An Interview with Josh Griffin: His Experience with 47,XXY
Metabolic Issues in XXY
Medical Problems and Medical Follow-Up in XXYY Syndrome
Adults Perspective on 47,XXY
Brain Development in Klinefelter Syndrome
Cognition in Klinefelter Syndrome
The Impact of Triple X Syndrome on Psychological Functioning
Getting Through the Day: The Impact of Klinefelter Syndrome on Psychological Functioning
Clinical Characteristics and Modern Model of Management Health and Development in Trisomy X Syndrome
Testosterone Treatment of Adult Men with 47,XXY
Growth and Development in XXYY Boys
Trisomy X Panel and Q&A
Testosterone Replacement Therapy in Adult Males
Infertility Treatment for Men with 47,XXY
Medical Problems and Medical Follow-up in XYY Syndrome
Quality of Life and Testosterone in Klinefelter Syndrome
Health and Development in XYY
Speech and Language Deficits in Klinefelter Syndrome
Mental Health: Issues and Challenges in XYY
How to Keep Your Cool Around Disruptive Behaviors
The Endocrinology of Klinefelter Syndrome Throughout Childhood
2012 Survey Results: Living with 47,XXX
Trisomy X Syndrome: An Overview
Promoting Good Health in Adults with XXY
IEP and 504 Plans for Students with X and Y Variations
2012 Survey Results: Living with 47,XXY
Development and Behavior in Children with X&Y Chromosome Variations
47,XXY: An Overview of What We Know
ADHD in X and Y Chromosome Variations
AXYS Association for X and Y Chromosome Variations – Introductory Video
Progress We Made and Challenges Ahead
Testosterone Replacement Therapy in Adolescents and Adults
Auditory Processing and My Child with an X/Y Chromosome Variation
Disclosing the Diagnosis
Your Child with 47,XXY: What to Expect During Puberty
The Cognitive and Behavioral Phenotype Of 47,XXY And 47,XXX
X&Y Chromosome Variations from Birth to Age 5
Understanding Communication Disorders
Klinefelter Syndrome – Developments in Research Regarding Infertility
Dr. David Hong Reads Gregory and his Extra X
Epidemiology of Sex Chromosome Abnormalities
Risk for Early Ovarian Failure in Girls with Trisomy X Syndrome
47,XXY Fertility
The NIH Study on X and Y Chromosome Variations
Disclosing the Diagnosis in X and Y Variations
Social and Emotional Functioning in Children with Klinefelter Syndrome
Testosterone Therapy in Adolescents and Young Adults with 47,XXY
Infants and Children with Klinefelter Syndrome: Hormones and Development
Research Aims: TRIXY National Center of Expertise
Making Medication Decisions The Biology of Sexual Orientation and Gender Identity
2017 Aurora, CO Conference Keynote Address
Gene Function, Brain Development and Behavior Brains, Genes, & Puberty: Testosterone Replacement in XXY
The NIMH Study on X & Y Chromosome Variations
Understanding the ABCs of Behavior in Children
Erin Torres Reads Elizabeth and her Extra X
47,XXY: Hormonal Manipulation and Preservation of Fertility
Growth and Development in XYY Boys
Transition to Adulthood
Metabolic Syndrome in X and Y Variations
Fertility in X & Y Chromosomes Variations 2018
Sex And Gender: What the Data Tells Us About Klinefelter Syndrome
Online Safety for Individuals with X & Y Variations
eXtraordinarY Kids Research in Colorado
Engaging the X & Y Chromosome Variation Community in Research
Reprise: Adults with XXY
The Neuropsychological Evaluation and What It Can Tell Parents
Secondary copy number variants in people with a sex chromosome trisomy
Environmental Factors and Individuals with an Extra X Chromosome
Dr. Nicole Tartaglia Reads Kyle and His Extra X and Extra Y
Health and Fitness in X & Y Variations
Government Benefits for Adults with Extra X & Y Chromosomes (2017)
Introduction + Presentation: Fertility in Klinefelter syndrome
Closing Remarks and Summary of Presentations (2007)
Independent Living: Life After High School
Streams of Development and Behavior in XXY
College for those with learning differences in the X & Y variation community
Parental Advocacy for Children with Sex Chromosome Aneuploidies
Successful Strategies for Home and Community Participation
Dr. Lilian Cohen Reads Jack and his Extra Y
Transition to Adulthood
Psychiatric and Neurodevelopmental Comorbidities in XXY
Understanding Executive Functions
Navigating the Mental Health System: A Guide to Treatment Options
Anxiety about COVID: Developing Resilience During a Pandemic
Behavior Problems, Temper Tantrums, Meltdowns and Outbursts
What Parents Need to Know About Their Child’s Development
Understanding Language Development and Interventions
Social Skill Challenges, Toddlers to Teens
Auditory Processing in Children With X and Y Chromosome Variations
How to Talk to Your Child About His/Her Diagnosis
Is There Androgen Deficiency in Childhood in Boys with 47,XXY?
