Saturday, June 24th
| 7:30-8:30 | 8:30-10:00 | 10:00-10:15 | 10:30-11:00 | 11:10-12:00 |
|---|---|---|---|---|
| Check in and registration
Room: Conference center lobby |
Welcoming remarks
Keynote Addresses: Sharon Close, PhD and Nicole Tartaglia, MD Room: Mount Oxford Auditorium |
Condition specific socialization activities
XXY: Mount Oxford Auditorium XYY: Princeton Room XXX: Harvard Room XXYY: Yale Room |
Topic: Understanding Language Development and Interventions
Variations: All Speaker: Jacqueline Frazier, MA, CCC-SLP Room: Princeton |
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| Topic: Independent Living Skills: Life After High School
Variations: All Speaker: Sharon Heller Room: Yale |
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| Topic: First Time Attendee Panel
Variations: All Speaker: Susan Howell, MS, MBA, CGC and others Room: Oxford |
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| Topic: What can animal research tell us about sex chromosome variations?
Variations: XXY, XYY Speaker: Arthur P. Arnold, PhD Room: Harvard |
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| Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
| 12:00-1:00 | 1:00-1:50 | 2:05-2:55 | 3:10-4:00 | 4:10-5:00 |
|---|---|---|---|---|
| Lunch | Topic: Thinking about starting testosterone?
Variations: XXY, XXYY, XXXY Speaker: Shanlee Davis, MD Room: Oxford |
Topic: Testosterone therapy for adolescents/adults with sex chromosome aneuploidies: What’s available and what’s new?
Variations: XXY, XXYY, XXXY Speaker: Alan Rogol, MD Room: Oxford |
Topic: Adult Management of Klinefelter Syndrome
Variations: XXY Adults Speaker: Swaytha Yalamanchi, MD Room: Oxford |
Topic: The Inside Scoop: What families need to know about social media
Variations: All Speaker: Rebecca Wilson, PsyD Room: Oxford |
| Topic: Trisomy X Panel and Q&A
Variation: XXX Speaker: Rebecca Wilson, PsyD and others Room: Yale |
Topic: What Parents Need to Know about Their Child’s Development
Variations: All Speaker: Amy Talboy, MD Room: Yale |
Topic: Understanding Executive Functions
Variations: All Speaker: Jennifer Janusz, PsyD Room: Yale |
Topic: IEP/504 Accommodations Variations: All Speaker: Karen Riley, PhD Room: Yale |
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| Topic: Transitions to Adult Services
Variations: All Speaker: Cory Ellen Nourie, MSS, MLSP Room: Princeton |
Topic: Mental Health: Issues and Challenges in XYY
Variation: XYY Speaker: Erin Torres, Nurse Practitioner Room: Princeton |
Topic: Gene Function, Brain Development and Behavior
Variations: All Speaker: Armin Raznahan, MD, PhD Room: Princeton |
Topic: Brain and Behavioral Development in Klinefelter Syndrome
Variation: XXY Speaker: Alan Reiss, MD Room: Princeton |
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| Topic: Fertility in X & Y Variations
Variation: XXY Speakers: Akanksha Mehta, MD and Hooman Sadri-Ardekani, MD PhD Room: Harvard |
Topic: Trisomy X: A Group Just For Us
Variation: Trisomy X Adults Facilitator: Andrea Wilczynski Room Harvard |
Topic: Seizures and Tremors
Variations:All Speaker: Elizabeth Berry-Kravis, MD, PhD Room: Harvard |
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| Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
Sunday, June 25th
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| 8:30-9:00 | 9:00-9:50 | 10:05-10:55 | 11:10-12:00 | 12:00-1:00 |
|---|---|---|---|---|
| General session with attendees
“About AXYS” |
Topic: Disclosing the Diagnosis
Variations: All Speaker: Susan Howell, MS, MBA, CGC Room: Yale |
Topic: Social Skills and Emotion Recognition
Variations: All Speakers: Kimberly Kuiper, MSc and Nienke Bouw, MSc Room: Oxford |
Poster Session – interact with researchers | Lunch |
| Topic: Navigating the Mental Health System: A Guide to Treatment Options
Variations: All Speaker: David Hong, MD Room: Oxford |
Topic: Thinking of Medication for Anxiety and ADHD
Variations: All Speaker: Nicole Tartaglia, MD Room: Yale |
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| Topic: Understanding the ABC’s of Behavior in Children
Variations: All Speaker: Elizabeth Coan, PsyD Room: Princeton |
Topic: Government Benefits for Adults
Variations: All Speaker: Virginia Cover, MSW Room: Princeton |
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| Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |
| 1:00-1:50 | 2:00-3:30 |
|---|---|
| Topic: Working the Room: Advocacy in Your State
Variations: All Speakers: Sharron Close, PhD and Dorothy Boothe, PhD Room: Princeton |
Condition-specific and/or region-specific support group meetings |
| Topic: Metabolic Issues in XXY
Variation: XXY Speaker: B. Michelle Schweiger, DO, MPH Room: Yale |
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| Topic: Legal Issues and Challenges
Variations: All Speaker: Sheryl Kelly, Esq and Gary Glissman Room: Oxford |
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| Topic: Brief Research Presentations for Scientific Faculty (open to all)
Room: Columbia |