AXYS Monthly Drop-in Chat
AXYS Monthly Drop-in Chat
1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT)
All variations, parents and adults welcome. Hosted by Ginnie Cover.
AXYS Monthly Drop-in Chat
AXYS Monthly Drop-in Chat
1st Sunday of the Month, 9pm EDT (7pm CDT, 8pm MDT, 9pm PDT)
All variations, parents and adults welcome. Hosted by Ginnie Cover.
Register for the next meeting on Zoom
About these meetings
For security reasons, we ask that you please register in advance for each meeting. We apologize for this inconvenience.
AXYS Monthly Drop-in Chats are meeting spaces for anyone 18 and up with any X and/or Y variation and for parents of children with one of these variations!
Come hang out in an open, friendly environment. Chat with others or just check things out with no obligation to speak or be on camera. Celebrate your accomplishments and support others in their challenges.
Your privacy is very important to us. AXYS will not record any of these meetings and we ask that you please respect the privacy of other attendees. We also ask that you abide by the AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/
This meeting is not intended to be therapy and should not be used as a substitute for the services of a mental health professional.
Mid-Atlantic Support Group Meeting
Register here: https://us06web.zoom.us/meeting/register/D2Og-ghDSEyCYtfT1lgpRQ
The AXYS Mid-Atlantic Support Group will hold a virtual meeting on Saturday, April 19, from 2-4 pm hosted by Stefan Schwarz. Topics include all issues affecting those with 47,XXY; 47,XYY; 47,XXX, and other variations as well as information about the upcoming 2025 Community Conference.
Attendance at all AXYS events requires agreement to abide by AXYS Activities Conduct Policy: https://genetic.org/axys-activities-conduct-policy/
AXYS Community Monthly Open House
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver
This gathering will happen on the third Friday of every month. The room will be open from 5pm to 7pm Mountain Time (7pm-9pm Eastern, 6pm-8pm Central, 4pm-6pm Pacific).
“Because this is an Open House, you can join when you want and leave when you need to. You don’t have to be on time, but you can stay as long as you like. We are keeping the room open for two hours. We can keep the room open longer if there are good conversations happening. If you join after the room has been closed, we’ll open it back up if we’re able. If we can’t be present, we’ll pass the host hat to another person in the room and the conversations can continue.
This room is open to everyone impacted by any X&Y chromosome variation to connect with each other, and this includes families and caregivers. The Open House is a place to share resources, stories, and ask questions of the community.
This community is full of knowledge and experience. We all are navigating relationships, doctors and treatments, education, and making decisions while living life. Sometimes you get to connect with someone because they tell a story that sounds like your own. There are times that hearing another perspective gives you ideas about how to improve things in your daily life. Sometimes someone has a resource that really helps.
You may not feel like you need a support group, but please consider, you may be there for someone else. We have seen lives changed by a chance remark. All of our experiences are of value and our stories need to be heard. Often, we get answers to questions we didn’t even know we needed to ask.”
“Thank you for your consideration and we look forward to seeing everybody Friday night!”
– Rob & Jamie Lee
AXYS Rocky Mountain Support Group
2025 AXYS Community Conference Agenda
2025 AXYS Community Conference Agenda
Printable version of this agenda
Friday, July 25
4:30-7pm – Check-in
5-7pm – Dessert Welcome Reception
Saturday, July 26
7-8:30am – Breakfast Buffet
8:30am-4:30pm – Childcare
8:30am-2pm – Chromodiversity Camp
Sunday, July 27
7:30-9am – Breakfast Buffet
8:30-3pm – Childcare
AXYS Southeastern Support Group Meeting
At this meeting, we will be joined by Dr. Sharron Close from Emory University. Dr. Close will discuss her involvement with the upcoming 2025 AXYS Community Conference, and attendees of previous AXYS conferences will share how they have benefited from their attendance in-person and virtually, as well as answer any questions individuals may have.
Register for the meeting here
AXYS Community Monthly Open House
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver
“Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT.”
“Come in when you can and leave when you want, we don’t expect anyone to stay the whole night, but if you feel like it you are welcome. If this time never works for you, please tell us and we’ll find a compromise.”
