Videos
This chart contains all of the videos that are found on the AXYS YouTube Channel. This chart makes it easy to search for what you want to watch. To use the search this table box: type in the speaker, topic or condition for which you want to see videos.
Video | Speaker(s) | Relevant Variation |
|---|---|---|
Initial Data from the GALAXY Registry: Generating Advancements in Longitudinal Analysis in X & Y Chromosome Variations | Susan Howell, MS, MBA, CGC and Kayla Molison, BA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Discovery & Exploration (discovering skills and employment opportunities) | Tricia Zeltwanger, CESP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
An Interview with Josh Griffin: His Experience with 47,XXY | Josh Griffin | XXY |
| Updates on the eXtraordinarY Babies Study (2023) | Nicole Tartaglia, MD and Susan Howell, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Research Partnership: The GALAXY Registry | Shanlee Davis, MD, PhD and Alexa Carl, MPH | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Gender identity, gender questioning, and gender dysphoria in KS/XXY | Claire Harkin and Prof. James Elander | XXY |
First Giggles to First Words ( Language Skills ) | Michele Martinez-Chadrom, MA, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Temperament in Infants with X&Y Chromosome Trisomies | Megan Louderman, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Supplemental Needs: A Novel About X/Y Variations | Ginnie Cover, MSW, MBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Government Benefits (SSI, SSDI, SNAP, Medicaid, and more) | Ginnie Cover, MSW, MBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Gender Identity in Klinefelter Syndrome | Tet Yap | XXY |
Understanding the Phenotypic Spectrum and Family Experiences of XYY | Rachel Gore, ScM, CGC and Colleen Jodarski, MGC, CGC | XYY |
Trisomy X: A Review and Care Update for Families and Health Care Providers | Kristen Wigby, MD | Trisomy X |
Social and emotional function in boys and teens with KS | Allan Reiss, MD, Lara Foland-Ross, PhD, and Andrea Joan Funtila, BS | XXY |
Brain structure and function in boys and teens with Klinefelter syndrome | Allan Reiss, MD and Lara Foland-Ross, PhD | XXY |
Diabetes in Klinefelter Syndrome | Andrea Mucci, MD | XXY |
Finding Self Acceptance | Matt McKeon, MS, CCC-SLP & Hannah Acevedo, MS, LEP, ABSNP, BCBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| State of Fertility in XY Chromosome Variations: What you should know in 2023 | Hooman Sadri, MD, PhD | XXY, Trisomy X |
| How We Did It - Lessons from XXYY parents on how to get traction | Nicole Tartaglia, MD and John Sloss | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Anxiety in Children and Adolescents with X&Y Chromosome Variations | Caitlin Middleton, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Top 5 Parent Concerns about Executive Functioning | Jennifer Janusz, PsyD and Ashley Nguyen-Martinez, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Dr. T’s 5 Main Areas to Consider When Deciding Whether to Start Treatments | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Autism and X/Y Variations: How Do They Overlap? | Nicole Tartaglia, MD and Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| X- vs Y- Chromosome Influences on Human Behavior | Srishti Rau, PhD | XXY, XYY |
| Get Moving! Strategies for Stimulating Motor Skills & Physical Activity | Shanlee Davis, MD, PhD and Syd Martin, MS, OTR/L | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Beyond Hormones: medical conditions & physical symptoms in X/Y variations | Nicole Tartaglia, MD and Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Why I Hired a Workforce Nobody Else Would | Randy Lewis | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
| Exactly what do you mean by “developmental delay?” | Nicole Tartaglia, MD and Talia Thompson, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Metabolic Issues in XXY | B. Michelle Schweiger, DO, MPH | XXY |
Medical Problems and Medical Follow-Up in XXYY Syndrome | Nicole Tartaglia, MD | XXYY |
Adults’ Perspective on 47,XXY | David Wright, Zell Lundberg, and David Davis | XXY |
Brain Development in Klinefelter Syndrome | Allan Reiss, MD | XXY |
Cognition in Klinefelter Syndrome | Kyle Boone, PhD, ABPP-ABCN | XXY |
The Impact of Triple X Syndrome on Psychological Functioning | Drs. Marit Bierman | Trisomy X |
Getting Through the Day: The Impact of Klinefelter Syndrome on Psychological Functioning | Drs. Marit Bierman | XXY |
Clinical Characteristics and Modern Model of Management | Peter J. Stahl, MD | XXY |
