Helpline: 1‑267‑338‑4262 | info@genetic.org
AXYS - The Association for X&Y Chromosome Variations
Helpline: 1‑267‑338‑4262 | info@genetic.org

Events for July 9 - May 5

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CANCELLED: NEXXYS/New England Support Group Meeting

Zoom

EVENT CANCELLED - NEW DATE AND TIME TO BE ANNOUNCED One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

AXYS Trisomy X Retreat (Ages 16+)

Join the Trisomy X Community in Salem, MA for fun and fellowship! The retreat officially kicks off with the Meet & Greet beginning at 10am on Saturday, May 4th! More information to come! REGISTER HERE ACCOMMODATIONS At the nearby Hampton Inn Salem Boston, both Friday, May 3 and Saturday, May 4 have a reduced rate of $179 a night with a $15 fee for parking overnight. To book your room at this reduced rate, you must do so by Monday, April 1st. Booking Link: https://www.hilton.com/en/book/reservation/deeplin... FUNDRAISER Please help everyone that is interested attend this retreat by contributing to our Trisomy X Retreat Fundraiser!

Free

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

New York Metro/Mid-Atlantic Support Group Meeting

Zoom

REGISTER HERE One in a series of online meetings hosted by Ginnie Cover where she will discuss and answer questions about the following topics: • Transition to Adulthood for Individuals with X and Y Variations, a new consensus document developed and written by Dorothy Boothe and Ginnie Cover • Her upcoming book about a young family confronting the reality of a prenatal Klinefelter syndrome diagnosis, Supplemental Needs: A Novel • The GALAXY registry (Generating Advancements in Longitudinal Analysis in X&Y Chromosome Variations), a repository of demographic and medical data

Trisomy X Parent Support Group Meeting

Zoom

Register here Thank you for signing up! We are happy that you have decided to join us for an informal chat with other families of children with Trisomy X. Please remember that our support calls provide an open space for families to connect, ask questions, and share experiences in a safe and non-judgmental environment. Your mindful participation contributes to creating a supportive community for everyone involved. We look forward to seeing you!

AXYS Chat Pop-in

Zoom

1st and 3rd Fridays of the Month | 1-3pm Eastern Time Start time in other regions: 12pm Central | 11am Mountain | 10am Pacific Register for the next meeting on Zoom AXYS Chat Pop-ins are meeting spaces for anyone 18 and up with any X and/or Y variation! We would like to stress that these meetings are intended ONLY for those with an X/Y variation. Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges. Think of it as a room with an open-door policy; come to whatever meetings you want; come and go as you please within the 2-hour time period. Your privacy is very important to us. AXYS will not record any of these meetings and we ask that you please respect the privacy of other attendees. We also ask that you abide by the AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/ This meeting is not intended to be therapy and should not be used as a substitute for the services of a mental health professional.

AXYS Florida Meetup

Florida Meetup Location 1344 S Apollo Blvd, Melbourne, FL, United States

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

AXYS Chat Pop-in

Zoom

1st and 3rd Fridays of the Month | 1-3pm Eastern Time Start time in other regions: 12pm Central | 11am Mountain | 10am Pacific Register for the next meeting on Zoom AXYS Chat Pop-ins are meeting spaces for anyone 18 and up with any X and/or Y variation! We would like to stress that these meetings are intended ONLY for those with an X/Y variation. Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges. Think of it as a room with an open-door policy; come to whatever meetings you want; come and go as you please within the 2-hour time period. Your privacy is very important to us. AXYS will not record any of these meetings and we ask that you please respect the privacy of other attendees. We also ask that you abide by the AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/ This meeting is not intended to be therapy and should not be used as a substitute for the services of a mental health professional.

AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

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