Welcome to the 2019 AXYS Family Conference
Sex Chromosome Variation: Genes, Environment, Brain and Behavior
X&Y Chromosome Variations & Immune System Health
Neurodevelopmental and Medical Risks: X&Y Chromosome Variations
Executive Functioning: How to Help Children with Challenging Behavior
X&Y Chromosome Variation – New Views from Brain Imaging
The eXtraordinarY Kids Clinic
A Roadmap for Advancing Knowledge and Clinical Practices (BGAP Study)
AXYS Performance Event
Androgen Therapy for Male Adolescents
Heart Health in People with Klinefelter Syndrome
Executive functioning in adolescents with XXY: Results from the BGAP Study
Seizure Management in X and Y Chromosome Variations
New Directions in Translational Research (2007)
Medications for Behavioral and Emotional Challenges in Children and Adolescents
Educational Q&A – School’s out! Now what?
How Research Can Benefit Families and Patients
Intro + Presentation: Testosterone treatment in Klinefelter syndrome
Reprise: Adults with XXY
Intro + Presentation: Early Intervention for Young Children with X&Y Variations
Government Benefits for Adults with X and Y Chromosome Variations (2015)
Meet the AXYS Board of Directors
AXYS Executive Director Carol Meerschaert talks about our 2021 Virtual Family Conference
Planning and Preparedness: Coping with Adversity and Crisis
Clinical Trials in X and Y Variations: Doing Research that Matters
What is Testosterone? What is TRT?
Growing Sperm in Nude Mice – From A Futuristic Dream to Reality
Speech-Language Intervention: Goals and Expectations
Living With Loss and Grief
The Journey Through the Educational Process
Neurodevelopment from Birth to Young Adulthood in X&Y Chromosome Variations (2015)
Intro + Presentation: Conversation Skills for Adults
Working the Room: Advocacy You Can Use
Research Updates in X&Y Chromosome Variations (2013)
Emotional Regulation
Sensory Processing Challenges and Participation in Home and School Activities
Legal and Law Enforcement Issues For Adolescents and Adults
A Students Right: Tuition Reimbursement for Private School
Latest findings & future plans from the NIMH study of X/Y chromosome variations (2021)
How Did This Happen? Genetics 101
Endocrine Issues Related to X&Y Chromosome Variations
Depression: Diagnosis & Treatment in Persons w/ X/Y Variation
Tools for Teaching Social Boundaries to Tweens, Teens, and Young Adults
Intro + Presentation: Physical Function, Psychosocial Health, QOL in XXYY Individuals
2015 State of the Science: Updates in X&Y Chromosome Variation Research
Synchrony of Literacy Development Among Individuals with an Extra X Chromosome
Fertility and Ovary Function in Trisomy X
Work Incentives for People with Disability Benefits
Practical Solutions for eXtraordinarY Circumstances (Part 1 of 2)
Prenatal testing for X&Y Variations (Extended Presentation)
How to Talk to Your Child about His or Her Diagnosis
Roadmap to Research
Supporting the Development of Planning and Organizational Skills
Introduction to the Americans with Disabilities Act
Learning Problems: Viewed Through a Life Course Lens
Patterns of Mental Health Risk in X/Y Variations
2013 AXYS Family Conference Interviews
Occupational Therapy Treatment
When Others Don’t Get It: Looking into the Future for X&Y Chromosome Variations
Whole Genome Sequencing and Genetic Counseling for X&Y Variations at NIH
Behavioral Considerations for X&Y Chromosome Differences
Special Education and Disability Advocacy: Sooner, Not Later
Introduction to the new Clinical Registry, GALAXY
Strategic Planning and Resources for Crisis Prevention and Intervention
Can We Direct Spermatogonia Toward Normal Development?
