Video

An Interview with Josh Griffin: His Experience with 47,XXY
Metabolic Issues in XXY
Medical Problems and Medical Follow-Up in XXYY Syndrome
Adults Perspective on 47,XXY
Brain Development in Klinefelter Syndrome
Cognition in Klinefelter Syndrome
The Impact of Triple X Syndrome on Psychological Functioning
Getting Through the Day: The Impact of Klinefelter Syndrome on Psychological Functioning
Clinical Characteristics and Modern Model of Management Health and Development in Trisomy X Syndrome
Testosterone Treatment of Adult Men with 47,XXY
Growth and Development in XXYY Boys
Trisomy X Panel and Q&A
Testosterone Replacement Therapy in Adult Males
Infertility Treatment for Men with 47,XXY
Medical Problems and Medical Follow-up in XYY Syndrome
Quality of Life and Testosterone in Klinefelter Syndrome
Health and Development in XYY
Speech and Language Deficits in Klinefelter Syndrome
Mental Health: Issues and Challenges in XYY
How to Keep Your Cool Around Disruptive Behaviors
The Endocrinology of Klinefelter Syndrome Throughout Childhood
2012 Survey Results: Living with 47,XXX
Trisomy X Syndrome: An Overview
Promoting Good Health in Adults with XXY
IEP and 504 Plans for Students with X and Y Variations
2012 Survey Results: Living with 47,XXY
Development and Behavior in Children with X&Y Chromosome Variations
47,XXY: An Overview of What We Know
ADHD in X and Y Chromosome Variations
AXYS Association for X and Y Chromosome Variations – Introductory Video
Progress We Made and Challenges Ahead
Testosterone Replacement Therapy in Adolescents and Adults
Auditory Processing and My Child with an X/Y Chromosome Variation
Disclosing the Diagnosis
Your Child with 47,XXY: What to Expect During Puberty
The Cognitive and Behavioral Phenotype Of 47,XXY And 47,XXX
X&Y Chromosome Variations from Birth to Age 5
Understanding Communication Disorders
Klinefelter Syndrome – Developments in Research Regarding Infertility
Dr. David Hong Reads Gregory and his Extra X
Epidemiology of Sex Chromosome Abnormalities
Risk for Early Ovarian Failure in Girls with Trisomy X Syndrome
47,XXY Fertility
The NIH Study on X and Y Chromosome Variations
Disclosing the Diagnosis in X and Y Variations
Social and Emotional Functioning in Children with Klinefelter Syndrome
Testosterone Therapy in Adolescents and Young Adults with 47,XXY
Infants and Children with Klinefelter Syndrome: Hormones and Development
Research Aims: TRIXY National Center of Expertise
Making Medication Decisions The Biology of Sexual Orientation and Gender Identity
2017 Aurora, CO Conference Keynote Address
Gene Function, Brain Development and Behavior Brains, Genes, & Puberty: Testosterone Replacement in XXY
The NIMH Study on X & Y Chromosome Variations
Understanding the ABCs of Behavior in Children
Erin Torres Reads Elizabeth and her Extra X
47,XXY: Hormonal Manipulation and Preservation of Fertility
Growth and Development in XYY Boys
Transition to Adulthood
Metabolic Syndrome in X and Y Variations
Fertility in X & Y Chromosomes Variations 2018
Sex And Gender: What the Data Tells Us About Klinefelter Syndrome
Online Safety for Individuals with X & Y Variations
eXtraordinarY Kids Research in Colorado
Engaging the X & Y Chromosome Variation Community in Research
Reprise: Adults with XXY
The Neuropsychological Evaluation and What It Can Tell Parents
Secondary copy number variants in people with a sex chromosome trisomy
Environmental Factors and Individuals with an Extra X Chromosome
Dr. Nicole Tartaglia Reads Kyle and His Extra X and Extra Y
Health and Fitness in X & Y Variations
Government Benefits for Adults with Extra X & Y Chromosomes (2017)
Introduction + Presentation: Fertility in Klinefelter syndrome
Closing Remarks and Summary of Presentations (2007)
Independent Living: Life After High School
Streams of Development and Behavior in XXY
College for those with learning differences in the X & Y variation community
Parental Advocacy for Children with Sex Chromosome Aneuploidies
Successful Strategies for Home and Community Participation
Dr. Lilian Cohen Reads Jack and his Extra Y
Transition to Adulthood
Psychiatric and Neurodevelopmental Comorbidities in XXY
Understanding Executive Functions
Navigating the Mental Health System: A Guide to Treatment Options
Anxiety about COVID: Developing Resilience During a Pandemic
Behavior Problems, Temper Tantrums, Meltdowns and Outbursts
What Parents Need to Know About Their Child’s Development
