Videos

2017 AXYS Family Conference Presentations


Presentation Slides (in PDF format)

Presenter Presentation
Cory Nourie, MSS MLSP Transition to Adulthood 
Sharon Heller Life After High School: Preparing Students with Learning Differences for Transition
Liz Coan, PsyD Understanding the ABCs of Behavior in Children
Alan D. Rogol, MD PhD Testosterone Therapy for Adolescents/Adults with Sex Chromosome Aneuploidies: What’s Available and What’s New?
Elizabeth Berry-Kravis, MD PhD Seizures and Tremor
Akanksha Mehta, MD MS Male Fertility in X and Y Variations: Current State-of-the-Art and Future Implications
Brenda Finucane, MS, LGC Family Genetic Background Contributes to Phenotypic Variability in Sex Chromosome Variations and Other Neurodevelopmental Conditions
Bahareh Michelle Schweiger, DO, MPH Metabolic Syndrome in 47,XXY
Virginia Isaacs Cover, MSW, MBA Government Benefits: Special Considerations for Adolescents and Adults with Extra X and Y Chromosomes
Kimberly Kuiper, MSc & Nienke Bouw, MSc Socio-emotional Functioning of Children with Sex Chromosome Trisomies: A Focus on Emotion Regulation
Sheryl K. Kelly and Gary Glissman Legal Issues and Challenges
Jeanine Coleman, PhD A Model for Assessment Accommodations for Individuals with Intellectual and Developmental Disabilities 
Nicole Tartaglia, MD Making Medication Decisions & Strategies to Set and Monitor Treatment Goals
Susan Howell, MS CGC MBA Disclosing the Diagnosis
Sharron Close, PhD, MS, CPNP-PC, FAAN Patient-Centered Approaches to Research Pathways
Armin Raznahan MD PhD Gene Function, Brain Development, and Behavior in X & Y Chromosome Variations
Sharron Close, PhD, MS, CPNP-PC, FAAN & Dorothy Boothe, PhD Working the Room: Advocacy You Can Use
Alan Reiss, MD Brain And Behavioral Development In Klinefelter Syndrome
Erin Torres, Nurse Practitioner Issues and Challenges in XYY Syndrome
Rebecca Wilson, PsyD and others Triple X Syndrome
Jennifer A. Janusz, Psy.D., ABPP-Cn Understanding Executive Functions
Karen Riley, PhD IEP and 504 Accommodations
Shanlee Davis, MD, MSCS Thinking About Starting Testosterone for XXY/XXYY/XXXY
Hooman Sadri-Ardekani, MD, Phd Early Male Fertility Preservation Program for X&Y Variations