The following medical professionals have agreed to serve on the AXYS Professional Advisory Committee (PAC), charged with advising the AXYS board and staff on an as-needed basis .

  • Sharron Close, PhD (Chair), Emory University
  • Ricki Lewis, PhD, Adjunct Professor of Medical Education, Alden March Bioethics Institute, Albany Medical College
  • Susan Howell MS, CGC, MBA, Genetic Counselor and Coordinator, The eXtraordinarY Kids Clinic, Colorado Children’s Hospital
  • Peter Schlegel, MD, Professor and Chair, Department of Urology, Weill Cornell Medical College
  • Jeannie Visootsak, MD, Developmental Pediatrician
  • Nicole Tartaglia, MD, Associate Professor, University of Colorado Medical School
  • Amy Talboy, MD, Emory University Department of Human Genetics
  • Sheryl Rimrodt, MD, Developmental Pediatrician
  • Ilene Fennoy, MD, MPH, Professor, Columbia University School of Medicine
  • Judith Ross, MD, Professor, Thomas Jefferson School of Medicine, Columbia University School of Medicine
  • Alan Rogol, MD, Pediatric Endocrinology University of Virginia (retired)
  • Adrian Dobs, MD, Professor, Johns Hopkins University School of Medicine
  • Robyn Robinson, CPNP-PC, Pediatric Nurse Practitioner and Parent/Advocacy Leader
  • Allan Reiss, MD, Robbins Professor and Director, Stanford University Center for Interdisciplinary Brain Sciences Research
  • Arlene Smaldone, PhD, CPNP-PC, Assistant Dean of Scholarship and Research, Columbia University School of Nursing
  • Lois Sadler, PhD, PNP-BC, FAAN Professor, Yale School of Nursing
  • Virginia Cover, MSW, MPH, Social Worker, Parent and Author
  • Eric Viliain, MD, PhD, Professor of Human Genetics, Pediatrics and Urology, University of California, Los Angeles
  • Kristy Martyn, PhD, PNP-PC, FAAN Professor of Nursing, Nel Hodgson Woodruff School of Nursing
  • David Marcus, PhD, Assistant Professor Neuropsychology Emory University