Understanding Language Development and Interventions
Social Skill Challenges, Toddlers to Teens
Auditory Processing in Children With X and Y Chromosome Variations
How to Talk to Your Child About His/Her Diagnosis
Is There Androgen Deficiency in Childhood in Boys with 47,XXY?
Welcome to the 2019 AXYS Family Conference
Sex Chromosome Variation: Genes, Environment, Brain and Behavior
X&Y Chromosome Variations & Immune System Health
Neurodevelopmental and Medical Risks: X&Y Chromosome Variations
Executive Functioning: How to Help Children with Challenging Behavior
X&Y Chromosome Variation – New Views from Brain Imaging
The eXtraordinarY Kids Clinic
A Roadmap for Advancing Knowledge and Clinical Practices (BGAP Study)
AXYS Performance Event
Androgen Therapy for Male Adolescents
Heart Health in People with Klinefelter Syndrome
Executive functioning in adolescents with XXY: Results from the BGAP Study
Seizure Management in X and Y Chromosome Variations
New Directions in Translational Research (2007)
Medications for Behavioral and Emotional Challenges in Children and Adolescents
Educational Q&A – School’s out! Now what?
How Research Can Benefit Families and Patients
Intro + Presentation: Testosterone treatment in Klinefelter syndrome
Reprise: Adults with XXY
Intro + Presentation: Early Intervention for Young Children with X&Y Variations
Government Benefits for Adults with X and Y Chromosome Variations (2015)
Meet the AXYS Board of Directors
AXYS Executive Director Carol Meerschaert talks about our 2021 Virtual Family Conference
Planning and Preparedness: Coping with Adversity and Crisis
Clinical Trials in X and Y Variations: Doing Research that Matters
What is Testosterone? What is TRT?
Growing Sperm in Nude Mice – From A Futuristic Dream to Reality
Speech-Language Intervention: Goals and Expectations
Living With Loss and Grief
The Journey Through the Educational Process
Neurodevelopment from Birth to Young Adulthood in X&Y Chromosome Variations (2015)
Intro + Presentation: Conversation Skills for Adults
Working the Room: Advocacy You Can Use
Research Updates in X&Y Chromosome Variations (2013)
Emotional Regulation
Sensory Processing Challenges and Participation in Home and School Activities
Legal and Law Enforcement Issues For Adolescents and Adults
A Students Right: Tuition Reimbursement for Private School
Latest findings & future plans from the NIMH study of X/Y chromosome variations (2021)
How Did This Happen? Genetics 101
Endocrine Issues Related to X&Y Chromosome Variations
Depression: Diagnosis & Treatment in Persons w/ X/Y Variation
Tools for Teaching Social Boundaries to Tweens, Teens, and Young Adults
Intro + Presentation: Physical Function, Psychosocial Health, QOL in XXYY Individuals
2015 State of the Science: Updates in X&Y Chromosome Variation Research
Synchrony of Literacy Development Among Individuals with an Extra X Chromosome
Fertility and Ovary Function in Trisomy X
Work Incentives for People with Disability Benefits
Practical Solutions for eXtraordinarY Circumstances (Part 1 of 2)
Prenatal testing for X&Y Variations (Extended Presentation)
How to Talk to Your Child about His or Her Diagnosis
Roadmap to Research
Supporting the Development of Planning and Organizational Skills
Introduction to the Americans with Disabilities Act
Learning Problems: Viewed Through a Life Course Lens
Patterns of Mental Health Risk in X/Y Variations
2013 AXYS Family Conference Interviews
Occupational Therapy Treatment
When Others Don’t Get It: Looking into the Future for X&Y Chromosome Variations
Whole Genome Sequencing and Genetic Counseling for X&Y Variations at NIH
Behavioral Considerations for X&Y Chromosome Differences
Special Education and Disability Advocacy: Sooner, Not Later
Introduction to the new Clinical Registry, GALAXY
Strategic Planning and Resources for Crisis Prevention and Intervention
Can We Direct Spermatogonia Toward Normal Development?
Resources and What You Need to Know (Government Programs and Services)
Intro + Presentation: Coping with Anxiety Disorder
Practical Solutions for eXtraordinarY Circumstances (Part 2 of 2)
Literacy Development Among Individuals with X&Y Chromosome Variations
Intro + Presentation: Transition from pediatric to adult-oriented medical care
Promoting Language and Learning: Children with X&Y Chromosomal VariationsA Synchrony of Literacy Development Among Individuals with an Extra X Chromosome (Part 2)

