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AGREEMENT BETWEEN USER AND AXYS

The AXYS Web Site is comprised of various Web pages operated by AXYS.

The AXYS Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices contained herein. Your use of the AXYS Web Site constitutes your agreement to all such terms, conditions, and notices.

MODIFICATION OF THESE TERMS OF USE

AXYS reserves the right to change the terms, conditions, and notices under which the AXYS Web Site is offered, including but not limited to the charges associated with the use of the AXYS Web Site.

LINKS TO THIRD PARTY SITES

The AXYS Web Site may contain links to other Web Sites (“Linked Sites”). The Linked Sites are not under the control of AXYS and AXYS is not responsible for the contents of any Linked Site, including without limitation any link contained in a Linked Site, or any changes or updates to a Linked Site. AXYS is not responsible for webcasting or any other form of transmission received from any Linked Site. AXYS is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by AXYS of the site or any association with its operators.

NO UNLAWFUL OR PROHIBITED USE

As a condition of your use of the AXYS Web Site, you warrant to AXYS that you will not use the AXYS Web Site for any purpose that is unlawful or prohibited by these terms, conditions, and notices. You may not use the AXYS Web Site in any manner which could damage, disable, overburden, or impair the AXYS Web Site or interfere with any other party’s use and enjoyment of the AXYS Web Site. You may not obtain or attempt to obtain any materials or information through any means not intentionally made available or provided for through the AXYS Web Sites.

USE OF COMMUNICATION SERVICES

The AXYS Web Site may contain bulletin board services, chat areas, news groups, forums, communities, personal web pages, calendars, and/or other message or communication facilities designed to enable you to communicate with the public at large or with a group (collectively, “Communication Services”), you agree to use the Communication Services only to post, send and receive messages and material that are proper and related to the particular Communication Service. By way of example, and not as a limitation, you agree that when using a Communication Service, you will not:

• Defame, abuse, harass, stalk, threaten or otherwise violate the legal rights (such as rights of privacy and publicity) of others.
• Publish, post, upload, distribute or disseminate any inappropriate, profane, defamatory, infringing, obscene, indecent or unlawful topic, name, material or information.
• Upload files that contain software or other material protected by intellectual property laws (or by rights of privacy of publicity) unless you own or control the rights thereto or have received all necessary consents.
• Upload files that contain viruses, corrupted files, or any other similar software or programs that may damage the operation of another’s computer.
• Advertise or offer to sell or buy any goods or services for any business purpose, unless such Communication Service specifically allows such messages.
• Conduct or forward surveys, contests, pyramid schemes or chain letters.
• Download any file posted by another user of a Communication Service that you know, or reasonably should know, cannot be legally distributed in such manner.
• Falsify or delete any author attributions, legal or other proper notices or proprietary designations or labels of the origin or source of software or other material contained in a file that is uploaded.
• Restrict or inhibit any other user from using and enjoying the Communication Services.
• Violate any code of conduct or other guidelines which may be applicable for any particular Communication Service.
• Harvest or otherwise collect information about others, including e-mail addresses, without their consent.
• Violate any applicable laws or regulations.

AXYS has no obligation to monitor the Communication Services. However, AXYS reserves the right to review materials posted to a Communication Service and to remove any materials in its sole discretion. AXYS reserves the right to terminate your access to any or all of the Communication Services at any time without notice for any reason whatsoever.

AXYS reserves the right at all times to disclose any information as necessary to satisfy any applicable law, regulation, legal process or governmental request, or to edit, refuse to post or to remove any information or materials, in whole or in part, in AXYS’s sole discretion.

Always use caution when giving out any personally identifying information about yourself or your children in any Communication Service. AXYS does not control or endorse the content, messages or information found in any Communication Service and, therefore, AXYS specifically disclaims any liability with regard to the Communication Services and any actions resulting from your participation in any Communication Service. Managers and hosts are not authorized AXYS spokespersons, and their views do not necessarily reflect those of AXYS.

Materials uploaded to a Communication Service may be subject to posted limitations on usage, reproduction and/or dissemination. You are responsible for adhering to such limitations if you download the materials.

