Conference Agenda
(Last updated 5-31-19)
View a printable version of the agenda.
Please be aware that the following agenda is preliminary and that talk titles, days and times are subject to change. Check back frequently for updates and additions.
EMORY CONFERENCE CENTER & HOTEL
| Time | Event |
|---|---|
| 1:00pm – 5:00pm | • Meeting of the AXYS Clinic & Research Consortium (ACRC) |
| 3:00pm – 7:00pm | • Check-in for your hotel room. • Conference check-in. Receive conference materials and name badges. Pick up t-shirts. • Dinner on your own. Enjoy a delicious dinner at the hotel restaurant The Club Room or local restaurants including those at Emory Point, a short walk from the hotel. |
| 7:00pm – 9:00pm | • Opening dessert reception. Meet fellow attendees and presenters. Light snacks will be provided. Wisteria Lanes with bowling, pool & refreshments. See childcare guidelines regarding all individuals under the age of 18. (7-10pm) |
EMORY CONFERENCE CENTER & HOTEL
| Time | Event |
|---|---|
| 7:30am – 10:00am Conference Center Lobby | • Check-in. Receive conference materials and name badges. • All attendees, especially teens and young adults, are welcome to drop in the Silverbell Pavilion all day for games and socializing. Also enjoy the hotel pool, outdoor areas and the nature trail. |
| 8:30am – 8:45am Emory Amphitheatre | • Welcoming Remarks and Meet the AXYS Board Carol Meerschaert, AXYS Executive Director |
| 8:45am – 9:00am | • How Research Can Benefit Families and Patients Rebecca Wilson, PhD |
| 9:00am – 10:30am | • Keynote addresses: Current Research and What We Hope to Accomplish Two panel discussions moderated by Alan Rogol, MD and featuring Allan Reiss, Nicole Tartaglia, MD, Sharron Close, PhD MS CPNP-PC, Sophie van Rijn, PhD, Armin Raznahan, MD PhD, Shanlee Davis, MD |
| 10:30am – 10:45am | • Break |
| 10:45am – 12:00pm | • Get to know one another! Guided, condition-specific socialization activities Adults with a condition – feel free to visit the Silverbell Pavilion and get to know one another! |
| 10:45am – 12:00pm | • Brief Research Presentations and keynote follow-up discussions for scientific faculty |
| 12:00pm – 1:00pm | • Lunch: Delicious buffet lunch served in the hotel dining room. Topic: 1st Time Attendee Panel Variation(s): All Speaker(s): Sharron Close, PhD MS CPNP-PC, Susan Howell, MS CGC and others Room: Silverbell Pavilion open: Games, crafts and other indoor/outdoor activities. |
| 1:00pm – 4:00pm | • Wisteria Lanes open. All attendees, especially teens and young adults, are welcome for bowling, pool, video games and socializing. |
| 1:00pm – 1:50pm | • Breakout sessions 1) Topic: Medical Management of Klinefelter Syndrome in Adults Variation(s): XXY Speaker(s): Leen Wehbeh, MD Room: 2) Topic: Brains, Genes, And Puberty: Testosterone Replacement Therapy in Klinefelter Syndrome Variation(s): XXY Speaker(s): Allan Reiss, MD, Vanessa Alschuler Room: 3) Topic: 15 Years of eXtraordinarY Kids Variation(s): All Speaker(s): Nicole Tartaglia, MD Room: 4) Topic: The Use of Psychiatric Medications for Serious Mental Health Challenges Variation(s): All Speaker(s): David Hong, MD Room: 5) Topic: A Workshop for Brothers and Sisters of those with an X or Y Variation Variation(s): All Speaker(s): Susan Brasher, PhD Room: |
| 2:05pm – 2:55pm | • Breakout sessions 1) Topic: Workshop for young people transitioning to adulthood (2:05-5:00pm) Variation(s): All Speaker(s): Ginnie Cover (Facilitator), Paul B Dressler, MD, MPH, Maria Vogiatzi, MD, Dorothy Boothe Room: 2) Topic: Retreat for parents of infants and toddlers (2:05-5:00pm) Variation(s): All Speaker(s): Susan Howell (Facilitator), Nicole Tartaglia, MD, Shanlee Davis, MD, Rebecca Wilson, PsyD, Sarah McSwegin, LCSW Room: 3) Topic: Potential Legal Issues and Concerns impacting Adults Variation(s): All Speaker(s): Sheryl Kelly, Esq. and Gary Glissman Room: 4) Topic: Gene Function, Brain Development and Behavior Variation(s): All Speaker(s): Armin Raznahan, MD, PhD Room: 5) Topic: Metabolic Syndrome in X and Y Variations Variation(s): All Speaker(s): Michelle Schweiger, DO, MPH Room: |
