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2017 AXYS Family Conference, Aurora, Colorado

Videos

2017 AXYS Family Conference Presentations

Presentation Slides (in PDF format)

Presenter	Presentation
Cory Nourie, MSS, MLSP	Transition to Adulthood
Sharon Heller	Life After High School: Preparing Students with Learning Differences for Transition
Liz Coan, PsyD	Understanding the ABCs of Behavior in Children
Alan D. Rogol, MD, PhD	Testosterone Therapy for Adolescents/Adults with Sex Chromosome Aneuploidies: What’s Available and What’s New?
Elizabeth Berry-Kravis, MD, PhD	Seizures and Tremor
Akanksha Mehta, MD, MS	Male Fertility in X and Y Variations: Current State-of-the-Art and Future Implications
Brenda Finucane, MS, LGC	Family Genetic Background Contributes to Phenotypic Variability in Sex Chromosome Variations and Other Neurodevelopmental Conditions
Bahareh Michelle Schweiger, DO, MPH	Metabolic Syndrome in 47,XXY
Virginia Isaacs Cover, MSW, MBA	Government Benefits: Special Considerations for Adolescents and Adults with Extra X and Y Chromosomes
Kimberly Kuiper, MSc & Nienke Bouw, MSc	Socio-emotional Functioning of Children with Sex Chromosome Trisomies: A Focus on Emotion Regulation
Sheryl K. Kelly, esq. and Gary Glissman	Legal Issues and Challenges
Jeanine Coleman, PhD	A Model for Assessment Accommodations for Individuals with Intellectual and Developmental Disabilities
Nicole Tartaglia, MD	Making Medication Decisions & Strategies to Set and Monitor Treatment Goals
Susan Howell, MS, CGC, MBA	Disclosing the Diagnosis
Sharron Close, PhD, MS, CPNP-PC, FAAN	Patient-Centered Approaches to Research Pathways
Armin Raznahan MD, PhD	Gene Function, Brain Development, and Behavior in X & Y Chromosome Variations
Sharron Close, PhD, MS, CPNP-PC, FAAN & Dorothy Boothe, PhD	Working the Room: Advocacy You Can Use
Alan Reiss, MD	Brain And Behavioral Development In Klinefelter Syndrome
Erin Torres, Nurse Practitioner	Issues and Challenges in XYY Syndrome
Rebecca Wilson, PsyD and others	Triple X Syndrome
Jennifer A. Janusz, PsyD, ABPP-Cn	Understanding Executive Functions
Karen Riley, PhD	IEP and 504 Accommodations
Shanlee Davis, MD, MSCS	Thinking About Starting Testosterone for XXY/XXYY/XXXY
Hooman Sadri-Ardekani, MD, PhD	Early Male Fertility Preservation Program for X&Y Variations