MATERIALS PROVIDED TO AXYS OR POSTED AT ANY AXYS WEB SITE

AXYS does not claim ownership of the materials you provide to AXYS (including feedback and suggestions) or post, upload, input or submit to any AXYS Web Site or its associated services (collectively “Submissions”). However, by posting, uploading, inputting, providing or submitting your Submission you are granting AXYS, its affiliated companies and necessary sublicensees permission to use your Submission in connection with the operation of their Internet businesses including, without limitation, the rights to: copy, distribute, transmit, publicly display, publicly perform, reproduce, edit, translate and reformat your Submission; and to publish your name in connection with your Submission.

No compensation will be paid with respect to the use of your Submission, as provided herein. AXYS is under no obligation to post or use any Submission you may provide and may remove any Submission at any time in AXYS’s sole discretion.

By posting, uploading, inputting, providing or submitting your Submission you warrant and represent that you own or otherwise control all of the rights to your Submission as described in this section including, without limitation, all the rights necessary for you to provide, post, upload, input or submit the Submissions.

LIABILITY DISCLAIMER

THE INFORMATION, SOFTWARE, PRODUCTS, AND SERVICES INCLUDED IN OR AVAILABLE THROUGH THE AXYS WEB SITE MAY INCLUDE INACCURACIES OR TYPOGRAPHICAL ERRORS. CHANGES ARE PERIODICALLY ADDED TO THE INFORMATION HEREIN. AXYS AND/OR ITS SUPPLIERS MAY MAKE IMPROVEMENTS AND/OR CHANGES IN THE AXYS WEB SITE AT ANY TIME. ADVICE RECEIVED VIA THE AXYS WEB SITE SHOULD NOT BE RELIED UPON FOR PERSONAL, MEDICAL, LEGAL OR FINANCIAL DECISIONS AND YOU SHOULD CONSULT AN APPROPRIATE PROFESSIONAL FOR SPECIFIC ADVICE TAILORED TO YOUR SITUATION.

AXYS AND/OR ITS SUPPLIERS MAKE NO REPRESENTATIONS ABOUT THE SUITABILITY, RELIABILITY, AVAILABILITY, TIMELINESS, AND ACCURACY OF THE INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS CONTAINED ON THE AXYS WEB SITE FOR ANY PURPOSE. TO THE MAXIMUM EXTENT PERMITTED BY APPLICABLE LAW, ALL SUCH INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS ARE PROVIDED “AS IS” WITHOUT WARRANTY OR CONDITION OF ANY KIND. AXYS AND/OR ITS SUPPLIERS HEREBY DISCLAIM ALL WARRANTIES AND CONDITIONS WITH REGARD TO THIS INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS, INCLUDING ALL IMPLIED WARRANTIES OR CONDITIONS OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, TITLE AND NON-INFRINGEMENT.

TO THE MAXIMUM EXTENT PERMITTED BY APPLICABLE LAW, IN NO EVENT SHALL AXYS AND/OR ITS SUPPLIERS BE LIABLE FOR ANY DIRECT, INDIRECT, PUNITIVE, INCIDENTAL, SPECIAL, CONSEQUENTIAL DAMAGES OR ANY DAMAGES WHATSOEVER INCLUDING, WITHOUT LIMITATION, DAMAGES FOR LOSS OF USE, DATA OR PROFITS, ARISING OUT OF OR IN ANY WAY CONNECTED WITH THE USE OR PERFORMANCE OF THE AXYS WEB SITE, WITH THE DELAY OR INABILITY TO USE THE AXYS WEB SITE OR RELATED SERVICES, THE PROVISION OF OR FAILURE TO PROVIDE SERVICES, OR FOR ANY INFORMATION, SOFTWARE, PRODUCTS, SERVICES AND RELATED GRAPHICS OBTAINED THROUGH THE AXYS WEB SITE, OR OTHERWISE ARISING OUT OF THE USE OF THE AXYS WEB SITE, WHETHER BASED ON CONTRACT, TORT, NEGLIGENCE, STRICT LIABILITY OR OTHERWISE, EVEN IF AXYS OR ANY OF ITS SUPPLIERS HAS BEEN ADVISED OF THE POSSIBILITY OF DAMAGES. BECAUSE SOME STATES/JURISDICTIONS DO NOT ALLOW THE EXCLUSION OR LIMITATION OF LIABILITY FOR CONSEQUENTIAL OR INCIDENTAL DAMAGES, THE ABOVE LIMITATION MAY NOT APPLY TO YOU. IF YOU ARE DISSATISFIED WITH ANY PORTION OF THE AXYS WEB SITE, OR WITH ANY OF THESE TERMS OF USE, YOUR SOLE AND EXCLUSIVE REMEDY IS TO DISCONTINUE USING THE AXYS WEB SITE.

