For security reasons, we ask that you please register in advance for each meeting. We apologize for this inconvenience.
AXYS Chat Pop-ins are meeting spaces for anyone 18 and up with any X and/or Y variation! We would like to stress that these meetings are intended ONLY for those with an X/Y variation.
Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges.
Your privacy is very important to us. AXYS will not record any of these meetings and we ask that you please respect the privacy of other attendees. We also ask that you abide by the AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/
This meeting is not intended to be therapy and should not be used as a substitute for the services of a mental health professional.
Who: Upstate NY Support Group What: Picnic in the park When: Sunday, August 20 from Noon – 4PM Where: Rochester, NY. Ellison Park, Creekside Lodge, see the details below
Bring a dish to pass
Hamburgers, hots and veggie burgers, and beverages will be served
When visiting the above linked page, scroll down and you will see the tabs named “Sessions,” “Speakers,” and “Sponsors.” There you can search for sessions by keyword and/or filter them by date, X/Y variation, or target audience. Click/tap on a session for speaker information and a description. Please note that the agenda is still being updated and all agenda information is subject to change.
For those that have registered: from the conference lobby, go to the Sessions tab and bookmark sessions that interest you to build your own custom Agenda! You can do this by clicking the icon. Sessions that you bookmark will be added to the schedule that can be viewed by going to the Agenda tab. Click here for a video tutorial!
Personalize Your Conference Agenda
Agenda Overview
Times are in Eastern Daylight Time (U.S. and Canada)
AXYS is thrilled to offer a $500 stipend to help families with the costs to their visit to an ACRC (AXYS Clinical and Research Consortium) clinic. In 2023 our goal is to award stipends to 10 people with each condition: XXY, XYY, Trisomy X, or XXXY. Those with XXYY visit our page for the stipend offered by the XXYY Project.
Notes:
This stipend is for those with confirmed X or Y variations. It is not for doctor visits to confirm a prenatal screening test.
It is not to be used for visits with the purpose of being in a research study, as most studies offer their own travel reimbursements.
We encourage all who visit ACRC clinics to join the GALAXY Registry.
Please also use this travel resource: Angel Flight NE, a 501(c)3 nonprofit organization that coordinates free air and ground transportation for medically stable patients seeking medical care for healthcare conditions require them to travel hundreds if not thousands of miles for the specialized care they need. The organization’s partners with volunteer pilots and commercial aviation partners who fly medically stable children and adults for free. Angel Flight NE (AFNE) has been providing services for 27 years assisting more than 108,000 patients who have flown over 15 million miles to 750+ medical facilities throughout the United States. AFNE’s mission/flight coordinators, who are available 24×7, use web-based system to schedule flight made possible by 400+ volunteer pilots or commercial airline partners. These flights are completely FREE of charge to the patient & family for as long & as often as they need to fly.
We ask that you:
1. Complete this application form. You will be notified that we have received your application.
2. After your visit, you will need to complete the reimbursement form and submit clinic visit related travel and other receipts (doctor bills) so our accountants are assured that this money was indeed used by someone with an X or Y variation to visit an ACRC clinic. You can be reimbursed for receipt-supported expenses up to $500.
Clinic Visit Stipend Application Form
ACRC Clinic Visit Stipend
AXYS is thrilled to offer a $500 stipend to help families with the costs to their visit to an ACRC (AXYS Clinical and Research Consortium) clinic. In 2023 our goal is to award stipends to 10 people with each condition: XXY, XYY, Trisomy X, or XXXY. Those with XXYY visit our page for the stipend offered by the XXYY Project.
Notes:
This stipend is for those with confirmed X or Y variations. It is not for doctor visits to confirm a prenatal screening test.
It is not to be used for visits with the purpose of being in a research study, as most studies offer their own travel reimbursements.
We encourage all who visit ACRC clinics to join the GALAXY Registry.
We ask that you:
1. Complete this application form. You will be notified that we have received your application.
3. After your visit, you will need to complete the reimbursement form and submit clinic visit related travel and other receipts (doctor bills) so our accountants are assured that this money was indeed used by someone with an X or Y variation to visit an ACRC clinic. You can be reimbursed for receipt-supported expenses up to $500.