Health and Development in Trisomy X Syndrome | Nicole Tartaglia, MD | Trisomy X |
Testosterone Treatment of Adult Men with 47,XXY | Adrian Dobs, MD, MHS | XXY |
Growth and Development in XXYY Boys | Rodolfo Rey, MD | XXYY |
Trisomy X Panel and Q&A | Rebecca Wilson, PsyD | Trisomy X |
Testosterone Replacement Therapy in Adult Males | Jay Newmark, MD | XXY |
Infertility Treatment for Men with 47,XXY | Peter Schlegel, MD | XXY |
Medical Problems and Medical Follow-up in XYY Syndrome | Nicole Tartaglia, MD | XYY |
Adult Curiosities and Consequences | Sharron Close, PhD, MS, CPNP-PC, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Quality of Life and Testosterone in Klinefelter Syndrome | Sharon Close, CPNP-PC and Ilene Fennoy, MD | XXY |
Health and Development in XYY | Jeannie Visootsak, MD | XYY |
Speech and Language Deficits in Klinefelter Syndrome | Nancy Lazerson, MA, CCC-SLP | XXY |
Mental Health: Issues and Challenges in XYY | Erin Torres, MSN, CRNP | XYY |
How to Keep Your Cool Around Disruptive Behaviors | Tracy Prout, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The Endocrinology of Klinefelter Syndrome Throughout Childhood | David W. Cooke, MD | XXY |
2012 Survey Results: Living with 47,XXX | Virginia Cover, MSW | Trisomy X |
Trisomy X Syndrome: An Overview | Nicole Tartaglia, MD and Susan Howell, MS, MBA, CGC | Trisomy X |
Promoting Good Health in Adults with XXY | Adrian Dobs, MD, MHS | XXY |
IEP and 504 Plans for Students with X and Y Variations | Peter Wright, Esq | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
2012 Survey Results: Living with 47,XXY | Virginia Cover, MSW | XXY |
Development and Behavior in Children with X&Y Chromosome Variations | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
47,XXY: An Overview of What We Know | Philip Zeitler, MD | XXY |
ADHD in X and Y Chromosome Variations | Nicole Tartaglia, MD and Natalie Ayari | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Association for X and Y Chromosome Variations - Introductory Video | AXYS | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Auditory Processing and My Child with an X/Y Chromosome Variation | Jay Lucker, EDD, CCC-A/SLP, FAAA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Disclosing the Diagnosis | Susan Howell, MS, MBA, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Your Child with 47,XXY: What to Expect During Puberty | Ilene Fennoy, MD | XXY |
The Cognitive and Behavioral Phenotype Of 47,XXY And 47,XXX | Sophie van Rijn, PhD | XXY, Trisomy X |
X&Y Chromosome Variations from Birth to Age 5 | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Understanding Communication Disorders | Matt McKeon, MS, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Klinefelter Syndrome - Developments in Research Regarding Infertility | Peter Schlegel, MD | XXY |
Dr. David Hong Reads Gregory and his Extra X | David Hong, MD | XXY |
Epidemiology of Sex Chromosome Abnormalities | Claus Gravholt, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Risk for Early Ovarian Failure in Girls with Trisomy X Syndrome | Nicole Tartaglia, MD, MSCS, Shanlee Davis, MD, PhD, and Susan Howell, CGC, MS, MBA | Trisomy X |
47,XXY Fertility | Pravin Rao, MD | XXY |
The NIH Study on X and Y Chromosome Variations | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Disclosing the Diagnosis in X and Y Variations | Susan Howell MS, CGC, MBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Social and Emotional Functioning in Children with Klinefelter Syndrome | Lara Foland-Ross, PhD and Allan Reiss, MD | XXY |
Testosterone Therapy in Adolescents and Young Adults with 47,XXY | Phillip S. Zeittler, MD, PhD | XXY |
Infants and Children with Klinefelter Syndrome: Hormones and Development | Ilene Fennoy, MD | XXY |
Research Aims: TRIXY National Center of Expertise | Sophie van Rijn, PhD | XXY, XYY, Trisomy X |
Making Medication Decisions | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The Biology of Sexual Orientation and Gender Identity | Eric Vilain, MD, PhD and Cisco Sanchez, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
2017 Aurora, CO Conference Keynote Address | Nicole Tartaglia, MD and Sharron Close, PhD, MS, CPNP-PC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Gene Function, Brain Development and Behavior | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Brains, Genes, & Puberty: Testosterone Replacement in XXY | Allan Reiss, MD & Vanessa Alschuler | XXY |
