Helpline: 1‑267‑338‑4262 | info@genetic.org
AXYS - The Association for X&Y Chromosome Variations
Helpline: 1‑267‑338‑4262 | info@genetic.org

Events for July 9 - May 5

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AXYS Community Monthly Open House

Zoom

For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver "Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT." "Come in when you can and leave when you want, we don't expect anyone to stay the whole night, but if you feel like it you are welcome.  If this time never works for you, please tell us and we'll find a compromise." "We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common.  Show up, talk about what's going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community." "Separate subgroups are really helpful and we'll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we'll be talking in the group about how to find these other groups. Remember that if you don't feel like you need support right now, it's still worth showing up because you may meet someone who needs the answers that only you have." "Look forward to seeing you, AXYS Rocky Mountain Chapter" - Rob & Jamie Lee

eXtraordinarY Kids Clinic/Mid-Atlantic Region Support Group Meeting

Nemours A. I. duPont Hospital for Children 1600 Rockland Road, Wilmington, DE, United States

Location Nemours Children's Hospital | Wilmington, DE | 3rd floor | Classrooms 3 and 4 Agenda Overview of the clinic by the clinic Co-Director Speakers to discuss Transition to Adult Services and the GALAXY registry (discussion will be appropriate for all ages) Q&A Attendees are welcome to bring snacks if they prefer. Light refreshments will be provided. It may be helpful to review this document about the transition to adulthood ahead of the meeting.

Free
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