Prenatal testing for X&Y Variations Q&A

Updates from the eXtraordinarY Babies Study

Anxiety in Children and Adolescents with X&Y Chromosome Variations: Symptoms from early childhood to adolescence and considerations for treatment

Adult Curiosities & Consequences: Culpability and Defense Dilemmas for Individuals with X & Y Chromosome Variations

Research Partnership: The GALAXY Registry

Get Moving! Strategies for Stimulating Motor Skills and Physical Activity in Children with X&Y Chromosome Variations

Gender Identity in Klinefelter Syndrome

Gender identity, gender questioning and gender dysphoria: Qualitative evidence to inform proposals for improved care for Klinefelter syndrome/XXY

Beyond Hormones: Other medical conditions and physical symptoms associated with X&Y variations

First Giggles to First Words

Finding Self-Acceptance

Temperament in Infants with X&Y Chromosome Trisomies: What we have learned from the eXtraordinarY Babies Study

Brain structure and function in boys and teens with Klinefelter syndrome

Social and emotional function in boys and teens with Klinefelter syndrome

Trisomy X: A Review and Care Update for Families and Health Care Providers

Government Benefits

How we did it: Lessons from XXYY parents on how to get traction with clinicians and researchers for rare X and Y variations

State of Fertility in X and Y Chromosomes Variations Individuals What You Should Know in 2023

Supplemental Needs: A Novel About X/Y Variations

Why I Hired a Workforce Nobody Else Would

Dr. T’s 5 Main Areas to Consider When Deciding Whether to Start Treatments for Behavioral Concerns in X&Y Variations

Interventions for Learning Disorders in X&Y Chromosome Variations: What does research show really works?

X- vs. Y- Chromosome Influences on Human Behavior: A Comparison of Psychopathology in XXY and XYY

Understanding the Phenotypic Spectrum and Family Experiences of XYY: Important Considerations for Genetic Counseling

Autism and X&Y Variations – How do they overlap?

Diabetes in Klinefelter Syndrome

Gender and Sexual Orientation in Youth and Adults

Top 5 Parent Concerns about Executive Functioning from the eXtraordinarY Kids Clinic: Practical Tips and Ideas to Help

Initial Data from the GALAXY Registry: Generating Advancements in Longitudinal Analysis in X & Y Chromosome Variations

Discovery & Exploration (discovering skills and employment opportunities)