Resources and What You Need to Know (Government Programs and Services)
Intro + Presentation: Coping with Anxiety Disorder
Practical Solutions for eXtraordinarY Circumstances (Part 2 of 2)
Literacy Development Among Individuals with X&Y Chromosome Variations
Intro + Presentation: Transition from pediatric to adult-oriented medical care
Promoting Language and Learning: Children with X&Y Chromosomal Variations
A Synchrony of Literacy Development Among Individuals with an Extra X Chromosome (Part 2)
Prenatal testing for X&Y Variations Q&A
Josh Griffin
B. Michelle Schweiger, DO, MPH
Nicole Tartaglia, MD
David Wright, Zell Lundberg, and David Davis
Allan Reiss, MD
Kyle Boone, PhD, ABPP-ABCN
Drs. Marit Bierman
Drs. Marit Bierman
Peter J. Stahl, MD
Nicole Tartaglia, MD
Adrian Dobs, MD, MHS
Rodolfo Rey, MD
Rebecca Wilson, PsyD
Jay Newmark, MD
Peter Schlegel, MD
Nicole Tartaglia, MD
Sharon Close, CPNP-PC and Ilene Fennoy, MD
Jeannie Visootsak, MD
Nancy Lazerson, MA, CCC-SLP
Erin Torres, MSN, CRNP
Tracy Prout, PhD
David W. Cooke, MD
Virginia Cover, MSW
Nicole Tartaglia, MD and Susan Howell, MS, MBA, CGC
Adrian Dobs, MD, MHS
Peter Wright, Esq
Virginia Cover, MSW
Nicole Tartaglia, MD
Philip Zeitler, MD
Nicole Tartaglia, MD and Natalie Ayari
Jay Lucker, EDD, CCC-A/SLP, FAAA
Susan Howell, MS, MBA, CGC
Ilene Fennoy, MD
Sophie van Rijn, PhD
Nicole Tartaglia, MD
Matt McKeon, MS, CCC-SLP
Peter Schlegel, MD
David Hong, MD
Claus Gravholt, MD, PhD
Nicole Tartaglia, MD, MSCS, Shanlee Davis, MD, PhD, and Susan Howell, CGC, MS, MBA
Pravin Rao, MD
Armin Raznahan, MD, PhD
Susan Howell MS, CGC, MBA
Lara Foland-Ross, PhD and Allan Reiss, MD
Phillip S. Zeittler, MD, PhD
Ilene Fennoy, MD
Sophie van Rijn, PhD
Nicole Tartaglia, MD
Eric Vilain, MD, PhD and Cisco Sanchez, MD
Nicole Tartaglia, MD and Sharron Close, PhD, MS, CPNP-PC
Armin Raznahan, MD, PhD
Allan Reiss, MD & Vanessa Alschuler
Armin Raznahan, MD, PhD
Elizabeth Coan, PsyD
Erin Torres, MSN, CRNP
Rodolfo Rey, MD
Cory Nourie, MSS, MLSP
B. Michelle Schweiger, DO, MPH
Hooman Sadri-Ardekani, MD, PhD and Stanley Kogan, MD
Al Rogol, MD and Sharron Close, PhD, MS, CPNP-PC
Larry Dubin, JD
Nicole Tartaglia, MD
Nicole Tartaglia, MD and Shanlee Davis, MD, PhD
David Wright
David Marcus, PhD
Hayley Mountford, PhD
Sophie van Rijn, PhD
Nicole Tartaglia, MD
Shanlee Davis, MD, PhD
Virginia Cover, MSW
Peter Schlegel, MD
Sharon Heller
Jeannie Visootsak, MD
Rachel Masson and Ferne Bork
Jordan P. Richardson
Audrey Zapletal, MS, OTRL
Lilian Cohen, MD, MPH
Cory Nourie, MSS, MLSP
Erin Torres, MSN, CRNP and Srishti Rau, PhD
ennifer Janusz, PsyD
David Hong, MD
David Hong, MD
About Karen Riley, PhD
Amy Talboy, MD
Jacqueline Frazier, MA, CCC-SLP
Rebecca Wilson, PsyD
Jay Lucker, EDD, CCC-A/SLP, FAAA
Nicole Tartaglia, MD and Rebecca Wilson, PsyD
Judith Ross, MD
Carol Meerschaert
Allan Reiss, MD
Ram Raj Singh, MD
Nicole Tartaglia, MD
Lisa Jacobson, PhD
Jay Giedd, MD
Nicole Tartaglia, MD
Allan Reiss, MD
Michael Palumbo
Alan Rogol, MD, PhD
Frances High, MD, PhD
Vanessa Alschuler
Elizabeth Berry-Kravis, MD, PhD
Nicole Tartaglia, MD
Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA, Dorothy Boothe, PhD and Erin Frith, MEd
Rebecca Wilson, PsyD
Claus H. Gravholt, MD, PhD
Zell Lundberg
Talia Thompson, PhD
Virginia Cover, MSW
Carol Meerschaert
Rhesia-Maria Ochoa
Shanlee Davis, MD, PhD
Shanlee Davis, MD, PhD
Alex Travis, VMD, PhD
Jackie Frazier, MA, CCC-SLP
Lori Earl
Karen Riley, PhD
Nicole Tartaglia, MD
Jasper Estabillo, PhD
Sharron Close, PhD, MS, CPNP-PC and Dorothy Boothe, PhD
Nicole Tartaglia, MD, Sharron Close, PhD, MS, CPNP-PC, Ram Raj Singh, MD, and Jay Giedd, MD
Leela Morrow, PsyD
Audrey L. Zapletal, MS, OTR/L
Phyllis Quatman and Gary Glissman
Tom Davis, Esq
Armin Raznahan, MD, PhD
Susan Howell, MS, MBA, CGC
Philip Zeitler, MD
Allan Reiss, MD
Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA
Amy A. Blumling, PhD, CPNP-PC
