Saturday, June 24th

7:30-8:308:30-10:0010:00-10:1510:30-11:0011:10-12:00
Check in and registration

Room: Conference center lobby

Welcoming remarks

 

Keynote Addresses:

Sharon Close, PhD and Nicole Tartaglia, MD

Room: Mount Oxford Auditorium

Condition specific socialization activities

XXY: Mount Oxford Auditorium

XYY: Princeton Room

XXX: Harvard Room

XXYY: Yale Room

Topic: Understanding Language Development and Interventions

Variations: All

Speaker: Jacqueline Frazier, MA, CCC-SLP

Room: Princeton

Topic: Independent Living Skills: Life After High School

Variations: All

Speaker:  Sharon Heller

Room: Yale

Topic: First Time Attendee Panel

Variations: All

Speaker: Susan Howell, MS, MBA, CGC and others

Room: Oxford

Topic: What can animal research tell us about sex chromosome variations?

Variations: XXY, XYY

Speaker: Arthur P. Arnold, PhD

Room: Harvard

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia

12:00-1:001:00-1:502:05-2:553:10-4:004:10-5:00
LunchTopic: Thinking about starting testosterone?

Variations: XXY, XXYY, XXXY

Speaker: Shanlee Davis, MD

Room: Oxford

Topic: Testosterone therapy for adolescents/adults with sex chromosome aneuploidies: What’s available and what’s new?

Variations: XXY, XXYY, XXXY

Speaker: Alan Rogol, MD

Room: Oxford

Topic: Adult Management of Klinefelter Syndrome

Variations: XXY Adults

Speaker:  Swaytha Yalamanchi, MD

Room: Oxford

Topic: The Inside Scoop: What families need to know about social media

Variations: All

Speaker:  Rebecca Wilson, PsyD

Room: Oxford

Topic: Trisomy X Panel and Q&A

Variation: XXX

Speaker:  Rebecca Wilson, PsyD and others

Room: Yale

Topic: What Parents Need to Know about Their Child’s Development

Variations: All

Speaker:  Amy Talboy, MD

Room: Yale

Topic: Understanding Executive Functions

Variations: All

Speaker: Jennifer Janusz, PsyD

Room: Yale

 

Topic: IEP/504 Accommodations

Variations: All

Speaker:  Karen Riley, PhD

Room: Yale

Topic: Transitions to Adult Services

Variations: All

Speaker: Cory Ellen Nourie, MSS, MLSP

Room: Princeton

Topic: Mental Health: Issues and Challenges in XYY

Variation: XYY

Speaker: Erin Torres, Nurse Practitioner

Room: Princeton

Topic: Gene Function, Brain Development and Behavior

Variations: All

Speaker: Armin Raznahan, MD, PhD

Room: Princeton

Topic: Brain and Behavioral Development in Klinefelter Syndrome

Variation: XXY

Speaker: Alan Reiss, MD

Room: Princeton

Topic: Fertility in X & Y Variations

Variation: XXY

Speakers: Akanksha Mehta, MD and Hooman Sadri-Ardekani, MD PhD

Room: Harvard

Topic: Trisomy X: A Group Just For Us

Variation: Trisomy X Adults

Facilitator: Andrea Wilczynski

Room Harvard

Topic: Seizures and Tremors

Variations:All

Speaker:  Elizabeth Berry-Kravis, MD, PhD

Room: Harvard

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia


Sunday, June 25th

8:30-9:009:00-9:5010:05-10:5511:10-12:0012:00-1:00
General session with attendees

“About AXYS”

Topic: Disclosing the Diagnosis

Variations: All

Speaker: Susan Howell, MS, MBA, CGC

Room: Yale

Topic: Social Skills and Emotion Recognition

Variations: All

Speakers: Kimberly Kuiper, MSc and Nienke Bouw, MSc

Room: Oxford

Poster Session – interact with researchersLunch
Topic:  Navigating the Mental Health System: A Guide to Treatment Options

Variations: All

Speaker: David Hong, MD

Room: Oxford

Topic: Thinking of Medication for Anxiety and ADHD

Variations: All

Speaker: Nicole Tartaglia, MD

Room: Yale

Topic: Understanding the ABC’s of Behavior in Children

Variations: All

Speaker: Elizabeth Coan, PsyD

Room: Princeton

Topic: Government Benefits for Adults

Variations: All

Speaker: Virginia Cover, MSW

Room: Princeton

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia

1:00-1:502:00-3:30
Topic: Working the Room: Advocacy in Your State

Variations: All

Speakers: Sharron Close, PhD and Dorothy Boothe, PhD

Room: Princeton

Condition-specific and/or region-specific support group meetings
Topic: Metabolic Issues in XXY

Variation: XXY

Speaker: B. Michelle Schweiger, DO, MPH

Room: Yale

Topic: Legal Issues and Challenges

Variations: All

Speaker: Sheryl Kelly, Esq and Gary Glissman

Room: Oxford

Topic: Brief Research Presentations for Scientific Faculty (open to all)

Room: Columbia