XXYY Sibling Project Reaching New Audiences
As research assistants in the eXtraordinarY Kids Clinic, Children’s Hospital Colorado,
we helped to manage and organize research data. We also provided support for research
patients and our work included frequent interactions with families. Often brothers and
sisters accompanied families during appointments to the clinic. Our initial interactions
with siblings of boys with XXYY were limited to brief conversations in waiting rooms as
their brothers completed visits with Dr. Tartaglia and the rest of the clinic team.