Panel Discussion
Mina Avery, MEd
Shanlee Davis, MD, PhD
David Mitchell
Rebecca Wilson, PsyD
Rama Kastury, DO
Nicole Tartaglia, MD, Susan Howell, MS, MBA, CGC, Aaron Bornstein and Hillary Ellis
Sharron Close, PhD, MS, CPNP-PC, FAAN
Christa Hutaff-Lee, PhD
David Knight, Esq
Sheryl Rimrodt-Frierson, MD
Srishti Rau, PhD
Various
Sydney Martin, MS, OTR
Sharron Close, PhD, MS, CPNP-PC, FAAN
Michael Setzer, ScM, CGC
Rebecca Wilson, PsyD, E.G. Bozorgpour, PhD, and Jamie Blume, PsyD
Stephanie James, JD
Shanlee Davis, MD, PhD and Susan Howell, MS, MBA, CGC
R. Maria Ochoa, LCSW
Paula Cohen, PhD
R. Maria Ochoa, LCSW
David Hong, MD
Rebecca Wilson, PsyD
Donald Bear, PhD and Mina Avery, MEd
Andrew Dwyer, PhD, FNP-BC, FNAP, FAAN
Natalia A. Krum, BCBA
Mina Avery, MEd
Rama Kastury, DO
Videos
Video | Speaker(s) | Relevant Variation |
---|---|---|
An Interview with Josh Griffin: His Experience with 47,XXY | Josh Griffin | XXY |
Metabolic Issues in XXY | B. Michelle Schweiger, DO, MPH | XXY |
Medical Problems and Medical Follow-Up in XXYY Syndrome | Nicole Tartaglia, MD | XXYY |
Adults’ Perspective on 47,XXY | David Wright, Zell Lundberg, and David Davis | XXY |
Brain Development in Klinefelter Syndrome | Allan Reiss, MD | XXY |
Cognition in Klinefelter Syndrome | Kyle Boone, PhD, ABPP-ABCN | XXY |
The Impact of Triple X Syndrome on Psychological Functioning | Drs. Marit Bierman | Trisomy X |
Getting Through the Day: The Impact of Klinefelter Syndrome on Psychological Functioning | Drs. Marit Bierman | XXY |
Clinical Characteristics and Modern Model of Management | Peter J. Stahl, MD | XXY |
Health and Development in Trisomy X Syndrome | Nicole Tartaglia, MD | Trisomy X |
Testosterone Treatment of Adult Men with 47,XXY | Adrian Dobs, MD, MHS | XXY |
Growth and Development in XXYY Boys | Rodolfo Rey, MD | XXYY |
Trisomy X Panel and Q&A | Rebecca Wilson, PsyD | Trisomy X |
Testosterone Replacement Therapy in Adult Males | Jay Newmark, MD | XXY |
Infertility Treatment for Men with 47,XXY | Peter Schlegel, MD | XXY |
Medical Problems and Medical Follow-up in XYY Syndrome | Nicole Tartaglia, MD | XYY |
Quality of Life and Testosterone in Klinefelter Syndrome | Sharon Close, CPNP-PC and Ilene Fennoy, MD | XXY |
Health and Development in XYY | Jeannie Visootsak, MD | XYY |
Speech and Language Deficits in Klinefelter Syndrome | Nancy Lazerson, MA, CCC-SLP | XXY |
Mental Health: Issues and Challenges in XYY | Erin Torres, MSN, CRNP | XYY |
How to Keep Your Cool Around Disruptive Behaviors | Tracy Prout, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The Endocrinology of Klinefelter Syndrome Throughout Childhood | David W. Cooke, MD | XXY |
2012 Survey Results: Living with 47,XXX | Virginia Cover, MSW | Trisomy X |
Trisomy X Syndrome: An Overview | Nicole Tartaglia, MD and Susan Howell, MS, MBA, CGC | Trisomy X |
Promoting Good Health in Adults with XXY | Adrian Dobs, MD, MHS | XXY |
IEP and 504 Plans for Students with X and Y Variations | Peter Wright, Esq | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
2012 Survey Results: Living with 47,XXY | Virginia Cover, MSW | XXY |
Development and Behavior in Children with X&Y Chromosome Variations | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
47,XXY: An Overview of What We Know | Philip Zeitler, MD | XXY |
ADHD in X and Y Chromosome Variations | Nicole Tartaglia, MD and Natalie Ayari | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Association for X and Y Chromosome Variations - Introductory Video | AXYS | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Auditory Processing and My Child with an X/Y Chromosome Variation | Jay Lucker, EDD, CCC-A/SLP, FAAA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Disclosing the Diagnosis | Susan Howell, MS, MBA, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Your Child with 47,XXY: What to Expect During Puberty | Ilene Fennoy, MD | XXY |
