Helpline: 1‑267‑338‑4262 | helpline@genetic.org
AXYS - The Association for X&Y Chromosome Variations
Helpline: 1‑267‑338‑4262 | info@genetic.org

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New to Trisomy X: Parent Support Call

Zoom

Register here: https://us06web.zoom.us/meeting/register/BYJRBCiSSKiRbX1UPQYzfA#/registration This session is designed for expectant parents and those who are new to their child's Trisomy X diagnosis. We will cover what to expect during pregnancy and early childhood, how to access reliable information to help you prepare, and where to find support in navigating this journey. The call offers a safe and supportive space for open discussion, free of judgment, where you can address any questions you may have. We look forward to seeing you soon!

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common. Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common. Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

AXYS Southeastern Support Group Meeting

Zoom

At this meeting, we will be joined by Dr. Sharron Close from Emory University. Dr. Close will discuss her involvement with the upcoming 2025 AXYS Community Conference, and attendees of previous AXYS conferences will share how they have benefited from their attendance in-person and virtually, as well as answer any questions individuals may have. Register for the meeting here

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver This gathering will happen on the third Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific). "Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue. This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community. This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps. You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask." "Thank you for your consideration and we look forward to seeing everybody Friday night!" - Rob & Jamie Lee AXYS Rocky Mountain Support Group

Mid-Atlantic Support Group Meeting

Zoom

Register here: https://us06web.zoom.us/meeting/register/D2Og-ghDSEyCYtfT1lgpRQ The AXYS Mid-Atlantic Support Group will hold a virtual meeting on Saturday, April 19, from 2-4 pm hosted by Stefan Schwarz. Topics include all issues affecting those with 47,XXY; 47,XYY; 47,XXX, and other variations as well as information about the upcoming 2025 Community Conference. Attendance at all AXYS events requires agreement to abide by AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/

Living with Trisomy X: An “Ask Anything” Call for Families and Individuals

Zoom

Register here Join us for a welcoming and open Zoom call designed for families, caregivers, and individuals living with Trisomy X. Whether you're newly navigating this diagnosis or have years of experience, this is a non-judgemental and supportive space to connect, share, ask questions, and learn from each other. We'll talk about real-life experiences, challenges, and helpful strategies related to development, education, health, emotional wellbeing and daily life. Come as you are - ask anything, or just listen in. We look forward to seeing you!

AXYS Monthly Drop-in Chat

Zoom

AXYS Monthly Drop-in Chat 1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT) All variations, parents and adults welcome. Hosted by Ginnie Cover. Register for the next meeting on Zoom

XXYY Project: Parents and Caregivers Support Group Meeting

Zoom

The XXYY Project is having a support Zoom (like a Chat Pop-in) for XXYY parents and caregivers on Tuesday, May 13th from 7-9pm ET. Here is Zoom link for XXYY parents and Caregivers to register: https://us06web.zoom.us/meeting/register/fsFEKOZXRMOtsENKrs2TAg

XXYY Project: UK Parents and Caregivers Support Group Meeting

Zoom

There will be a Zoom chat for UK XXYY parents and caregivers and those that want to join them on Tuesday, May 13th @ 8pm London Time. Here is the Zoom link: https://us06web.zoom.us/meeting/register/gpY4tv9zQOa-1NSyw9ueFw

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