| 3:10pm – 4:00pm | • Breakout sessions 1) Topic: Workshop for young people transitioning to adulthood (continued) Variation(s): All Speaker(s): Ginnie Cover (Facilitator) + various speakers Room: 2) Topic: Retreat for parents of infants and toddlers (continued) Variation(s): All Speaker(s): Susan Howell, MS CGC (Facilitator) + various speakers Room: 3) Topic: Male Fertility in X and Y Variations Variation(s): XXY Speaker(s): Hooman Sadri-Ardekani,MD, Stanley Kogan, MD, Stuart Howards, MD, Akanksha Mehta, MD, MS Room: 4) Topic: The Neuropsychological Evaluation and What It Can Tell Parents Variation(s): All Speaker(s): David Marcus, PhD Room: 5) Topic: Metacognitive Interventions Improve Behavior and Learning in Children with Neurodevelopmental Disorders Variation(s): All Speaker(s): Claire Coles, PhD Room: |
| 4:10pm – 5:00pm | • Breakout sessions 1) Topic: Workshop for young people transitioning to adulthood (continued) Variation(s): All Speaker(s): Ginnie Cover (Facilitator) + various speakers Room: 2) Topic: Retreat for parents of infants and toddlers (continued) Variation(s): All Speaker(s): Susan Howell, MS CGC (Facilitator) + various speakers Room: 3) Topic: Special Education: Navigating the IEP Process and Beyond Variation(s): All Speaker(s): Erin Frith and Talia Thompson, PhD Room: 4) Topic: Man to Man: Understanding XXY from a Father's Perspective Variation(s): XXY Speaker(s): David Hong, MD Room: 5) Topic: Psychiatric and Neurodevelopmental Comorbidities in XXY Variation(s): XXY Speaker(s): Erin Torres, PNP and Srishti Rau, PhD Room: |
| 5:00pm | • Dinner on your own. Enjoy the delicious dinner at the hotel restaurant The Club Room or local restaurants including those at Emory Point, a short walk from the hotel. Click here to Explore Atlanta. Feel free to use the Conference Facebook group to connect with other families so you can dine and explore together. |
| 7:00pm – 10:00pm | • Silverbell Pavilion open. All attendees, especially teens and young adults, are welcome for pool, video games and socializing. |
EMORY CONFERENCE CENTER & HOTEL
All attendees, especially teens and young adults, are welcome to drop in the Silverbell Pavilion all day for games and socializing. Also enjoy the hotel pool, outdoor areas and the nature trail.
| Time | Event |
|---|---|
| 9:00am – 9:15am | • Meet in Emory Amphitheatre for guidance on how morning sessions will flow |
| 9:15am – 11:30am | • Condition-specific presentations plus Q&A (Three 15-minute presentations followed by 30 minutes Q&A) 1) Topic: XXY Speakers: Shanlee Davis, MD, Sharron Close, PhD MS CPNP-PC, Hooman Sadri-Ardekani, MD, PhD Room: 2) Topic: XYY Speakers: Amy Talboy, MD, Hannah Acevedo, BCBA, Allan Reiss, MD Room: 3) Topic: XXX Speakers: Nicole Tartaglia, MD, Sophie Van Rijn, PhD, Rebecca Wilson, PhD Room: 4) Topic: XXYY/XXXY Speakers: Nicole Tartaglia, MD, Rebecca Wilson, PhD, Shanlee Davis, MD Room: |
| 11:30am – 1:00pm | • Poster Session Interact with researchers! |
| 12:00pm – 1:00pm | • Lunch: Delicious buffet lunch served in the hotel dining room. |
| 1:00pm – 1:50pm | • Breakout sessions 1) Topic: Interview with Awareness Advocates Ryan Bregante, Stefan Schwarz, William Kelly, and Kelsey Maffei Variation(s): XXY Speaker(s): Moderated by Susan Howell, MS CGC Room: 2) Topic: Cognitive and behavioral development of young children with 47,XXY, 47,XXX and 47,XYY aged 1 to 6 years: first results of the TRIXY study Variation(s): XXY, XXX, XYY Speaker(s): Sophie van Rijn, PhD Room: 3) Topic: Behavioral Interventions with the School-Age Child: What you need to know Variation(s): All Speaker(s): Hannah Acevedo, BCBA Room: 4) Topic: Social Skill Challenges, Toddlers to Teens Variation(s): All Speaker(s): Rebecca Wilson, PsyD Room: 5) Topic: Educational Resources Including Post-Secondary Education Variation(s): All Speaker(s): Myra Byrd Room: |
| 2:00pm – 4:00pm | • Region-specific Support Group meetings Facilitated by AXYS Executive Director, Carol Meerschaert |
| 4:00pm | • Conference concludes |
Conference presenters share their professional and personal opinions and experiences. These opinions and experiences are the presenters’ own and do not necessarily represent the AXYS organization.