The Cognitive and Behavioral Phenotype Of 47,XXY And 47,XXX | Sophie van Rijn, PhD | XXY, Trisomy X |
X&Y Chromosome Variations from Birth to Age 5 | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Understanding Communication Disorders | Matt McKeon, MS, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Klinefelter Syndrome - Developments in Research Regarding Infertility | Peter Schlegel, MD | XXY |
Dr. David Hong Reads Gregory and his Extra X | David Hong, MD | XXY |
Epidemiology of Sex Chromosome Abnormalities | Claus Gravholt, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Risk for Early Ovarian Failure in Girls with Trisomy X Syndrome | Nicole Tartaglia, MD, MSCS, Shanlee Davis, MD, PhD, and Susan Howell, CGC, MS, MBA | Trisomy X |
47,XXY Fertility | Pravin Rao, MD | XXY |
The NIH Study on X and Y Chromosome Variations | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Disclosing the Diagnosis in X and Y Variations | Susan Howell MS, CGC, MBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Social and Emotional Functioning in Children with Klinefelter Syndrome | Lara Foland-Ross, PhD and Allan Reiss, MD | XXY |
Testosterone Therapy in Adolescents and Young Adults with 47,XXY | Phillip S. Zeittler, MD, PhD | XXY |
Infants and Children with Klinefelter Syndrome: Hormones and Development | Ilene Fennoy, MD | XXY |
Research Aims: TRIXY National Center of Expertise | Sophie van Rijn, PhD | XXY, XYY, Trisomy X |
Making Medication Decisions | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The Biology of Sexual Orientation and Gender Identity | Eric Vilain, MD, PhD and Cisco Sanchez, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
2017 Aurora, CO Conference Keynote Address | Nicole Tartaglia, MD and Sharron Close, PhD, MS, CPNP-PC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Gene Function, Brain Development and Behavior | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Brains, Genes, & Puberty: Testosterone Replacement in XXY | Allan Reiss, MD & Vanessa Alschuler | XXY |
The NIMH Study on X & Y Chromosome Variations | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Understanding the ABCs of Behavior in Children | Elizabeth Coan, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Erin Torres Reads Elizabeth and her Extra X | Erin Torres, MSN, CRNP | Trisomy X |
Growth and Development in XYY Boys | Rodolfo Rey, MD | XYY |
Transition to Adulthood | Cory Nourie, MSS, MLSP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Metabolic Syndrome in X and Y Variations | B. Michelle Schweiger, DO, MPH | XXY |
Fertility in X & Y Chromosomes Variations 2018 | Hooman Sadri-Ardekani, MD, PhD and Stanley Kogan, MD | XXY |
Sex And Gender: What the Data Tells Us About Klinefelter Syndrome | Al Rogol, MD and Sharron Close, PhD, MS, CPNP-PC | XXY |
Online Safety for Individuals with X & Y Variations | Larry Dubin, JD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
eXtraordinarY Kids Research in Colorado | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Engaging the X & Y Chromosome Variation Community in Research | Nicole Tartaglia, MD and Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Reprise: Adults with XXY | David Wright | XXY |
The Neuropsychological Evaluation and What It Can Tell Parents | David Marcus, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Secondary copy number variants in people with a sex chromosome trisomy | Hayley Mountford, PhD | XXY, XYY, Trisomy X |
Environmental Factors and Individuals with an Extra X Chromosome | Sophie van Rijn, PhD | XXY, Trisomy X |
Dr. Nicole Tartaglia Reads Kyle and His Extra X and Extra Y | Nicole Tartaglia, MD | XXYY |
Health and Fitness in X & Y Variations | Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Government Benefits for Adults with Extra X & Y Chromosomes (2017) | Virginia Cover, MSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Introduction + Presentation: Fertility in Klinefelter syndrome | Peter Schlegel, MD | XXY |