The NIMH Study on X & Y Chromosome Variations | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Understanding the ABCs of Behavior in Children | Elizabeth Coan, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Erin Torres Reads Elizabeth and her Extra X | Erin Torres, MSN, CRNP | Trisomy X |
Growth and Development in XYY Boys | Rodolfo Rey, MD | XYY |
Promoting Language and Learning: Children with X&Y Chromosomal Variations | Natalia A. Krum, BCBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Transition to Adulthood | Cory Nourie, MSS, MLSP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Metabolic Syndrome in X and Y Variations | B. Michelle Schweiger, DO, MPH | XXY |
Fertility in X & Y Chromosomes Variations 2018 | Hooman Sadri-Ardekani, MD, PhD and Stanley Kogan, MD | XXY |
Sex And Gender: What the Data Tells Us About Klinefelter Syndrome | Al Rogol, MD and Sharron Close, PhD, MS, CPNP-PC | XXY |
Online Safety for Individuals with X & Y Variations | Larry Dubin, JD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
eXtraordinarY Kids Research in Colorado | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Engaging the X & Y Chromosome Variation Community in Research | Nicole Tartaglia, MD and Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Reprise: Adults with XXY | David Wright | XXY |
The Neuropsychological Evaluation and What It Can Tell Parents | David Marcus, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Secondary copy number variants in people with a sex chromosome trisomy | Hayley Mountford, PhD | XXY, XYY, Trisomy X |
Environmental Factors and Individuals with an Extra X Chromosome | Sophie van Rijn, PhD | XXY, Trisomy X |
Dr. Nicole Tartaglia Reads Kyle and His Extra X and Extra Y | Nicole Tartaglia, MD | XXYY |
Health and Fitness in X & Y Variations | Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Government Benefits for Adults with Extra X & Y Chromosomes (2017) | Virginia Cover, MSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Introduction + Presentation: Fertility in Klinefelter syndrome | Peter Schlegel, MD | XXY |
Independent Living: Life After High School | Sharon Heller | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Streams of Development and Behavior in XXY | Jeannie Visootsak, MD | XXY |
College for those with learning differences in the X & Y variation community | Rachel Masson and Ferne Bork | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Parental Advocacy for Children with Sex Chromosome Aneuploidies | Jordan P. Richardson | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Successful Strategies for Home and Community Participation | Audrey Zapletal, MS, OTRL | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Dr. Lilian Cohen Reads Jack and his Extra Y | Lilian Cohen, MD, MPH | XYY |
Transition to Adulthood | Cory Nourie, MSS, MLSP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Psychiatric and Neurodevelopmental Comorbidities in XXY | Erin Torres, MSN, CRNP and Srishti Rau, PhD | XXY |
Understanding Executive Functions | ennifer Janusz, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Navigating the Mental Health System: A Guide to Treatment Options | David Hong, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Anxiety about COVID: Developing Resilience During a Pandemic | David Hong, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Behavior Problems, Temper Tantrums, Meltdowns and Outbursts | Karen Riley, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
What Parents Need to Know About Their Child's Development | Amy Talboy, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Understanding Language Development and Interventions | Jacqueline Frazier, MA, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Social Skill Challenges, Toddlers to Teens | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Auditory Processing in Children With X and Y Chromosome Variations | Jay Lucker, EDD, CCC-A/SLP, FAAA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How to Talk to Your Child About His/Her Diagnosis | Nicole Tartaglia, MD and Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Is There Androgen Deficiency in Childhood in Boys with 47,XXY? | Judith Ross, MD | XXY |
Welcome to the 2019 AXYS Family Conference | Carol Meerschaert | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Sex Chromosome Variation: Genes, Environment, Brain and Behavior | Allan Reiss, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
X&Y Chromosome Variations & Immune System Health | Ram Raj Singh, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Neurodevelopmental and Medical Risks: X&Y Chromosome Variations | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Executive Functioning: How to Help Children with Challenging Behavior | Lisa Jacobson, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
