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Helpline: 1‑267‑338‑4262 | info@genetic.org
AXYS - The Association for X&Y Chromosome Variations
Helpline: 1‑267‑338‑4262 | info@genetic.org

Upcoming Events

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Southeastern Support Group Meeting

Zoom

REGISTER HERE One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

Upstate New York Support Group Meeting

Zoom

REGISTER HERE One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

Florida Support Group Meeting

Zoom

REGISTER HERE One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

NEXXYS/New England Support Group Meeting

Zoom

REGISTER HERE One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

AXYS Trisomy X Retreat (Ages 16+)

Join the Trisomy X Community in Salem, MA for fun and fellowship! The retreat officially kicks off with the Meet & Greet beginning at 10am on Saturday, May 4th! More information to come! REGISTER HERE ACCOMMODATIONS At the nearby Hampton Inn Salem Boston, both Friday, May 3 and Saturday, May 4 have a reduced rate of $179 a night with a $15 fee for parking overnight. To book your room at this reduced rate, you must do so by Monday, April 1st. Booking Link: https://www.hilton.com/en/book/reservation/deeplin... FUNDRAISER Please help everyone that is interested attend this retreat by contributing to our Trisomy X Retreat Fundraiser!

Free

New York Metro/Mid-Atlantic Support Group Meeting

Zoom

REGISTER HERE One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

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