Independent Living: Life After High School | Sharon Heller | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Streams of Development and Behavior in XXY | Jeannie Visootsak, MD | XXY |
College for those with learning differences in the X & Y variation community | Rachel Masson and Ferne Bork | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Parental Advocacy for Children with Sex Chromosome Aneuploidies | Jordan P. Richardson | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Successful Strategies for Home and Community Participation | Audrey Zapletal, MS, OTRL | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Dr. Lilian Cohen Reads Jack and his Extra Y | Lilian Cohen, MD, MPH | XYY |
Transition to Adulthood | Cory Nourie, MSS, MLSP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Psychiatric and Neurodevelopmental Comorbidities in XXY | Erin Torres, MSN, CRNP and Srishti Rau, PhD | XXY |
Understanding Executive Functions | ennifer Janusz, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Navigating the Mental Health System: A Guide to Treatment Options | David Hong, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Anxiety about COVID: Developing Resilience During a Pandemic | David Hong, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Behavior Problems, Temper Tantrums, Meltdowns and Outbursts | Karen Riley, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
What Parents Need to Know About Their Child's Development | Amy Talboy, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Understanding Language Development and Interventions | Jacqueline Frazier, MA, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Social Skill Challenges, Toddlers to Teens | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Auditory Processing in Children With X and Y Chromosome Variations | Jay Lucker, EDD, CCC-A/SLP, FAAA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How to Talk to Your Child About His/Her Diagnosis | Nicole Tartaglia, MD and Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Is There Androgen Deficiency in Childhood in Boys with 47,XXY? | Judith Ross, MD | XXY |
Welcome to the 2019 AXYS Family Conference | Carol Meerschaert | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Sex Chromosome Variation: Genes, Environment, Brain and Behavior | Allan Reiss, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
X&Y Chromosome Variations & Immune System Health | Ram Raj Singh, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Neurodevelopmental and Medical Risks: X&Y Chromosome Variations | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Executive Functioning: How to Help Children with Challenging Behavior | Lisa Jacobson, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
X&Y Chromosome Variation - New Views from Brain Imaging | Jay Giedd, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The eXtraordinarY Kids Clinic | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
A Roadmap for Advancing Knowledge and Clinical Practices (BGAP Study) | Allan Reiss, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Performance Event | Michael Palumbo | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Androgen Therapy for Male Adolescents | Alan Rogol, MD, PhD | XXY |
Heart Health in People with Klinefelter Syndrome | Frances High, MD, PhD | XXY |
Executive functioning in adolescents with XXY: Results from the BGAP Study | Vanessa Alschuler | XXY |
Seizure Management in X and Y Chromosome Variations | Elizabeth Berry-Kravis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Medications for Behavioral and Emotional Challenges in Children and Adolescents | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Educational Q&A - School's out! Now what? | Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA, Dorothy Boothe, PhD and Erin Frith, MEd | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How Research Can Benefit Families and Patients | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Testosterone treatment in Klinefelter syndrome | Claus H. Gravholt, MD, PhD | XXY |