“We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common. Show up, talk about what’s going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community.”
“Separate subgroups are really helpful and we’ll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we’ll be talking in the group about how to find these other groups.
Remember that if you don’t feel like you need support right now, it’s still worth showing up because you may meet someone who needs the answers that only you have.”
“Look forward to seeing you,
AXYS Rocky Mountain Chapter”
– Rob & Jamie Lee
AXYS Community Monthly Open House
For a link to the Zoom meeting, please email Rob & Jamie Lee at axysrockymountain@gmail.com or contact them via the Facebook group: facebook.com/groups/axysdenver
“Our proposed time for an open house on Zoom is the 2nd Tuesday of the month. We will host the room from 5-10 pm MT.”
“Come in when you can and leave when you want, we don’t expect anyone to stay the whole night, but if you feel like it you are welcome. If this time never works for you, please tell us and we’ll find a compromise.”
“We would like to keep this group open to all X&Y variations and subgroups because we all have a lot in common. Show up, talk about what’s going on in your life, celebrate successes, and vent about the difficult moments with people who understand. Tap into your community.”
“Separate subgroups are really helpful and we’ll make sure that everyone is made aware of the different groups. The best place to look is the support group page on the AXYS website. And we’ll be talking in the group about how to find these other groups.
Remember that if you don’t feel like you need support right now, it’s still worth showing up because you may meet someone who needs the answers that only you have.”
“Look forward to seeing you,
AXYS Rocky Mountain Chapter”
– Rob & Jamie Lee
Cardiovascular risk and mortality in men receiving testosterone replacement therapy for KS in Denmark
Article Title: Cardiovascular risk and mortality in men receiving testosterone replacement therapy for Klinefelter syndrome in Denmark: a retrospective cohort study
Authors: Chang, Pedersen, Skakkebæk, Berglund, and Gravholt
Date of Publication: February 1, 2025
“TRT could alleviate excess mortality in KS and appears safe regarding cardiovascular risk. Today, most men with KS go undiagnosed, missing proper medical attention. There is a dire need for a policy change to ensure timely diagnosis and treatment in all men with KS.”
2025 AXYS Community Conference | Childcare Registration
Childcare Registration
Child Care Hours
- Saturday, July 26, 2025: 8:30 am to 5:00 pm
- Sunday, July 27, 2025: 8:30 am to 3:00 pm
Night Owl Kids Care, LLC
Child care will be provided by Night Owl Kids Care, LLC. Night Owl has been in business for 10 years and provides child care for, among others, Department of Defense events, and all employees are required to go through Department of Defense background checks. In order to register your child(ren) for child care during the Conference, after you register for the Conference, you will be provided with a link to Night Owl and will be required to fill out their registration form, including relevant medical issues and special needs, no later than July 5, 2025. After that date, unfortunately, no additional registrations can be accepted. Information regarding Night Owl is available at www.nightowlkidscare.com.
Activities
- Developmentally appropriate activities will be provided by Night Owl Kids Care, LLC including DVDs, toys, games, craft and art supplies.
- Parents/guardians must label all clothes and toys brought to the childcare room with the child’s name. No valuable items can be left with the child in the childcare facility.
Food and beverages
- AXYS will provide water and light snacks as well as lunch in the childcare center.
- Please have your children eat breakfast prior to arriving in the center for the day.
Contact information
- Parents must provide a cell phone number where they can be reached at any time while the child is in the child care room. Parents must be available at any time to collect their child in the child care room in case any problem occurs while their child is being cared for.
- Parents or persons authorized by the parents to check child(ren) in and out need to bring their government issued photo ID, such as a driver’s license, state-issued ID, passport, or military ID.
Additional information
- The child care services will not administer any prescription medicine to the children. Parents/guardians must return to the childcare facility to dispense any medicine to their child.
- For the health of other children in care, sick children will not be allowed into the child care facility.
- Parents need to provide a sufficient number of diapers/pull-ups needed for the time in care to support proper hygiene for their children. Changing mats, wipes, hand sanitizer and cleaning materials will be provided by Night Owl Kids Care, LLC for the use of the caregivers during the hours of care.
