A qualitative exploration of mothers’ and fathers’ experiences of having a child with Klinefelter syndrome

//A qualitative exploration of mothers’ and fathers’ experiences of having a child with Klinefelter syndrome

A qualitative exploration of mothers’ and fathers’ experiences of having a child with Klinefelter syndrome

Article Title: A qualitative exploration of mothers’ and fathers’ experiences of having a child with Klinefelter syndrome and the process of reaching this diagnosis

Authors: Elyssia Bourke, Pamela Snow, Amy Herlihy, David Amor and Sylvia Metcalfe

Date of Publication: May 22, 2013

The conclusions from this study were that parents’ experiences of having a child with KS and receiving a diagnosis were complex and multifaceted. This experience was shaped by the timing of when the diagnosis was received, who provided the diagnosis, what information was provided from health-care professionals and that which parents may have encountered on the internet. The long-term experiences for parents were also impacted by the level of support they received. These findings have implications for the process by which KS is recognized by the health-care community and supports available for families.”

Read more

2018-08-12T13:41:43+00:00Categories: 47,XXY (Klinefelter)|