SERVICE CONTACT :

System@genetic.org

TERMINATION/ACCESS RESTRICTION

AXYS reserves the right, in its sole discretion, to terminate your access to the AXYS Web Site and the related services or any portion thereof at any time, without notice. GENERAL To the maximum extent permitted by law, this agreement is governed by the laws of the State of Washington, U.S.A. and you hereby consent to the exclusive jurisdiction and venue of courts in San Mateo County, California, U.S.A. in all disputes arising out of or relating to the use of the AXYS Web Site. Use of the AXYS Web Site is unauthorized in any jurisdiction that does not give effect to all provisions of these terms and conditions, including without limitation this paragraph. You agree that no joint venture, partnership, employment, or agency relationship exists between you and AXYS as a result of this agreement or use of the AXYS Web Site. AXYS’s performance of this agreement is subject to existing laws and legal process, and nothing contained in this agreement is in derogation of AXYS’s right to comply with governmental, court and law enforcement requests or requirements relating to your use of the AXYS Web Site or information provided to or gathered by AXYS with respect to such use. If any part of this agreement is determined to be invalid or unenforceable pursuant to applicable law including, but not limited to, the warranty disclaimers and liability limitations set forth above, then the invalid or unenforceable provision will be deemed superseded by a valid, enforceable provision that most closely matches the intent of the original provision and the remainder of the agreement shall continue in effect. Unless otherwise specified herein, this agreement constitutes the entire agreement between the user and AXYS with respect to the AXYS Web Site and it supersedes all prior or contemporaneous communications and proposals, whether electronic, oral or written, between the user and AXYS with respect to the AXYS Web Site. A printed version of this agreement and of any notice given in electronic form shall be admissible in judicial or administrative proceedings based upon or relating to this agreement to the same extent an d subject to the same conditions as other business documents and records originally generated and maintained in printed form. It is the express wish to the parties that this agreement and all related documents be drawn up in English.

COPYRIGHT AND TRADEMARK NOTICES:

All contents of the AXYS Web Site are: Copyright 2016 by AXYS and/or its suppliers. All rights reserved.

TRADEMARKS

The names of actual companies and products mentioned herein may be the trademarks of their respective owners.

The example companies, organizations, products, people and events depicted herein are fictitious. No association with any real company, organization, product, person, or event is intended or should be inferred.

Any rights not expressly granted herein are reserved.

NOTICES AND PROCEDURE FOR MAKING CLAIMS OF COPYRIGHT INFRINGEMENT

Pursuant to Title 17, United States Code, Section 512(c)(2), notifications of claimed copyright infringement under United States copyright law should be sent to Service Provider’s Designated Agent. ALL INQUIRIES NOT RELEVANT TO THE FOLLOWING PROCEDURE WILL RECEIVE NO RESPONSE. See Notice and Procedure for Making Claims of Copyright Infringement.

AXYS has four standing committees that oversee key aspects of its business, funding and other affairs. They are comprised of Board of Directors members and others who are not current directors. If you are interested in serving on any of these committees or would like to contact AXYS about a topic germane to their respective duties, please contact us

Finance and Governance Committee

The Finance and Governance Committee is responsible for making financial, liability and governance recommendations to the Board of Directors, including but not limited to interpreting and recommending changes to the bylaws, reviewing and developing policies, identifying investment policies, providing financial and insurance liability review and oversight, reviewing the audit, ensuring adequate accountability oversight, conducting nominations and elections, and orientating new board members.

Chairperson: TBA

Program Committee Charter

The Program Committee is responsible for overseeing AXYS’s current programs of support, education and membership; assessing gaps in the programs we currently provide; and envisioning new programs to meet these unmet needs.

Chairperson: TBA

Fundraising Committee

The Fundraising Committee’s principal focus is to recommend fundraising goals and strategies to the board, and either to implement them or to recommend the specific process of implementation.

Acting Chair: TBA

Research Committee

The Research Committee’s charter is to identify and propel the research goals of importance to the populations served by AXYS.  The committee suggests AXYS’s broad research agenda, identifies available resources and, through a designated board liaison, prioritizes these goals through an iterative dialogue with the AXYS’s Scientific Advisory Committee (SAC).

Chairperson:  TBA