Reprise: Adults with XXY | Zell Lundberg | XXY |
Intro + Presentation: Early Intervention for Young Children with X&Y Variations | Talia Thompson, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Government Benefits for Adults with X and Y Chromosome Variations (2015) | Virginia Cover, MSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Meet the AXYS Board of Directors | Various | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
AXYS Executive Director Carol Meerschaert talks about our 2021 Virtual Family Conference | Carol Meerschaert | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Planning and Preparedness: Coping with Adversity and Crisis | Rhesia-Maria Ochoa | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Clinical Trials in X and Y Variations: Doing Research that Matters | Shanlee Davis, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
What is Testosterone? What is TRT? | Shanlee Davis, MD, PhD | XXY |
Growing Sperm in Nude Mice - From A Futuristic Dream to Reality | Alex Travis, VMD, PhD | XXY |
Speech-Language Intervention: Goals and Expectations | Jackie Frazier, MA, CCC-SLP | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Living With Loss and Grief | Lori Earl | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
The Journey Through the Educational Process | Karen Riley, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Neurodevelopment from Birth to Young Adulthood in X&Y Chromsome Variations (2015) | Nicole Tartaglia, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Conversation Skills for Adults | Jasper Estabillo, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Working the Room: Advocacy You Can Use | Sharron Close, PhD, MS, CPNP-PC and Dorothy Boothe, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Research Updates in X&Y Chromosome Variations (2013) | Nicole Tartaglia, MD, Sharron Close, PhD, MS, CPNP-PC, Ram Raj Singh, MD, and Jay Giedd, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Emotional Regulation | Leela Morrow, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Sensory Processing Challenges and Participation in Home and School Activities | Audrey L. Zapletal, MS, OTR/L | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Legal and Law Enforcement Issues For Adolescents and Adults | Phyllis Quatman and Gary Glissman | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
A Student’s Right: Tuition Reimbursement for Private School | Tom Davis, Esq | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Latest findings & future plans from the NIMH study of X/Y chromosome variations (2021) | Armin Raznahan, MD, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How Did This Happen? Genetics 101 | Susan Howell, MS, MBA, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Endocrine Issues Related to X&Y Chromosome Variations | Philip Zeitler, MD | XXY |
Depression: Diagnosis & Treatment in Persons w/ X/Y Variation | Allan Reiss, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Tools for Teaching Social Boundaries to Tweens, Teens, and Young Adults | Hannah Acevedo-Schiesel MS, LEP, ABSNP, BCBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Physical Function, Psychosocial Health, QOL in XXYY Individuals | Amy A. Blumling, PhD, CPNP-PC | XXYY |
2015 State of the Science: Updates in X&Y Chromosome Variation Research | Panel Discussion | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Synchrony of Literacy Development Among Individuals with an Extra X Chromosome | Mina Avery, MEd | XXY, Trisomy X, XXYY, XXXY, Other Variations |