X&Y Chromosome Variation - New Views from Brain Imaging | Jay Giedd, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The eXtraordinarY Kids Clinic | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
A Roadmap for Advancing Knowledge and Clinical Practices (BGAP Study) | Allan Reiss, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Performance Event | Michael Palumbo | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Androgen Therapy for Male Adolescents | Alan Rogol, MD, PhD | XXY |
Heart Health in People with Klinefelter Syndrome | Frances High, MD, PhD | XXY |
Executive functioning in adolescents with XXY: Results from the BGAP Study | Vanessa Alschuler | XXY |
Seizure Management in X and Y Chromosome Variations | Elizabeth Berry-Kravis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Medications for Behavioral and Emotional Challenges in Children and Adolescents | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Educational Q&A - School's out! Now what? | Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA, Dorothy Boothe, PhD and Erin Frith, MEd | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How Research Can Benefit Families and Patients | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Testosterone treatment in Klinefelter syndrome | Claus H. Gravholt, MD, PhD | XXY |
Reprise: Adults with XXY | Zell Lundberg | XXY |
Intro + Presentation: Early Intervention for Young Children with X&Y Variations | Talia Thompson, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Government Benefits for Adults with X and Y Chromosome Variations (2015) | Virginia Cover, MSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Meet the AXYS Board of Directors | Various | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Executive Director Carol Meerschaert talks about our 2021 Virtual Family Conference | Carol Meerschaert | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Planning and Preparedness: Coping with Adversity and Crisis | Rhesia-Maria Ochoa | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Clinical Trials in X and Y Variations: Doing Research that Matters | Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
What is Testosterone? What is TRT? | Shanlee Davis, MD, PhD | XXY |
Growing Sperm in Nude Mice - From A Futuristic Dream to Reality | Alex Travis, VMD, PhD | XXY |
Speech-Language Intervention: Goals and Expectations | Jackie Frazier, MA, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Living With Loss and Grief | Lori Earl | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The Journey Through the Educational Process | Karen Riley, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Neurodevelopment from Birth to Young Adulthood in X&Y Chromsome Variations (2015) | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Conversation Skills for Adults | Jasper Estabillo, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Working the Room: Advocacy You Can Use | Sharron Close, PhD, MS, CPNP-PC and Dorothy Boothe, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Research Updates in X&Y Chromosome Variations (2013) | Nicole Tartaglia, MD, Sharron Close, PhD, MS, CPNP-PC, Ram Raj Singh, MD, and Jay Giedd, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Emotional Regulation | Leela Morrow, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Sensory Processing Challenges and Participation in Home and School Activities | Audrey L. Zapletal, MS, OTR/L | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Legal and Law Enforcement Issues For Adolescents and Adults | Phyllis Quatman and Gary Glissman | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
A Student’s Right: Tuition Reimbursement for Private School | Tom Davis, Esq | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Latest findings & future plans from the NIMH study of X/Y chromosome variations (2021) | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How Did This Happen? Genetics 101 | Susan Howell, MS, MBA, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Endocrine Issues Related to X&Y Chromosome Variations | Philip Zeitler, MD | XXY |
Depression: Diagnosis & Treatment in Persons w/ X/Y Variation | Allan Reiss, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Tools for Teaching Social Boundaries to Tweens, Teens, and Young Adults | Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Physical Function, Psychosocial Health, QOL in XXYY Individuals | Amy A. Blumling, PhD, CPNP-PC | XXYY |
