Conference Archives - The Association for X and Y Chromosome Variations

2025 AXYS Community Conference Agenda

Printable version of this agenda

Friday, July 25

4:30-7pm – Check-in

5-7pm – Dessert Welcome Reception

Saturday, July 26

7-8:30am – Breakfast Buffet

8:30am-4:30pm – Childcare

8:30am-2pm – Chromodiversity Camp

Room	8:30-9:15am Session 1	9:30-11:45am Session 2 Welcome and Keynote	1-1:50pm Session 3	2-2:50pm Session 4	3-3:50pm Session 5	4-5pm Session 6
Emory Amphitheater (Live Streamed & Recorded) **	The Extraordinary Babies Study- Progress and Research Findings Nicole Tartaglia Kayla Nocon	1) Welcome 2) Site Summaries - ACRC Members 3) GALAXY Registry - Past Insights, Current Progress, Future Directions Shanlee Davis Alexa Carl (No breakout sessions during Keynote Address)	Condition-specific Meet and Chat Sessions	Updates from the NIMH Intramural Research Program Study on X/Y Chromosome Variations Armin Raznahan	X and Y Chromosome Variations and Fertility Options Hooman Sadri	Condition-specific "Ask the Doctors” XXY Parents
Oak Amphitheater	Strategies for Promoting Executive Functioning for adolescents & adults M. Joliffe S. Martin R. Wilson		Condition-specific Meet and Chat Session XXY Parents	Evaluation and Treatment of ADHD/Anxiety in Adolescents/Adults with SCA Kate Deer Joanna Dreyer	Developmental Trajectories of Children with X and Y chromosome variations Nicole Tartaglia Rebecca Wilson	Condition-specific “Ask the Doctors” XXY Adults
Azalea	XXY Adults Meet and Greet		Condition-specific Meet and Chat Session Trisomy X	Transition to Adulthood- Services for Teens and Adults to Achieve Employment and Independence Dorothy Boothe Ginnie Cover	Mental Health in Young Adults with X and Y Chromosome Variations -Transition to Adulthood David Hong	Condition-specific “Ask the Doctors” Trisomy X
Mt. Laurel	Trisomy X adults Meet and Greet		Condition-specific Meet and Chat Session XYY	Considerations for testosterone therapy for children and teens with sex chromosome aneuploidy Alan Rogol	Complex Relationships of Siblings when there are Special Needs Susan Brasher	Condition-specific “Ask the Doctors” XYY
Hickory	XYY Adults Meet and Greet		Condition-specific Meet and Chat Session XXY Adults	Unassigned	Unassigned	Condition-specific “Ask the Doctors” XXYY/XXXY
Dogwood	XXYY & XXXY Adults Meet and Greet		Condition-specific Meet and Chat Session XXYY/XXXY	Unassigned	Unassigned	Unassigned

**All Emory Amphitheater presentations are also live streamed to virtual participants and available to all for viewing after the conference.

Unassigned rooms are available for research recruitment or for informal meetings by request to Program Director Lindsey Lind.

Sunday, July 27

7:30-9am – Breakfast Buffet

8:30-3pm – Childcare

Room	9-10am Session 7	10-11am Session 8	11am-12pm Session 9	1:45-3pm Session 10
Emory Amphitheater (Live Streamed & Recorded) **	Unpacking Social and Emotional Challenges for Teens/Young Adults with X/Y Variations Caitlin Middleton Kate Deer	Eval and Treatment Of ADHD & Anxiety In Children Caitlin Middleton Ciara Gurley	Understanding X and Y Variations: Genetic Diagnosis, Terminology & Next Steps Planning Susan Howell Kayla Molison	Support Groups by Genetic Signature
Oak Amphitheater	Supporting Academic and Social-Emotional Education of Students with X&Y Chromosome Variations Amy Talboy Catherine Trapani	Testosterone Treatment Options in Klinefelter Syndrome Hooman Sadri	What Adults with X/Y Variations Want Parents and Others to Know Panel Discussion Mod. by Sharron Close	Support Groups by Genetic Signature
Azalea	Tips for Staying Healthy for Teens and Adults with X and Y Chromosome Variations Maria Vogiatzi	X/Y Chromosome Variations and Autism: Insights from Large Scale Population Research Matthew Oetjens	Promoting physical activity in Children with XXY T. Zachary Huit	Support Groups by Genetic Signature
Mt. Laurel	Disclosing the Diagnosis- Panel Discussion Mod. by Susan Howell	Unassigned	Unassigned	Support Groups by Genetic Signature
Hickory	Unassigned	Unassigned	Unassigned	Support Groups by Genetic Signature
Dogwood	Unassigned	Unassigned	Unassigned	Support Groups by Genetic Signature

** All Emory Amphitheater presentations are also live streamed to virtual participants and available to all for viewing after the conference.

Unassigned rooms are available for research recruitment or for informal meetings by request to Program Director Lindsey Lind

Go to Agenda for Virtual Attendees

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2025 AXYS Community Conference

Friday, July 25 – Sunday, July 27, 2025

The Emory Conference Center Hotel | Atlanta, GA

AXYS is delighted to announce the comeback of the in-person Community Conference, the first since 2019, as we return to the amazing facilities at the Emory Conference Center Hotel in Atlanta, Georgia! Save the date for what will be a wonderful gathering of our entire community!

The AXYS Community Conference brings together people diagnosed with an X or Y chromosome variation, parents, families, friends, healthcare professionals, and researchers to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on X and Y chromosome variation research and approaches to care.

REGISTRATION DEADLINES ▶ In-person: July 10 | Virtual: July 21
(registration closes at 11:59pm Eastern Time on the above dates)

We’re so happy you can join us! A quick reminder that all AXYS event attendees agree to abide by the AXYS Activities Conduct Policy. Please read this prior to attending an AXYS event.

Become a 2025 AXYS Community Conference Sponsor

Planning to fly to the conference? Check this list to make sure you have an acceptable form of ID for your trip.