Fertility and Ovary Function in Trisomy X | Shanlee Davis, MD, PhD | Trisomy X |
Work Incentives for People with Disability Benefits | David Mitchell | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Practical Solutions for eXtraordinarY Circumstances (Part 1 of 2) | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Prenatal testing for X&Y Variations (Extended Presentation) | Rama Kastury, DO | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
How to Talk to Your Child about His or Her Diagnosis | Nicole Tartaglia, MD, Susan Howell, MS, MBA, CGC, Aaron Bornstein and Hillary Ellis | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Roadmap to Research | Sharron Close, PhD, MS, CPNP-PC, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Supporting the Development of Planning and Organizational Skills | Christa Hutaff-Lee, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Introduction to the Americans with Disabilities Act | David Knight, Esq | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Learning Problems: Viewed Through a Life Course Lens | Sheryl Rimrodt-Frierson, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Patterns of Mental Health Risk in X/Y Variations | Srishti Rau, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
2013 AXYS Family Conference Interviews | Various | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Occupational Therapy Treatment | Sydney Martin, MS, OTR | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
When Others Don't Get It: Looking into the Future for X&Y Chromosome Variations | Sharron Close, PhD, MS, CPNP-PC, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Whole Genome Sequencing and Genetic Counseling for X&Y Variations at NIH | Michael Setzer, ScM, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Behavioral Considerations for X&Y Chromosome Differences | Rebecca Wilson, PsyD, E.G. Bozorgpour, PhD, and Jamie Blume, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Special Education and Disablility Advocacy: Sooner, Not Later | Stephanie James, JD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Introduction to the new Clinical Registry, GALAXY | Shanlee Davis, MD, PhD and Susan Howell, MS, MBA, CGC | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Strategic Planning and Resources for Crisis Prevention and Intervention | R. Maria Ochoa, LCSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Can We Direct Spermatogonia Toward Normal Development? | Paula Cohen, PhD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Resources and What You Need to Know (Government Programs and Services) | R. Maria Ochoa, LCSW | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Coping with Anxiety Disorder | David Hong, MD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Practical Solutions for eXtraordinarY Circumstances (Part 2 of 2) | Rebecca Wilson, PsyD | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Literacy Development Among Individuals with X&Y Chromosome Variations | Donald Bear, PhD and Mina Avery, MEd | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Intro + Presentation: Transition from pediatric to adult-oriented medical care | Andrew Dwyer, PhD, FNP-BC, FNAP, FAAN | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Promoting Language and Learning: Children with X&Y Chromosomal Variations | Natalia A. Krum, BCBA | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
A Synchrony of Literacy Development Among Individuals with an Extra X Chromosome (Part 2) | Mina Avery, MEd | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Prenatal testing for X&Y Variations Q&A | Rama Kastury, DO | XXY, XYY, XXYY, Trisomy X, XXXY, Other Variations |
Conference and webinar presenters share their professional and personal opinions and experiences. These opinions and experiences are the presenters’ own and do not necessarily represent the AXYS organization.