Helpline: 1‑267‑338‑4262 |Β helpline@genetic.org
AXYS - The Association for X&Y Chromosome Variations
Helpline: 1‑267‑338‑4262 | info@genetic.org

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AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).

“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.

This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.

This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.

You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”

“Thank you for your consideration and we look forward to seeing everybody Friday night!”

– Rob & Jamie Lee
AXYS Rocky Mountain Support Group

2025-06-01T21:27:58-04:00Categories: |

Living with Trisomy X: An β€œAsk Anything” Call for Families and Individuals

Register here

Join us for a welcoming and open Zoom call designed for families, caregivers, and individuals living with Trisomy X. Whether you’re newly navigating this diagnosis or have years of experience, this is a non-judgemental and supportive space to connect, share, ask questions, and learn from each other. We’ll talk about real-life experiences, challenges, and helpful strategies related to development, education, health, emotional wellbeing and daily life.

Come as you are – ask anything, or just listen in.

We look forward to seeing you!

2025-04-18T15:03:57-04:00Categories: |

Testosterone Effects on Short-Term Physical, Hormonal, and Neurodevelopmental Outcomes (TESTO) in Infants with 47,XXY

Article Title: Testosterone Effects on Short-Term Physical, Hormonal, and Neurodevelopmental Outcomes (TESTO) in Infants with 47,XXY

Authors: Davis, Howell, Janusz, Lahlou, Reynolds, Thompson, Swenson, Wilson, Ross, Zeitler, and Tartaglia

Date of Publication: April 3, 2025

“In this double-blind randomized controlled trial in infants with XXY, testosterone injections resulted in physical effects attributable to systemic androgen exposure, however this dose suppressed the hypothalamic-pituitary-gonadal axis. Neurodevelopment outcomes were not impacted by treatment. These results do not support routine testosterone treatment in infants with XXY, however long term follow up on physical health, neurodevelopment and testicular function is needed.”

Read more

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).

“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.

This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.

This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.

You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”

“Thank you for your consideration and we look forward to seeing everybody Friday night!”

– Rob & Jamie Lee
AXYS Rocky Mountain Support Group

2025-04-11T12:15:29-04:00Categories: |

AXYS Community Monthly Open House

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver

This gathering will happen on the 3rd Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).

“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.

This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.

This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.

You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”

“Thank you for your consideration and we look forward to seeing everybody Friday night!”

– Rob & Jamie Lee
AXYS Rocky Mountain Support Group

2025-04-11T12:08:12-04:00Categories: |

AXYS Monthly Drop-in Chat

AXYS Monthly Drop-in Chat

1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT)

All variations, parents and adults welcome. Hosted by Ginnie Cover.

Register for the next meeting on Zoom


About these meetings

For security reasons, we ask that you please register in advance for each meeting. We apologize for this inconvenience.

AXYS Monthly Drop-in Chats are meeting spaces for anyone 18 and up with any X and/or Y variation and for parents of children with one of these variations!

Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges.

Your privacy is very important to us. AXYS will not record any of these meetings and we ask that you please respect the privacy of other attendees. We also ask that you abide by the AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/

This meeting is not intended to be therapy and should not be used as a substitute for the services of a mental health professional.

AXYS Monthly Drop-in Chat

2025-06-05T14:59:31-04:00Tags: |
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