2015 State of the Science: Updates in X&Y Chromosome Variation Research | Panel Discussion | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Synchrony of Literacy Development Among Individuals with an Extra X Chromosome | Mina Avery, MEd | XXY, Trisomy X, XXYY, XXXY, Other Variations |
Fertility and Ovary Function in Trisomy X | Shanlee Davis, MD, PhD | Trisomy X |
Work Incentives for People with Disability Benefits | David Mitchell | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Practical Solutions for eXtraordinarY Circumstances (Part 1 of 2) | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Prenatal testing for X&Y Variations (Extended Presentation) | Rama Kastury, DO | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How to Talk to Your Child about His or Her Diagnosis | Nicole Tartaglia, MD, Susan Howell, MS, MBA, CGC, Aaron Bornstein and Hillary Ellis | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Roadmap to Research | Sharron Close, PhD, MS, CPNP-PC, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Supporting the Development of Planning and Organizational Skills | Christa Hutaff-Lee, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Introduction to the Americans with Disabilities Act | David Knight, Esq | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Learning Problems: Viewed Through a Life Course Lens | Sheryl Rimrodt-Frierson, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Patterns of Mental Health Risk in X/Y Variations | Srishti Rau, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
2013 AXYS Family Conference Interviews | Various | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Occupational Therapy Treatment | Sydney Martin, MS, OTR | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
When Others Don't Get It: Looking into the Future for X&Y Chromosome Variations | Sharron Close, PhD, MS, CPNP-PC, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Whole Genome Sequencing and Genetic Counseling for X&Y Variations at NIH | Michael Setzer, ScM, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Behavioral Considerations for X&Y Chromosome Differences | Rebecca Wilson, PsyD, E.G. Bozorgpour, PhD, and Jamie Blume, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Special Education and Disablility Advocacy: Sooner, Not Later | Stephanie James, JD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Introduction to the new Clinical Registry, GALAXY | Shanlee Davis, MD, PhD and Susan Howell, MS, MBA, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Strategic Planning and Resources for Crisis Prevention and Intervention | R. Maria Ochoa, LCSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Can We Direct Spermatogonia Toward Normal Development? | Paula Cohen, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Resources and What You Need to Know (Government Programs and Services) | R. Maria Ochoa, LCSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Coping with Anxiety Disorder | David Hong, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Practical Solutions for eXtraordinarY Circumstances (Part 2 of 2) | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Literacy Development Among Individuals with X&Y Chromosome Variations | Donald Bear, PhD and Mina Avery, MEd | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Transition from pediatric to adult-oriented medical care | Andrew Dwyer, PhD, FNP-BC, FNAP, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
A Synchrony of Literacy Development Among Individuals with an Extra X Chromosome (Part 2) | Mina Avery, MEd | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Prenatal testing for X&Y Variations Q&A | Rama Kastury, DO | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Klinefelter Syndrome in Adults CME Course Introduction | Carol Meerschaert | XXY |
AXYS Klinefelter Syndrome in Adults CME Course: Lesson 1 | History, Prevalence, Phenotype | Gary Glissman, RN | XXY |
AXYS Klinefelter Syndrome in Adults CME Course: Lesson 2 | Diagnosis | Hooman Sadri, MD, PhD | XXY |
AXYS Klinefelter Syndrome in Adults CME Course: Lesson 3 | Physical and Mental Comorbidities | David Hong, MD | XXY |
AXYS Klinefelter Syndrome in Adults CME Course: Lesson 4 | Multidisciplinary Health Management | Sharron Close, PhD, MS, CPNP-PC, FAAN | XXY |
AXYS Klinefelter Syndrome in Adults CME Course: Lesson 5 | Fertility Treatment | Stuart Howards, MD | XXY |
Conference and webinar presenters share their professional and personal opinions and experiences. These opinions and experiences are the presenters’ own and do not necessarily represent the AXYS organization.
