7:30am – 10:00am
Conference Center Lobby | • Check-in. Receive conference materials and name badges.
• All attendees, especially teens and young adults, are welcome to drop in the Silverbell Pavilion all day for games and socializing. Also enjoy the hotel pool, outdoor areas and the nature trail. |
8:30am – 8:45am
Emory Amphitheatre | • Welcoming Remarks and Meet the AXYS Board
Carol Meerschaert, AXYS Executive Director |
| 8:45am – 9:00am | • How Research Can Benefit Families and Patients
Rebecca Wilson, PhD |
| 9:00am – 10:30am | • Keynote addresses:
Current Research and What We Hope to Accomplish
Two panel discussions moderated by Alan Rogol, MD and featuring Allan Reiss, Nicole Tartaglia, MD, Sharron Close, PhD MS CPNP-PC, Sophie van Rijn, PhD, Armin Raznahan, MD PhD, Shanlee Davis, MD |
| 10:30am – 10:45am | • Break |
| 10:45am – 12:00pm | • Get to know one another!
Guided, condition-specific socialization activities
Adults with a condition – feel free to visit the Silverbell Pavilion and get to know one another! |
| 10:45am – 12:00pm | • Brief Research Presentations and keynote follow-up discussions for scientific faculty |
| 12:00pm – 1:00pm | • Lunch: Delicious buffet lunch served in the hotel dining room.
Topic: 1st Time Attendee Panel
Variation(s): All
Speaker(s): Sharron Close, PhD MS CPNP-PC, Susan Howell, MS CGC and others
Room:
Silverbell Pavilion open: Games, crafts and other indoor/outdoor activities. |
| 1:00pm – 4:00pm | • Wisteria Lanes open. All attendees, especially teens and young adults, are welcome for bowling, pool, video games and socializing. |
| 1:00pm – 1:50pm | • Breakout sessions
1) Topic: Medical Management of Klinefelter Syndrome in Adults
Variation(s): XXY
Speaker(s): Leen Wehbeh, MD
Room:
2) Topic: Brains, Genes, And Puberty: Testosterone Replacement Therapy in Klinefelter Syndrome
Variation(s): XXY
Speaker(s): Allan Reiss, MD, Vanessa Alschuler
Room:
3) Topic: 15 Years of eXtraordinarY Kids
Variation(s): All
Speaker(s): Nicole Tartaglia, MD
Room:
4) Topic: The Use of Psychiatric Medications for Serious Mental Health Challenges
Variation(s): All
Speaker(s): David Hong, MD
Room:
5) Topic: A Workshop for Brothers and Sisters of those with an X or Y Variation
Variation(s): All
Speaker(s): Susan Brasher, PhD
Room: |
| 2:05pm – 2:55pm | • Breakout sessions
1) Topic: Workshop for young people transitioning to adulthood (2:05-5:00pm)
Variation(s): All
Speaker(s): Ginnie Cover (Facilitator), Paul B Dressler, MD, MPH, Maria Vogiatzi, MD, Dorothy Boothe
Room:
2) Topic: Retreat for parents of infants and toddlers (2:05-5:00pm)
Variation(s): All
Speaker(s): Susan Howell (Facilitator), Nicole Tartaglia, MD, Shanlee Davis, MD, Rebecca Wilson, PsyD, Sarah McSwegin, LCSW
Room:
3) Topic: Potential Legal Issues and Concerns impacting Adults
Variation(s): All
Speaker(s): Sheryl Kelly, Esq. and Gary Glissman
Room:
4) Topic: Gene Function, Brain Development and Behavior
Variation(s): All
Speaker(s): Armin Raznahan, MD, PhD
Room:
5) Topic: Metabolic Syndrome in X and Y Variations
Variation(s): All
Speaker(s): Michelle Schweiger, DO, MPH
Room:
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| 3:10pm – 4:00pm | • Breakout sessions
1) Topic: Workshop for young people transitioning to adulthood (continued)
Variation(s): All
Speaker(s): Ginnie Cover (Facilitator) + various speakers
Room:
2) Topic: Retreat for parents of infants and toddlers (continued)
Variation(s): All
Speaker(s): Susan Howell, MS CGC (Facilitator) + various speakers
Room:
3) Topic: Male Fertility in X and Y Variations
Variation(s): XXY
Speaker(s): Hooman Sadri-Ardekani,MD, Stanley Kogan, MD, Stuart Howards, MD, Akanksha Mehta, MD, MS
Room:
4) Topic: The Neuropsychological Evaluation and What It Can Tell Parents
Variation(s): All
Speaker(s): David Marcus, PhD
Room:
5) Topic: Metacognitive Interventions Improve Behavior and Learning in Children with Neurodevelopmental Disorders
Variation(s): All
Speaker(s): Claire Coles, PhD
Room: |
| 4:10pm – 5:00pm | • Breakout sessions
1) Topic: Workshop for young people transitioning to adulthood (continued)
Variation(s): All
Speaker(s): Ginnie Cover (Facilitator) + various speakers
Room:
2) Topic: Retreat for parents of infants and toddlers (continued)
Variation(s): All
Speaker(s): Susan Howell, MS CGC (Facilitator) + various speakers
Room:
3) Topic: Special Education: Navigating the IEP Process and Beyond
Variation(s): All
Speaker(s): Erin Frith and Talia Thompson, PhD
Room:
4) Topic: Man to Man: Understanding XXY from a Father's Perspective
Variation(s): XXY
Speaker(s): David Hong, MD
Room:
5) Topic: Psychiatric and Neurodevelopmental Comorbidities in XXY
Variation(s): XXY
Speaker(s): Erin Torres, PNP and Srishti Rau, PhD
Room:
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| 5:00pm | • Dinner on your own. Enjoy the delicious dinner at the hotel restaurant The Club Room or local restaurants including those at Emory Point, a short walk from the hotel.
Click here to Explore Atlanta.
Feel free to use the Conference Facebook group to connect with other families so you can dine and explore together.
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| 7:00pm – 10:00pm | • Silverbell Pavilion open. All attendees, especially teens and young adults, are welcome for pool, video games and socializing.
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