New Research Project: How Families Experience an X & Y Chromosome Variation Diagnosis
The Family Experiences and Attitudes on Diagnosis and Support (FEADS) Study is STILL OPEN!
This study is open to individuals and parents of individuals who have received a diagnosis of an X & Y Chromosome Variation, before birth or as a child or adult. If you haven’t done so already, please consider sharing your experience with researchers from Mayo Clinic and Emory University. We hope that these results will help us improve the diagnosis process.
The study involves answering questions in an online survey that will take approximately 15-20 minutes of your time.
Megan Allyse, PhD from The Mayo Clinic in collaboration with Sharron Close, PhD from Emory University are recruiting volunteers from the X & Y Chromosome Variation Community to participate in this study.