome himself)
  • Small take-home gift

Spots are limited and will be filled on a first come, first served basis. (Kids 13+ do not need to stay the entire duration if they prefer some unstructured time.) For any questions, contact nina@chromodiversity.org. For more information, visit: https://www.chromodiversity.org/axys-chromoexperience

To reserve your spot, register your child for the conference, then send an email to Lindsey Lind by June 20 at llind@genetic.org with the following information for each child attending:

  • Name of child
  • Birthdate
  • Name of parent
  • Parent email
  • Parent cell phone
  • Gender
  • Genetic signature, if the child has an X or Y chromosome variation
  • Is the child a sibling of a child with an X or Y chromosome variation
  • Please let us know about any special needs

2025 AXYS Community Conference Logo

2025-06-13T13:08:30-04:00

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).

“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.

This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.

This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.

You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”

“Thank you for your consideration and we look forward to seeing everybody Friday night!”

– Rob & Jamie Lee
AXYS Rocky Mountain Support Group

2025-06-01T21:27:58-04:00Categories: |

Living with Trisomy X: An “Ask Anything” Call for Families and Individuals

Register here

Join us for a welcoming and open Zoom call designed for families, caregivers, and individuals living with Trisomy X. Whether you’re newly navigating this diagnosis or have years of experience, this is a non-judgemental and supportive space to connect, share, ask questions, and learn from each other. We’ll talk about real-life experiences, challenges, and helpful strategies related to development, education, health, emotional wellbeing and daily life.

Come as you are – ask anything, or just listen in.

We look forward to seeing you!

2025-04-18T15:03:57-04:00Categories: |

Testosterone Effects on Short-Term Physical, Hormonal, and Neurodevelopmental Outcomes (TESTO) in Infants with 47,XXY

Article Title: Testosterone Effects on Short-Term Physical, Hormonal, and Neurodevelopmental Outcomes (TESTO) in Infants with 47,XXY

Authors: Davis, Howell, Janusz, Lahlou, Reynolds, Thompson, Swenson, Wilson, Ross, Zeitler, and Tartaglia

Date of Publication: April 3, 2025

“In this double-blind randomized controlled trial in infants with XXY, testosterone injections resulted in physical effects attributable to systemic androgen exposure, however this dose suppressed the hypothalamic-pituitary-gonadal axis. Neurodevelopment outcomes were not impacted by treatment. These results do not support routine testosterone treatment in infants with XXY, however long term follow up on physical health, neurodevelopment and testicular function is needed.”

Read more

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).

“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.

This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.

This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.

You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”

“Thank you for your consideration and we look forward to seeing everybody Friday night!”

– Rob & Jamie Lee
AXYS Rocky Mountain Support Group

2025-04-11T12:15:29-04:00Categories: |

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).

“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.

This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.

This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.

You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”

“Thank you for your consideration and we look forward to seeing everybody Friday night!”

– Rob & Jamie Lee
AXYS Rocky Mountain Support Group

2025-04-11T12:08:12-04:00Categories: |
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