AXYS Chat Pop-ins Every Friday | 12-1pm Eastern Time Start time in other regions: 11am Central | 10am Mountain | 9am Pacific Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges. More details here
Register here: https://us06web.zoom.us/meeting/register/BYJRBCiSSKiRbX1UPQYzfA#/registration This session is designed for expectant parents and those who are new to their child's Trisomy X diagnosis. We will cover what to expect during pregnancy and early childhood, how to access reliable information to help you prepare, and where to find support in navigating this journey. The call offers a safe and supportive space for open discussion, free of judgment, where you can address any questions you may have. We look forward to seeing you soon!
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome. If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common. Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome. If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common. Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee
At this meeting, we will be joined by Dr. Sharron Close from Emory University. Dr. Close will discuss her involvement with the upcoming 2025 AXYS Community Conference, and attendees of previous AXYS conferences will share how they have benefited from their attendance in-person and virtually, as well as answer any questions individuals may have. Register for the meeting here
Registration and more info here Be sure to stop by the AXYS table at this event! From the event registration page: "Activities start at 9am. Walk will start promptly at 11am, and participants can expect to be finished by noon" "Last year, nearly 1,500 individuals signed up to walk or fundraiser. The majority are families who have an autistic child or relative. Other walkers are autistic adults, educators, students, community businesses, service providers, clinicians, and friends." "Anyone can register for the walk. Once registered, people can create teams and compete for prizes. Prizes are available for largest teams, the teams who raise the most money, individuals who raise the most money, and other categories. Teams can be for a family, a business, church, support group, or any other group!" "There will be music, acknowledgement of teams, prizes for team captains and individuals, sponsor recognition, and several kids’ activities starting at 9am. Dozens of exhibitors will have displays at tables to educate the public about their autism-related services."
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver This gathering will happen on the third Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific). "Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue. This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community. This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps. You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask." "Thank you for your consideration and we look forward to seeing everybody Friday night!" - Rob & Jamie Lee AXYS Rocky Mountain Support Group
Register here: https://us06web.zoom.us/meeting/register/D2Og-ghDSEyCYtfT1lgpRQ The AXYS Mid-Atlantic Support Group will hold a virtual meeting on Saturday, April 19, from 2-4 pm hosted by Stefan Schwarz. Topics include all issues affecting those with 47,XXY; 47,XYY; 47,XXX, and other variations as well as information about the upcoming 2025 Community Conference. Attendance at all AXYS events requires agreement to abide by AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/
Register here Join us for a welcoming and open Zoom call designed for families, caregivers, and individuals living with Trisomy X. Whether you're newly navigating this diagnosis or have years of experience, this is a non-judgemental and supportive space to connect, share, ask questions, and learn from each other. We'll talk about real-life experiences, challenges, and helpful strategies related to development, education, health, emotional wellbeing and daily life. Come as you are - ask anything, or just listen in. We look forward to seeing you!
AXYS Monthly Drop-in Chat 1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT) All variations, parents and adults welcome. Hosted by Ginnie Cover. Register for the next meeting on Zoom
