The XXYY Project is having a support Zoom (like a Chat Pop-in) for XXYY parents and caregivers on Tuesday, May 13th from 7-9pm ET. Here is Zoom link for XXYY parents and Caregivers to register: https://us06web.zoom.us/meeting/register/fsFEKOZXRMOtsENKrs2TAg
There will be a Zoom chat for UK XXYY parents and caregivers and those that want to join them on Tuesday, May 13th @ 8pm London Time. Here is the Zoom link: https://us06web.zoom.us/meeting/register/gpY4tv9zQOa-1NSyw9ueFw
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific). "Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue. This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community. This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps. You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask." "Thank you for your consideration and we look forward to seeing everybody Friday night!" - Rob & Jamie Lee AXYS Rocky Mountain Support Group
Tennessee Disability MegaConference | Loews Nashville Hotel at Vanderbilt Plaza, Nashville AXYS is so pleased to support an upcoming event in Tennessee: the 2025 Tennessee Disability MegaConference, to be held May 22 and 23rd, 2025. Lindsey Lind, AXYS Program Director, will have an event booth for AXYS at the Disability MegaConference. Please drop by and meet Lindsey and, if you are interested in assisting Lindsey with this effort, please reach out to her at llind@genetic.org. A link to the event is found below. We also ask you to please let us know of any events in your community that might be of relevance-it is important that we spread awareness and knowledge of X and/or Y chromosome variations! Please reach out to our Board Chair, Ginnie Cover, at GCover@genetic.org with any questions or suggestions!
AXYS Monthly Drop-in Chat 1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT) All variations, parents and adults welcome. Hosted by Ginnie Cover. Register for the next meeting on Zoom
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific). "Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue. This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community. This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps. You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask." "Thank you for your consideration and we look forward to seeing everybody Friday night!" - Rob & Jamie Lee AXYS Rocky Mountain Support Group
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific). "Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue. This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community. This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps. You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask." "Thank you for your consideration and we look forward to seeing everybody Friday night!" - Rob & Jamie Lee AXYS Rocky Mountain Support Group
AXYS Monthly Drop-in Chat 1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT) All variations, parents and adults welcome. Hosted by Ginnie Cover. Register for the next meeting on Zoom
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific). "Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue. This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community. This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps. You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask." "Thank you for your consideration and we look forward to seeing everybody Friday night!" - Rob & Jamie Lee AXYS Rocky Mountain Support Group
Register for the conference AXYS is delighted to announce the comeback of the in-person Community Conference, the first since 2019, as we return to the amazing facilities at the Emory Conference Center Hotel in Atlanta, Georgia! Save the date for what will be a wonderful gathering of our entire community! The AXYS Community Conference brings together people diagnosed with an X or Y chromosome variation, parents, families, friends, healthcare professionals, and researchers to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on X and Y chromosome variation research and approaches to care.