Tricia Zeltwanger, CESP

Rachel Gore

Colleen Jodarski

Randy Lewis

Andrea Mucci

Caitlin Middleton, PsyD

Ashley Nguyen-Martinez

Tet Yap

Megan Louderman

Lara Foland-Ross

Ginnie Cover

Josh Griffin
B. Michelle Schweiger, DO, MPH
Nicole Tartaglia, MD
David Wright, Zell Lundberg, and David Davis
Allan Reiss, MD
Kyle Boone, PhD, ABPP-ABCN
Drs. Marit Bierman
Drs. Marit Bierman
Peter J. Stahl, MD
Nicole Tartaglia, MD
Adrian Dobs, MD, MHS
Rodolfo Rey, MD
Rebecca Wilson, PsyD
Jay Newmark, MD
Peter Schlegel, MD
Nicole Tartaglia, MD
Sharon Close, CPNP-PC and Ilene Fennoy, MD
Jeannie Visootsak, MD
Nancy Lazerson, MA, CCC-SLP
Erin Torres, MSN, CRNP
Tracy Prout, PhD
David W. Cooke, MD
Virginia Cover, MSW
Nicole Tartaglia, MD and Susan Howell, MS, MBA, CGC
Adrian Dobs, MD, MHS
Peter Wright, Esq
Virginia Cover, MSW
Nicole Tartaglia, MD
Philip Zeitler, MD
Nicole Tartaglia, MD and Natalie Ayari
Jay Lucker, EDD, CCC-A/SLP, FAAA
Susan Howell, MS, MBA, CGC
Ilene Fennoy, MD
Sophie van Rijn, PhD
Nicole Tartaglia, MD
Matt McKeon, MS, CCC-SLP
Peter Schlegel, MD
David Hong, MD
Claus Gravholt, MD, PhD
Nicole Tartaglia, MD, MSCS, Shanlee Davis, MD, PhD, and Susan Howell, CGC, MS, MBA
Pravin Rao, MD
Armin Raznahan, MD, PhD
Susan Howell MS, CGC, MBA
Lara Foland-Ross, PhD and Allan Reiss, MD
Phillip S. Zeittler, MD, PhD
Ilene Fennoy, MD
Sophie van Rijn, PhD
Nicole Tartaglia, MD
Eric Vilain, MD, PhD and Cisco Sanchez, MD
Nicole Tartaglia, MD and Sharron Close, PhD, MS, CPNP-PC
Armin Raznahan, MD, PhD
Allan Reiss, MD & Vanessa Alschuler
Armin Raznahan, MD, PhD
Elizabeth Coan, PsyD
Erin Torres, MSN, CRNP
Rodolfo Rey, MD
Cory Nourie, MSS, MLSP
B. Michelle Schweiger, DO, MPH
Hooman Sadri-Ardekani, MD, PhD and Stanley Kogan, MD
Al Rogol, MD and Sharron Close, PhD, MS, CPNP-PC
Larry Dubin, JD
Nicole Tartaglia, MD
Nicole Tartaglia, MD and Shanlee Davis, MD, PhD
David Wright
David Marcus, PhD
Hayley Mountford, PhD
Sophie van Rijn, PhD
Nicole Tartaglia, MD
Shanlee Davis, MD, PhD
Virginia Cover, MSW
Peter Schlegel, MD
Sharon Heller
Jeannie Visootsak, MD
Rachel Masson and Ferne Bork
Jordan P. Richardson
Audrey Zapletal, MS, OTRL
Lilian Cohen, MD, MPH
Cory Nourie, MSS, MLSP
Erin Torres, MSN, CRNP and Srishti Rau, PhD
ennifer Janusz, PsyD
David Hong, MD
David Hong, MD
About Karen Riley, PhD
Amy Talboy, MD
Jacqueline Frazier, MA, CCC-SLP
Rebecca Wilson, PsyD
Jay Lucker, EDD, CCC-A/SLP, FAAA
Nicole Tartaglia, MD and Rebecca Wilson, PsyD
Judith Ross, MD
Carol Meerschaert
Allan Reiss, MD
Ram Raj Singh, MD
Nicole Tartaglia, MD
Lisa Jacobson, PhD
Jay Giedd, MD
Nicole Tartaglia, MD
Allan Reiss, MD
Michael Palumbo
Alan Rogol, MD, PhD
Frances High, MD, PhD
Vanessa Alschuler
Elizabeth Berry-Kravis, MD, PhD
Nicole Tartaglia, MD
Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA, Dorothy Boothe, PhD and Erin Frith, MEd
Rebecca Wilson, PsyD
Claus H. Gravholt, MD, PhD
Zell Lundberg
Talia Thompson, PhD
Virginia Cover, MSW
Carol Meerschaert
Rhesia-Maria Ochoa
Shanlee Davis, MD, PhD
Shanlee Davis, MD, PhD
Alex Travis, VMD, PhD
Jackie Frazier, MA, CCC-SLP
Lori Earl
Karen Riley, PhD
Nicole Tartaglia, MD
Jasper Estabillo, PhD
Sharron Close, PhD, MS, CPNP-PC and Dorothy Boothe, PhD
Nicole Tartaglia, MD, Sharron Close, PhD, MS, CPNP-PC, Ram Raj Singh, MD, and Jay Giedd, MD
Leela Morrow, PsyD
Audrey L. Zapletal, MS, OTR/L
Phyllis Quatman and Gary Glissman
Tom Davis, Esq
Armin Raznahan, MD, PhD
Susan Howell, MS, MBA, CGC
Philip Zeitler, MD
Allan Reiss, MD
Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA
Amy A. Blumling, PhD, CPNP-PC
Panel Discussion
Mina Avery, MEd
Shanlee Davis, MD, PhD
David Mitchell
Rebecca Wilson, PsyD
Rama Kastury, DO
Nicole Tartaglia, MD, Susan Howell, MS, MBA, CGC, Aaron Bornstein and Hillary Ellis
Sharron Close, PhD, MS, CPNP-PC, FAAN
Christa Hutaff-Lee, PhD
David Knight, Esq
Sheryl Rimrodt-Frierson, MD
Srishti Rau, PhD
Various
Sydney Martin, MS, OTR
Sharron Close, PhD, MS, CPNP-PC, FAAN
Michael Setzer, ScM, CGC
Rebecca Wilson, PsyD, E.G. Bozorgpour, PhD, and Jamie Blume, PsyD
Stephanie James, JD
Shanlee Davis, MD, PhD and Susan Howell, MS, MBA, CGC
R. Maria Ochoa, LCSW
Paula Cohen, PhD
R. Maria Ochoa, LCSW
David Hong, MD
Rebecca Wilson, PsyD
Donald Bear, PhD and Mina Avery, MEd
Andrew Dwyer, PhD, FNP-BC, FNAP, FAAN
Natalia A. Krum, BCBA
Mina Avery, MEd
Rama Kastury, DO
Kayla Molison, BA